Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

In this episode, we talk about altered sensations. So what are altered sensations then? They are a bunch of sensory symptoms that can occur in MS, such as burning, tingling, pins and needles, crawling, numbness, prickling and the list goes on!
 
 We talk to Dr Amanda Howarth, a pain specialist about what exactly they are and why they happen. We also share some of the MS community's life hacks around living with altered sensations.

Episode notes:
- MS Trust A-Z page on altered sensations: mstrust.org.uk/altered-sensations
- MS Trust A-Z page on pain: mstrust.org.uk/pain
- MS Trust Blog - What's with the strange tingling, crawling, burning and prickling feelings?: mstrust.org.uk/news/expert/whats-strange-tingling-crawling-burning-and-prickling-feelings
- MS Trust A-Z on Complementary and alternative medicine: mstrust.org.uk/complementary-and-alternative-medicine
- MS Trust A-Z on Cannabis: mstrust.org.uk/cannabis
- MS Trust A-Z on Sativex: mstrust.org.uk/sativex
- MS Trust A-Z on Gabapentin: mstrust.org.uk/gabapentin

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

New year, new podcast! In this episode, we cover new research developments, education and what’s new at the MS Trust.
 
 We kick off the year by talking a little about what’s happening in the world of MS, the MS Trust and more.

We chat to Rachel Horne who is a journalist with MS. She breaks down her MS journey and how she launched ‘the Rachel Horne Prize for Women's Research in MS’.
 
 Next, our guest Helen from our MS Trust education team discusses the training we do with MS nurses and what this means for people living with MS

Episode notes:
- The MS Trust podcast: mstrust.org.uk/information-support/support-services/podcasts-ms-trust
- More about MS Specialist Nurses: mstrust.org.uk/a-z/ms-specialist-nurses
- Rachel Horne Prize for Women's Research in MS: Rachelhorneprize.com
- MS Trust Disease modifying drugs books; shop.mstrust.org.uk/publications/?type=treatments

Next episode
The next episode will be on altered sensations and MS. We’re finding out about those weird, odd, creeping, crawling, fizzing and sometimes painful feelings that you might experience.

We would love to hear from you if you have any comments or questions on the subject. We would REALLY love to know any life hacks you have for dealing with altered sensations. Send in your tips or questions (they can remain totally anonymous) on a voice note or message via WhatsApp on 07458303326. Alternatively, you can email [email protected].

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

For our last podcast of the year, we thought we'd get back to basics and concentrate on one of the most important things the MS Trust does, and that is answering your questions about MS.
 
 We've compiled a list of the most popular topics which people have contacted us about this year. We chat with our Head of Information and Engagement, Claire who works on the MS Trust helpline, to talk us through some of these topics.

Episode notes:

- What we do; mstrust.org.uk/what-we-do/about-ms-trust
- MS helpline and information; mstrust.org.uk/what-we-do/about-us/ms-helpline-and-information
- MS Trust Facebook group facebook.com/groups/multiplesclerosistrust

Whether you have recently been diagnosed, want to know more about a symptom you are experiencing, or need information on the different MS drugs and treatments, our MS Trust helpline team are here to answer your questions. 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

In this short episode, Helena talks to Tristan about an exciting fundraising opportunity to double your gifts to the MS Trust at no additional cost. Help your money go further and double the impact for people with MS.

Episode notes:

• Double your donation at mstrust.org.uk/big-give - From 29 November to 6 December 2022, give through The Big Give to double the value of your donation at no additional cost to you!

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

This time on Multiple sclerosis breaking it down, we’ll be talking about thinking problems in MS. Problems with thinking and memory affect around half of all people with MS. Cognition is the medical term for thinking, and problems with thought and memory are known as cognitive problems. Issues include memory, attention span, planning, decision-making, understanding or concentration.

To explain cognition issues in MS, and some strategies that may help you, we chatted with Professor Roshan das Nair. Helena and Debs also share their experiences with cognition difficulties and what they do to manage them.

Episode notes:
- Thinking problems in MS - Information from the MS Trust: mstrust.org.uk/information-support/health-wellbeing/thinking-and-memory-problems
-Staying Smart - tool from the MS Trust: mstrust.org.uk/information-support/staying-smart
-Brain health - article from the MS Trust: mstrust.org.uk/a-z/brain-health
-Exercise is good for your brain  - research update from the MS Trust: mstrust.org.uk/research/research-updates/210203-exercise-good-brain
- MS Trust Christmas cards - shop.mstrust.org.uk/christmas-cards/


Next episode
The next episode will be on the most asked questions in 2022.
 In the new year we will be doing a programon altered sensations and MS, those weird odd, creeping, crawling, fizzing and sometimes painful feelings you get. If you have anything to say or to ask about this topic we would love to hear from you. Your comment may even be featured on the episode! We would REALLY love to know any life hacks you have for dealing with altered sensations. Send in your tips or questions (they can remain totally anonymous) on a voice note or message via WhatsApp on 07458303326. Alternatively, you can email [email protected].

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

This time on the MS Trust podcast we’ll be talking about eye problems in MS. Multiple sclerosis can affect your vision in several ways. Problems with your sight, such as optic neuritis, can be an early symptom of MS, but can also arise if you've had MS for some time.

To try and explain the ins and outs of visual problems we chat to Dr Benson Chen a neuro-ophthalmologist, about some common eye issues in MS and ask him some questions the MS community sent us.
 
 We also chat to Deb about her own experiences with eye issues that eventually led to her MS diagnoses.

Episode notes:
- Visual problems in MS - Information from the MS Trust: mstrust.org.uk/a-z/visual-problems
-Optic neuritis - article from the MS Trust: mstrust.org.uk/a-z/optic-neuritis
-Double vision (diplopia) - article from the MS Trust: mstrust.org.uk/a-z/double-vision-diplopia
-Nystagmus - article from the MS Trust: mstrust.org.uk/a-z/nystagmus


Next episode
Our next podcast will be on the topic of Cognition and MS. If you have anything that you'd like to ask about this subject, we'd love to hear from you and your comment may even be featured on the episode! (it can remain totally anonymous). You can drop us a voice note or message via WhatsApp on 07458303326. Alternatively, you can email [email protected] 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

We are back with part two of our Sex and MS podcast. At the MS Trust we have produced content about Sex and MS for many years, and if there is one thing that we have learnt, it is that sex is a tricky subject to talk about. That’s why, we’ve once again invited subject experts, Denise Middleton and Lesley Catterall to answer some of the of your questions around sex and MS for men.

We also chat with Dom from the MS guide, about his own experiences on the subject of sex and MS.

Episode notes:

- The MS Guide- Dom's YouTube channel www.youtube.com/channel/UCIpq0cm2wIfKJ6H8xs2AxGA
- Sexual problems for men with MS A-Z of MS - Information from the MS Trust:  -mstrust.org.uk/a-z/sexual-problems-men-ms
- Relationships and family life - Information from the MS Trust: mstrust.org.uk/life-ms/relationships-and-family-life
- Ask the expert: Sex and MS - Information from the MS Trust: mstrust.org.uk/news/views-and-comments/ask-expert-sex-and-ms
-Reduced sexual desire - Information from the MS Trust: mstrust.org.uk/a-z/reduced-sexual-desire
- MS Trust booklet; Sex & MS: a guide for men: shop.mstrust.org.uk/publications/sex-ms-a-guide-for-men/
- Relationships and MS - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/relationships-and-ms
- Sex and Ms part one (women) - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/sex-and-ms-part-1-women

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

At the MS Trust, we know that talking about sex and sexual health isn’t easy. Many people find it an awkward or embarrassing topic to discuss, whether that’s with partners or health professionals. That’s why, we’ve invited subject experts, MS nurses,  Denise Middleton and Lesley Catterall to answer some of the questions you may want to know the answer to but didn’t want to ask.

Before that we hear from Roxy, aka Multiple Sclerosis Fashionista about their experiences of sex as someone living with MS and hear some tips she has for others.

Episode notes:
- Sexual problems for women with MS A-Z of MS - Information from the MS Trust: mstrust.org.uk/a-z/sexual-problems-women-ms
- Relationships and family life - Information from the MS Trust: mstrust.org.uk/life-ms/relationships-and-family-life
- Ask the expert: Sex and MS - Information from the MS Trust: mstrust.org.uk/news/views-and-comments/ask-expert-sex-and-ms
-Reduced sexual desire - Information from the MS Trust: mstrust.org.uk/a-z/reduced-sexual-desire
- MS Trust booklet; Sex & MS: a guide for women: shop.mstrust.org.uk/publications/sex-ms-a-guide-for-women/
- Relationships and MS - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/relationships-and-ms

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

Disease modifying drugs (DMDs) are a group of treatments for people with multiple sclerosis. Most DMDs are for people with relapsing remitting MS (RRMS), but there are some that are licenced for use by people with progressive MS. For people with RRMS, disease modifying drugs reduce the number of relapses you might experience as well as reducing the severity of any relapses you do have.

There are a wide range of drugs approved for use by the NHS in the UK. Each drug offers a different combination of benefits and possible risks.

In this podcast we are going to be chatting to neurologist Kate who is going to explain the ins and outs of DMDs and how you can go about choosing one. Then we will be talking to Sam, who shares her personal journey of choosing DMDs.

Episode notes:
- Disease modifying drugs - MS Trust A-Z: mstrust.org.uk/about-ms/ms-treatments/disease-modifying-drugs-dmds
- Frequently asked questions about DMD - Information from the MS Trust: mstrust.org.uk/about-ms/ms-treatments/ms-decisions/frequently-asked-questions-faqs
-MS Decisions  DMD Tool - Information from the MS Trust: mstrust.org.uk/about-ms/ms-treatments/ms-decisions-aid
- Disease modifying drugs- MS Trust booklet : shop.mstrust.org.uk/publications/disease-modifying-drugs



Next episode
Our next two podcasts will be on the topic of sex and MS. One for men and one for women, or people who identify as either. Now we know that this is a topic that not everyone will feel comfortable talking about, but we want that to change as it's a very important subject. If you have any questions or stories you would like to share, we’d love to hear from you. Your comment may even be featured on the episode! You can drop us a voice note or message via WhatsApp on 07458303326. Alternatively, you can email [email protected]. It can be totally anonymous, if you wish.

WhatsApp messages aren’t monitored by our MS Enquiry Service and Helpline team so if you’ve got a question about life with MS that needs answering, please contact them directly on 0800 032 38 39 or email [email protected].

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39

Our relationships with the people around us, whether family, friends, partners or work colleagues, are important for our emotional health and practical support. But sometimes MS can feel like a barrier to those relationships, making it harder to maintain the ones that matter to us or develop new ones in the future. So today we are going to dive into some of those issues. We will be joined by Billy from shift. MS who lives with MS himself and Flora from or MS Trust helpline.

  Episode notes:
- Relationships and family life - Information from the MS Trust: mstrust.org.uk/life-ms/relationships-and-family-life
- Talking with fiends and family about MS - Information from the MS Trust: mstrust.org.uk/life-ms/family-and-relationships/talking-friends-and-family
-Information for carers - Information from the MS Trust:mstrust.org.uk/life-ms/family-and-relationships/information-carers
- MS Trust booklet; Someone I know has MS: shop.mstrust.org.uk/publications/someone-i-know-has-ms/
- MS Trust booklet; Kid's guide to MS: shop.mstrust.org.uk/publications/kids-guide-to-ms/
- Caring for someone with MS - Podcast from the MS Trust: mstrust.org.uk/resources/podcasts-ms-trust/caring-someone-ms
-MS Trust Facebook Group: facebook.com/groups/multiplesclerosistrust
-Shift.ms -a social network and community for people with MS: shift.ms
-Shift.ms Buddy system: shift.ms/the-buddy-network
-Relationships and MS - webinar from MS Society Ireland:  youtube.com/watch?v=zcp92YezvZM

Next episode
Our next podcast will be on disease modifying Drugs and MS, where we are hoping to dive into the world of MS treatments and answer some questions on the subject that you may have. If you have anything to say about DMT’s or that you want to ask about we would love to hear from you and your comment may even be featured on the episode! (it can remain totally anonymous)  You can drop us a voice note or message via WhatsApp on 07458303326. Alternatively, you can email [email protected]. It can be totally anonymous.

WhatsApp messages aren’t monitored by our MS Helpline team so if you’ve got a question about life with MS that needs answering, please contact them directly on 0800 032 38 39 or email [email protected].