Episodes - The Bloodline with Blood Cancer United Podcast

Episodes - The Bloodline with Blood Cancer United Podcast

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Episodes - The Bloodline with Blood Cancer United Podcast episodes

  • Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML)

    Nourishing your body after a cancer diagnosis can seem like an impossible task when your mind is focused on survival. Join us as we talk to chronic myeloid leukemia (CML) patient, Jonathan Daige, and Registered Dietitian, Jennifer Redlich, about healthy eating and the benefits of a balanced diet.

    In this episode, Jonathan, a three-time cancer survivor, shares his journey of nutrition and exercise through his cancer treatments. Jennifer gives tips on putting together balanced meals that provide patients with the nutrients they need to nourish their bodies during cancer treatments. All cancer patients and caregivers can benefit from this episode, as we learn that no step is too small to maintain good nutrition.

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    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • LLS PearlPoint Nutrition Services®
    • Chronic Myeloid Leukemia
    • Thin Blue Ride (ThinBlueRide.org)
    • Stem Cell Transplant
    • America’s Most Beautiful Bike Ride – LLS Team In Training
    • Shred for Red
    • Additional LLS Support Resources: 

      • Information Specialists 
      • Free telephone/web patient programs 
      • Free booklets 
      • Financial support
      • Young Adult Resources
      • Survivorship Workbook
      • Caregiver support 
      • Clinical Trial Support Center
      • Online chats 
      • LLS Community 
      • Support groups 
      • Patti Robinson Kaufmann First Connection Program 
      • Free Nutrition Consultations
      • Support for this episode provided by: Novartis Pharmaceuticals Corporation.

        The post Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with LLS.

        40 min
      • Quality-of-Life: Managing Cancer-Related Fatigue

        Cancer-related fatigue can be a tremendous burden on patients and caregivers. In this episode, we speak to Dr. Mariam Nawas and oncology nurse, Mary Lappe, of University of Chicago Medicine, about how cancer-related fatigue is identified and managed.

        Patients and caregivers will be empowered to work with their treatment teams, addressing cancer-related fatigue to improve quality of life during cancer treatments and survivorship.

        DOWNLOAD TRANSCRIPT
        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Cancer-related fatigue
        • Cancer-related fatigue fact sheet
        • Transplant Support and Graft-vs-Host Disease (GVHD) podcast episode
        • Stem Cell Transplant
        • Caregiver support 
        • Additional LLS Support Resources: 

          • Information Specialists 
          • Free telephone/web patient programs 
          • Free booklets 
          • Financial support
          • Young Adult Resources
          • Survivorship Workbook
          • Clinical Trial Support Center
          • Online chats 
          • LLS Community 
          • Support groups 
          • Patti Robinson Kaufmann First Connection Program 
          • Free Nutrition Consultations
          • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

            The post Quality-of-Life: Managing Cancer-Related Fatigue first appeared on The Bloodline with LLS.

            32 min
          • Non-Hodgkin Lymphoma:  Cancer & Pregnancy

            Join us as we highlight how pivots in therapy and self-advocacy were used to treat a young woman’s diagnosis of non-Hodgkin lymphoma.

            In this episode, Caitlyn Householder, diagnosed with diffuse large B-cell lymphoma in 2019, shares her incredible journey after finding out that she was pregnant the day she was admitted to the hospital to treat her lymphoma. An ever-evolving plan was then set into motion to not only save Caitlyn’s life but allow for her pregnancy to continue.  

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Non-Hodgkin lymphoma
            • Diffuse large B cell lymphoma
            • Shared decision making podcast
            • Fertility information
            • Fertility and cancer fact sheet
            • Additional LLS Support Resources: 

              • Information Specialists 
              • Free telephone/web patient programs 
              • Free booklets 
              • Financial support
              • Patti Robinson Kaufmann First Connection Program 
              • LLS Community 
              • Young Adult Resources
              • Survivorship Workbook
              • Online chats 
              • Clinical Trial Support Center
              • Caregiver support 
              • Support groups 
              • Free Nutrition Consultations
              • Support for this episode provided by: Bristol Myers Squibb, Eli Lilly and Company, Genentech, Inc. & Biogen, and Merck & Company.

                The post Non-Hodgkin Lymphoma:  Cancer & Pregnancy first appeared on The Bloodline with LLS.

                34 min
              • Tumor Lysis Syndrome: What Patients Need to Know
                Tina Bhatnagar, DO

                Most blood cancer patients can experience side effects from their cancer diagnosis, or its treatments. In certain blood cancers, an urgent condition called tumor lysis syndrome (TLS) can develop. Dr. Tina Bhatnagar of the West Virginia University Cancer Institute joins us in this episode to explain why tumor lysis syndrome occurs and how it is treated. Although considered a medical emergency, Dr. Bhatnagar reviews how prevention and treatment can be successful in the treatment of TLS.

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Tumor Lysis Syndrome
                • Acute Lymphoblastic Leukemia
                • B cell lymphomas
                • Additional LLS Support Resources: 

                  • Information Specialists 
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Financial support
                  • Patti Robinson Kaufmann First Connection Program 
                  • LLS Community 
                  • Young Adult Resources
                  • Survivorship Workbook
                  • Online chats 
                  • Clinical Trial Support Center
                  • Caregiver support 
                  • Support groups 
                  • Free Nutrition Consultations
                  • Support for this program is provided by: Sanofi US.

                    The post Tumor Lysis Syndrome: What Patients Need to Know first appeared on The Bloodline with LLS.

                    22 min
                  • Healing Through Writing: An Odyssey Through Acute Myeloid Leukemia (AML)
                    Steve Buechler

                    As a cancer patient or caregiver, telling your story can not only be a way to update loved ones about your condition or be a comfort to current patients, it can be healing for yourself. In this episode, we speak to Steve Buechler about his treatment for acute myeloid leukemia as well as his experience through survivorship.

                    Steve shares how writing helped him heal from the emotional effects of cancer. As an LLS volunteer, he now facilitates writing workshops for our LLS Community and wrote an article about how language matters when speaking to patients.

                    Join us to hear about Steve’s “odyssey” through AML, which he describes as not something he chose, but something that taught him more about life and himself.

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Acute Myeloid Leukemia
                    • Stem Cell Transplant
                    • Cord Blood Transplant Resources
                    • Graft-Vs-Host Disease (GVHD)
                    • How Steve Became Ralph
                    • Language Matters: What Supporters Say is Not Always What People with Cancer Hear
                    • Patti Robinson Kaufmann First Connection Program 
                    • LLS Community – be informed of upcoming writing workshops
                    • Additional LLS Support Resources: 

                      • Information Specialists 
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Financial support
                      • Young Adult Resources
                      • Survivorship Workbook
                      • Online chats 
                      • Clinical Trial Support Center
                      • Caregiver support 
                      • Support groups 
                      • Free Nutrition Consultations
                      • Support for this program is provided by: Bristol Myers Squibb.

                        The post Healing Through Writing: An Odyssey Through Acute Myeloid Leukemia (AML) first appeared on The Bloodline with LLS.

                        41 min
                      • Attacking the Cancer Cell: Advances in CAR T-Cell Therapy
                        Carlos Silva, MD and Elissa

                        Please join us as we speak about CAR T-cell therapy with Dr. Carlos Silva, a Moffitt Cancer physician at Memorial Healthcare System in Pembroke Pines, Florida. In this episode, we explore the latest advances and what the future holds for CAR T-cell therapy.   

                        This comprehensive view of CAR T-cell therapy will give blood cancer patients and their families hope. Through the utilization of targeted therapies, we can now see a future filled with better outcomes and potential cures.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • CAR T-cell Therapy
                        • Cytokine release syndrome
                        • Stem Cell Transplant
                        • Graft-Vs-Host Disease (GVHD)
                        • Clinical Trial Support Center
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Financial support
                          • Young Adult Resources
                          • Survivorship Workbook
                          • Online chats 
                          • Caregiver support 
                          • LLS Community 
                          • Support groups 
                          • Patti Robinson Kaufmann First Connection Program 
                          • Free Nutrition Consultations
                          • Support for this program is provided by: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics Ltd; Janssen Oncology & Legend Biotech; Kite, A Gilead Company and Novartis Pharmaceuticals Corp.

                            The post Attacking the Cancer Cell: Advances in CAR T-Cell Therapy first appeared on The Bloodline with LLS.

                            23 min
                          • Chipping Away at the Iceberg: Addressing Healthcare Disparities and Equity

                            Join us live from Miami, FL, as we talk about healthcare disparities and equity with Dr. Erin Kobetz of Sylvester Comprehensive Cancer Center and Seth Berkowitz, Director of Patient and Community Outreach at LLS.

                            In this episode, we discuss how organizations like Sylvester and LLS work together to address healthcare gaps and barriers that patients may face in accessing quality and affordable cancer care.

                            The diverse population in South Florida has provided opportunities for researchers, cancer advocates and community health workers to implement new, innovative programs with the goal of giving every person the same access to care.

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Sylvester Community Advisory Committee
                            • National Cancer Institute
                            • LLS Blood Cancer Conferences
                            • The Paradox of Prevention – Geoffrey Rose
                            • Game-changer vehicles
                            • Medical Care for Undocumented People (En Español)

                            Additional LLS Support Resources: 

                            • Information Specialists 
                            • Caregiver support 
                            • Free telephone/web patient programs 
                            • Free booklets 
                            • Financial support
                            • Young Adult Resources
                            • Survivorship Workbook
                            • Clinical Trial Support Center
                            • Online chats 
                            • LLS Community 
                            • Support groups 
                            • Patti Robinson Kaufmann First Connection Program 
                            • Free Nutrition Consultations

                            Support for this program is provided by: Bristol Myers Squibb; Eli Lilly and Company; GSK and Pharmacyclics, An AbbVie Company & Janssen Biotech.

                            The post Chipping Away at the Iceberg: Addressing Healthcare Disparities and Equity first appeared on The Bloodline with LLS.

                            35 min
                          • Perspectives on Quality of Life: Chronic Myeloid Leukemia (CML)

                            Join us as we hear two different perspectives from people living with chronic myeloid leukemia (CML); Tim Sohn, a 16-year survivor and Becky Dame, a 32-year survivor. In this episode, we hear how CML treatment has changed since 1991, when Becky was diagnosed. Becky had a difficult journey through cycles of relapse, transplant, and remission, while Tim shares his experience using newer therapies. Both share their stories and how CML has impacted their lives.

                            Both Tim and Becky have worked to build and maintain a good quality of life and have used their experiences to help others in the cancer community and find connection.

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Chronic Myeloid Leukemia (CML)
                            • Tyrosine Kinase Inhibitors (TKIs)
                            • Leukapheresis
                            • Stem Cell Transplant
                            • Donor Lymphocyte Infusion (DLI)
                            • Graft-Vs-Host-Disease (GVHD)
                            • Showing Up: Perspectives On Cancer Show
                            • Perspectives On Cancer Book
                            • PodcastNotPodcast: Tim Sohn. Leukemia and Livestreaming.
                            • Information Specialists 
                            • Caregiver support 

                            Additional LLS Support Resources: 

                            • Free telephone/web patient programs 
                            • Free booklets 
                            • Financial support
                            • Young Adult Resources
                            • Survivorship Workbook
                            • Clinical Trial Support Center
                            • Online chats 
                            • LLS Community 
                            • Support groups 
                            • Patti Robinson Kaufmann First Connection Program 
                            • Free Nutrition Consultations

                            Support for this episode provided by: Novartis Pharmaceuticals Corporation.

                            The post Perspectives on Quality of Life: Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with LLS.

                            32 min
                          • Hopeful Advancements for Chronic Myeloid Leukemia (CML)

                            Join us as we speak to Dr. Richard Larson and Dr. Anand Patel from University of Chicago Medicine about chronic myeloid leukemia (CML). In this episode, they discuss the latest advances in treatment for CML and what is on the horizon.

                            With decades of progress with targeted treatments, CML patients are now given more hope of achieving deep remission and potentially discontinuing medication. A cure for an incurable disease may now be in sight.

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Chronic Myeloid Leukemia (CML)
                            • Tyrosine Kinase Inhibitors (TKIs)
                            • FISH test
                            • Stem Cell Transplant
                            • Cellular Therapies
                            • Instilling Hope Through Progress: Myelodysplastic Syndromes (MDS)

                            Additional LLS Support Resources: 

                            • Information Specialists 
                            • Free telephone/web patient programs 
                            • Free booklets 
                            • Financial support
                            • Young Adult Resources
                            • Survivorship Workbook
                            • Clinical Trial Support Center
                            • Online chats 
                            • Caregiver support 
                            • LLS Community 
                            • Support groups 
                            • Patti Robinson Kaufmann First Connection Program 
                            • Free Nutrition Consultations

                            Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

                            The post Hopeful Advancements for Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with LLS.

                            38 min
                          • En Español: Navegando Ensayos Clínicos

                            Unase a nuestro anfitrión, Javier Macias, y nuestra invitada Susan Moscoso, BSN, RN, BMT-CN, una de las enfermeras orientadoras del Centro de Apoyo para Ensayos Clínicos de La Sociedad de Lucha contra la Leucemia y el Linfoma. Explican importancia de los ensayos clínicos, los beneficios de participar en ensayos clínicos y cómo los enfermeros orientadores ayudan a los pacientes encontrar ensayos clínicos apropiados mientras los apoyan durante el proceso.

                            DESCARGAR TRANSCRIPCIÓN

                            Mencionado en este episodio: 

                            • Apoyo Economico
                            • Cafecito con LLS: Hablamos de los Ensayos Clinicos
                            • Centro de Apoyo para Ensayos Clinicos  (siglas CTSC)
                            • Comunicandose con su medico y hablando sobre ensayos clinicos
                            • Especialistas en Información  (siglas IRC)

                            Recursos additionales de apoyo de LLS:

                            • LLS.org/Espanol
                            • Alimentos y nutrición
                            • Aplicación de Salud de LLS
                            • Apoyo Entre Pares
                            • Atención Médica Para Personas Indocumentadas
                            • Manuales del sobreviviente     
                            • Publicaciones informativas gratuitas                      
                            • Webcast, Videos Y Episodios de Pódcast

                            The post En Español: Navegando Ensayos Clínicos first appeared on The Bloodline with LLS.

                            21 min

                          About Episodes - The Bloodline with Blood Cancer United Podcast

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                          A podcast for patients and caregivers