Episodes - The Bloodline with Blood Cancer United Podcast

Episodes - The Bloodline with Blood Cancer United Podcast

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Episodes - The Bloodline with Blood Cancer United Podcast episodes

  • LIVE! At CancerCon: The Roadmap of Survivorship
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    Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with patients and survivors about where they are along the road of survivorship.

    In the exhibit hall, we displayed a roadmap of survivorship, which had many detours and pit stops along the way towards long-term survivorship. The responses from young adult patients and survivors varied and each person had different milestones or points along the road that that they found significant.

    We encourage our listeners to view the roadmap on the episode page. To our patients and survivors, where do YOU fit along the road? Be sure to share in the comments or discuss in the PodClub in our Subscriber Lounge.

    Be sure to stay tuned for the next episode from CancerCon, where we will be hearing from experts who presented on various ways to cope with a cancer diagnosis and treatment.

    DOWNLOAD TRANSCRIPT
    CLICK HERE to participate in our episode survey.

    Mentioned on this episode: 

    • Young Adult Resources
    • Survivorship Definition – National Cancer Institute
    • Survivorship Workbook
    • YAConnect: Young Adults Living with Blood Cancer Online Chat
    • LLS Dare to Dream
    • Stem Cell Transplant
    • Stupid Cancer®
    • Additional LLS Support Resources: 

      • Information Specialists
      • Financial support
      • Free telephone/web patient programs 
      • Patti Robinson Kaufmann First Connection® Program
      • Free booklets 
      • LLS Public Policy & Advocacy
      • Online chats 
      • Caregiver support 
      • Support groups 
      • Free Nutrition Consultations 
      • LLS Advocacy
      • Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

        The post LIVE! At CancerCon: The Roadmap of Survivorship first appeared on The Bloodline with LLS.

        43 min
      • Patient-Doctor Perspectives: Adult Acute Lymphoblastic Leukemia (ALL)

        Tune in to the latest episode of the Patient-Doctor Perspectives series, featuring an enlightening conversation with Dr. Judith Shizuru of Stanford Medicine and acute lymphoblastic leukemia (ALL) survivor, Peter Feinberg. Delve into the world of cutting-edge ALL treatments and gain insight from a patient who shares his personal story of treatments, bone marrow transplantation and re-vaccination challenges.

        DOWNLOAD TRANSCRIPT
        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Acute lymphoblastic leukemia
        • Stem Cell Transplantation
        • HLA Matching
        • Bone Marrow Donor Registry
        • CAR T-cell Therapy
        • Graft-vs-host Disease (GVHD)
        • CHIP Screening
        • Minimal/Measurable Residual Disease (MRD)
        • Additional LLS Support Resources: 

          • Information Specialists 
          • Clinical Trial Support Center
          • Free telephone/web patient programs 
          • Free booklets 
          • Financial support
          • Caregiver support 
          • Young Adult Resources
          • Survivorship Workbook
          • Online chats 
          • LLS Community 
          • Support groups 
          • Patti Robinson Kaufmann First Connection Program 
          • Free Nutrition Consultations
          • Support for this episode provided by: Amgen Inc.

            The post Patient-Doctor Perspectives: Adult Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with LLS.

            52 min
          • Empowering Lives: Advancements in Chronic Lymphocytic Leukemia
            Deborah Stephens, DO

            Join us as we sit down with Dr. Deborah Stephens from the University of Utah, as we discover the latest breakthroughs in treating chronic lymphocytic leukemia (CLL).  We also gain valuable insights into enhancing patient’s quality of life.

            In this episode, Dr. Stephens emphasizes the importance of effective communication with your healthcare team, unveiling strategies that not only optimize disease management, but also minimize the impact of side effects. Your path to empowered long-term care with CLL begins here.

            DOWNLOAD TRANSCRIPT
            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • Chronic lymphocytic leukemia (CLL)
            • Quality-of-Life: Managing Cancer-Related Fatigue podcast episode
            • S1925 High-risk CLL study
            • Stem Cell Transplantion
            • CAR T-cell Therapy
            • Graft-vs-host Disease (GVHD)
            • Clinical Trial Support Center
            • Additional LLS Support Resources: 

              • Information Specialists 
              • Free telephone/web patient programs 
              • Free booklets 
              • Financial support
              • Caregiver support 
              • Young Adult Resources
              • Survivorship Workbook
              • Online chats 
              • LLS Community 
              • Support groups 
              • Patti Robinson Kaufmann First Connection Program 
              • Free Nutrition Consultations
              • Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

                The post Empowering Lives: Advancements in Chronic Lymphocytic Leukemia first appeared on The Bloodline with LLS.

                39 min
              • Accelerating Hope for Aggressive Non-Hodgkin Lymphoma
                Kieron Dunleavy, MD

                Delve into the complex landscape of non-Hodgkin lymphoma research, where a cure is pursued amidst a backdrop of over 100 subtypes of this disease.

                In this episode, Dr. Kieron Dunleavy, of MedStar Georgetown University Hospital, breaks down the differences in treatments, prognosis and goals for both slow-growing and aggressive subtypes of non-Hodgkin lymphoma. Discover the remarkable momentum of scientific progress that increased the understanding and management of lymphoma, igniting a renewed sense of hope for patients and their loved ones.

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Non-Hodgkin lymphoma
                • Chronic lymphocytic leukemia
                • POLARIX study
                • Stem Cell Transplantion
                • CAR T-cell Therapy
                • ZUMA-7 Study
                • TRANSFORM Study
                • Graft-vs-host Disease (GVHD)
                • Minimal/Measurable Residual Disease (MRD)
                • Clinical Trial Support Center
                • Additional LLS Support Resources: 

                  • Information Specialists 
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Financial support
                  • Caregiver support 
                  • Young Adult Resources
                  • Survivorship Workbook
                  • Online chats 
                  • LLS Community 
                  • Support groups 
                  • Patti Robinson Kaufmann First Connection Program 
                  • Free Nutrition Consultations
                  • Support for this episode provided by: Eli Lilly and Company and Genentech, Inc. & Biogen.

                    The post Accelerating Hope for Aggressive Non-Hodgkin Lymphoma first appeared on The Bloodline with LLS.

                    39 min
                  • Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML)
                    Mrinal Patnaik, MBBS

                    While chronic myelomonocytic leukemia (CMML) is a rare disease, it is not rare to the patients and loved ones who are affected by it.

                    In this episode, Dr. Mrinal Patnaik of the Mayo Clinic in Rochester, MN, discusses the unique aspects of CMML and how it is classified and treated.  Dr. Patnaik shares the latest treatment advances and discusses the importance of patients’ quality of life.

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Chronic myelomonocytic leukemia (CMML)
                    • Myeloproliferative Neoplasms (MPNs)
                    • Myelodysplastic syndromes (MDS)
                    • Acute myeloid leukemia (AML)
                    • Stem Cell Transplantion
                    • Graft-vs-host Disease (GVHD)
                    • Minimal/Measurable Residual Disease (MRD)
                    • Clinical Trial Support Center
                    • Spanish Risk Stratification System
                    • French Risk Stratification System
                    • RAS mutations (study) – Nature Communications
                    •  TET2 mutations (study) – Leukemia
                    • Decitabine Versus Hydroxyurea (study)– Journal of Clinical Oncology
                    • Additional LLS Support Resources: 

                      • Information Specialists 
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Financial support
                      • Caregiver support 
                      • Young Adult Resources
                      • Survivorship Workbook
                      • Online chats 
                      • LLS Community 
                      • Support groups 
                      • Patti Robinson Kaufmann First Connection Program 
                      • Free Nutrition Consultations
                      • Support for this episode provided by: Taiho Oncology, Inc.

                        The post Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML) first appeared on The Bloodline with LLS.

                        32 min
                      • The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care

                        When adolescents and young adults (AYA) are diagnosed with cancer, they face unique challenges that aren’t seen as frequently in other age groups.  Healthcare and nonprofit professionals around the world are listening to patients and researching these issues to improve quality of life during and after treatment.

                        In this episode, we are taking you onsite to the 5th Annual Global Adolescent and Young Adult Cancer Congress in Long Beach, CA. Elissa met with experts who discussed mental health, the resiliency of AYA patients when facing uncertainty, healthcare transitions and disparities, and how patients can advocate for their care. 

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Young Adult Resources
                        • Promoting Resilience in Stress Management
                        • Stupid Cancer
                        • CancerCon
                        • First Descents
                        • True North Treks
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • LLS Financial support (Copay assistance)
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Caregiver support 
                          • Survivorship Workbook
                          • Clinical Trial Support Center
                          • LLS Public Policy and Advocacy
                          • Online chats 
                          • LLS Community 
                          • Support groups 
                          • Patti Robinson Kaufmann First Connection Program 
                          • Free Nutrition Consultations
                          • The post The Bloodline Live: Emphasizing the Patient Voice in Young Adult Cancer Care first appeared on The Bloodline with LLS.

                            46 min
                          • Be Informed: Beneficial Medicare Changes
                            Brian Connell

                            Cancer related costs can be an overwhelming burden for patients on Medicare. However, new changes in Medicare will directly impact cancer patients and ease this financial burden.

                            In this episode, Brian Connell, the Vice President of Federal Affairs at LLS, discusses the new changes in Medicare for 2024 and 2025, as a result of the recent Inflation Reduction Act. Medicare recipients will benefit from these important changes, making cancer treatment more affordable and accessible.

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • LLS Blog Post with Changes and Infographics (English and Spanish)
                            • LLS Financial support (Copay assistance)
                            • LLS Public Policy and Advocacy
                            • Information Specialists 
                            • Inflation Reduction Act and Medicare
                            • Low Income Subsidy Program
                            • Additional LLS Support Resources: 

                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Caregiver support 
                              • Young Adult Resources
                              • Survivorship Workbook
                              • Clinical Trial Support Center
                              • Online chats 
                              • LLS Community 
                              • Support groups 
                              • Patti Robinson Kaufmann First Connection Program 
                              • Free Nutrition Consultations
                              • The post Be Informed: Beneficial Medicare Changes first appeared on The Bloodline with LLS.

                                23 min
                              • Community Outreach in The Field: Red, Bred & Led Houston
                                Mia Johnson

                                Please join us for the latest episode of our Community Outreach In The Field series, where our field correspondents, comprised of LLS Staff, will be on the ground interviewing health advocates, patients, caregivers and healthcare professionals in the communities in which they serve. These episodes will make listeners feel like they are right in the middle of the action!

                                In this episode, Mia Johnson, the National Community Outreach Manager for LLS’s Myeloma Link program, hosted an event curated for Black women called “Red, Bred & Led” in Houston, TX. This weekend-long event consisted of a Sip and Paint Party, a Luxe brunch, and Sunday worship, all with an educational overview of multiple myeloma. This event heightened awareness of how myeloma disproportionately affects Black communities.  A heavy focus was given on female caregivers, and how they can spread awareness and share resources available to them within their families and communities if a loved one is diagnosed with a blood cancer. 

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • Myeloma Link
                                • Multiple Myeloma
                                • Community Outreach In The Field: Blood and Chess Atlanta
                                • Additional LLS Support Resources: 

                                  • Information Specialists 
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Financial support
                                  • Caregiver support 
                                  • Young Adult Resources
                                  • Survivorship Workbook
                                  • Clinical Trial Support Center
                                  • Online chats 
                                  • LLS Community 
                                  • Support groups 
                                  • Patti Robinson Kaufmann First Connection Program 
                                  • Free Nutrition Consultations
                                  • Support for this episode provided by: Bristol Myers Squibb; Eli Lilly and Company; GSK and Pharmacyclics, An AbbVie Company & Janssen Biotech.

                                    The post Community Outreach in The Field: Red, Bred & Led Houston first appeared on The Bloodline with LLS.

                                    28 min
                                  • Living A Full Life: Exploring Myeloproliferative Neoplasms (MPNs)
                                    Angela Fleischman, MD

                                    Myeloproliferative Neoplasms (MPNS) is an umbrella term that includes myelofibrosis (MF), essential thrombocythemia (ET) and polycythemia vera (PV). In this episode, Dr. Angela Fleischman of the Chao Comprehensive Cancer Center in Orange, CA, delves into these disorders in more detail. She shares how a patient’s quality of life can be improved with the latest advancements in treatment.  

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Myeloproliferative Neoplasms (MPNs)
                                    • Acute myeloid leukemia (AML)
                                    • Stem Cell Transplantion
                                    • Graft-vs-host Disease (GVHD)
                                    • 23andMe®
                                    • Additional LLS Support Resources: 

                                      • Information Specialists 
                                      • Free telephone/web patient programs 
                                      • Free booklets 
                                      • Financial support
                                      • Caregiver support 
                                      • Young Adult Resources
                                      • Survivorship Workbook
                                      • Clinical Trial Support Center
                                      • Online chats 
                                      • LLS Community 
                                      • Support groups 
                                      • Patti Robinson Kaufmann First Connection Program 
                                      • Free Nutrition Consultations
                                      • Support for this episode provided by: Bristol Myers Squibb.

                                        The post Living A Full Life: Exploring Myeloproliferative Neoplasms (MPNs) first appeared on The Bloodline with LLS.

                                        31 min
                                      • Atacando las Células Cancerosa:  Avances en La Terapia de Células T con Receptores de Antígenos Quiméricos (CAR-T)
                                        Carlos Silva, MD and Margie

                                        Únase a nosotros mientras hablamos sobre la terapia de células T con receptores de antígenos quiméricos (CAR-T, en inglés) con el Dr. Carlos Silva, hematólogo/oncólogo, especialista en trasplante de médula ósea y terapia celular del equipo de Hematología Maligna y Terapia Célular de Moffitt en el Sistema de Salud Memorial en Pembroke Pines, Florida.  En este episodio, exploramos los últimos avances y lo que se espera en el futuro para esta terapia transformadora.

                                        Veamos como este tratamiento innovador dará esperanza a los pacientes con cáncer de la sangre y a sus familiares. Aprenderemos como a través de la utilización de terapias dirigidas, podemos ahora ver un futuro lleno de mejores resultados y posibles curas.

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                                        Mencionado en este episodio: 

                                        • Terapia  de células T con receptores de antígenos quiméricos (CAR-T)
                                        • Proceso para la terapia de células T con receptores de antígenos quiméricos (CAR T-cell therapy, en inglés)
                                        • Síndrome de liberación de citoquinas
                                        • Trasplante de cédulas madre
                                        • Centro de apoyo de ensayos clínicos
                                        • Recursos de asistencia adicionales de LLS: 

                                          • Sitio web en español de LLS
                                          • Alimentos y nutrición
                                          • Apoyo Económico
                                          • Aplicación móviles gratuitas
                                          • Especialistas en información (siglas IRC)
                                          • Manuales del cuidador
                                          • Manuales del sobreviviente
                                          • Programas de asistencia económica al paciente
                                          • Publicaciones informativas gratuitas
                                          • Webcast, Videos y Episodios de Pódcast
                                          • Este episodio es apoyado por: Allogene Therapeutics; Bristol Myers Squibb; CRISPR Therapeutics Ltd; Janssen Oncology & Legend Biotech; Kite, A Gilead Company and Novartis Pharmaceuticals Corp.

                                            The post Atacando las Células Cancerosa:  Avances en La Terapia de Células T con Receptores de Antígenos Quiméricos (CAR-T) first appeared on The Bloodline with LLS.

                                            28 min

                                          About Episodes - The Bloodline with Blood Cancer United Podcast

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                                          A podcast for patients and caregivers