Episodes - The Bloodline with Blood Cancer United Podcast

Episodes - The Bloodline with Blood Cancer United Podcast

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Episodes - The Bloodline with Blood Cancer United Podcast episodes

  • Cellular Revolution: CAR T-cell Therapy
    Marco Davila, MD

    Explore the cutting-edge of oncology as we delve into the revolutionary world of CAR T-cell therapy, a more recent medical advancement in the fight against blood cancer.  

    Join our conversation with Dr. Marco Davila of Roswell Park Comprehensive Cancer Center in Buffalo, NY, as he highlights the significant impact CAR T-cell therapy has made on treating various blood cancers. Dr. Davila discusses the current uses of this therapy and gives us a look at the ongoing clinical trials that are broadening the horizons of this innovative treatment. 

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    Mentioned on this episode: 

    • CAR T-cell Therapy
    • CAR T-cell educational video
    • Stem Cell Transplantation
    • Graft-vs-host disease
    • Side effect management
    • National Cancer Institute
    • Additional LLS Support Resources: 

      • Information Specialists 
      • Free Nutrition Consultations
      • Financial support
      • Free telephone/web patient programs 
      • Free booklets 
      • Young Adult Resources
      • Online chats 
      • LLS Community 
      • Clinical Trial Support Center
      • Support groups 
      • Caregiver support 
      • Caregiver Workbook
      • Patti Robinson Kaufmann First Connection Program®
      • Advocacy and Public Policy
      • Survivorship Workbook
      • Support for this episode provided by Bristol Myers Squibb; Johnson & Johnson & Legend Biotech; Kite, a Gilead Company; and Novartis Pharmaceuticals Corp.

        The post Cellular Revolution: CAR T-cell Therapy first appeared on The Bloodline with Blood Cancer United Podcast.

        32 min
      • Patient-Doctor Perspectives: Resilience in Relapsed/Refractory Hodgkin Lymphoma

        In this episode, we speak with Dr. Matthew Matasar of Rutgers Cancer Institute, and Elizabeth Stone, who was diagnosed with Hodgkin lymphoma in 2012. 

        Dr. Matasar discusses the current and emerging treatments for Hodgkin lymphoma. Elizabeth shares her story of resilience as a refractory patient throughout multiple treatments, and how she has navigated a life of hardships, joy, love and friendship while in a highly immunocompromised state.

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        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Hodgkin Lymphoma
        • Stem Cell Transplantation
        • Stem Cell Transplantation Animated Videos
        • CancerCon by Stupid Cancer®
        • LLS COVID Vaccine Study
        • Side effect management
        • Young Adult Resources
        • Online chats 
        • LLS Community 
        • Clinical Trial Support Center
        • Support groups 
        • Additional LLS Support Resources: 

          • Information Specialists 
          • Free Nutrition Consultations
          • Financial support
          • Free telephone/web patient programs 
          • Free booklets 
          • Caregiver support 
          • Caregiver Workbook
          • Patti Robinson Kaufmann First Connection Program®
          • Advocacy and Public Policy
          • Survivorship Workbook
          • Support for this episode provided by Affimed Inc.

            The post Patient-Doctor Perspectives: Resilience in Relapsed/Refractory Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

            40 min
          • La Nutrición y el Cáncer
            Ricardo Lopez, Dietista Oncológico MSHA, RD, CSO, LDN

            Unase a nosotros en nuestra conversación con Ricardo Lopez, Dietista Oncológico. En este episodio él nos explicará la importancia de tener una nutrición adecuada antes, durante y después de un tratamiento, y nos proveerá consejos para aliviar efectos secundarios causado por el cáncer.

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            Mencionado en este episodio:

            • La American Heart Association (AHA)
            • Temas y recursos de LLS:

              • LLS en Español
              • Consultas personalizadad sobre de nutrición  
              • Alimentos y Nutrición
              • Applicación de Salud de LLS
              • Assistencia Alimentaria Recursos Y Consejos
              • Especialistas en Información 
              • Publicaciones informativas gratuitas Webcast, Vídeos, Episodios de Pódcast
              • The post La Nutrición y el Cáncer first appeared on The Bloodline with Blood Cancer United Podcast.

                49 min
              • Family Ties: Navigating Multiple Myeloma Together
                Ashlie D’Andrea
                Emma D’Andrea
                Lynn Steele, LSW, OSW-C

                In this episode, we speak to a myeloma patient and her teenage daughter about the impact that myeloma had on her family. Lynn Steele, a social worker and Information Specialist at LLS, then joins us to share tips and resources on how families can navigate a cancer diagnosis together. 

                DOWNLOAD TRANSCRIPT
                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Multiple myeloma
                • Talking to children and families about cancer
                • Parenting with cancer
                • Caregiver support 
                • Caregiver Workbook
                • Online chats 
                • LLS Community 
                • Patti Robinson Kaufmann First Connection Program®
                • Pickles Group
                • Additional LLS Support Resources: 

                  • Information Specialists 
                  • Free Nutrition Consultations
                  • Financial support
                  • Clinical Trial Support Center
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Young Adult Resources
                  • Advocacy and Public Policy
                  • Survivorship Workbook
                  • Support groups 
                  • Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.

                    The post Family Ties: Navigating Multiple Myeloma Together first appeared on The Bloodline with Blood Cancer United Podcast.

                    35 min
                  • Bridging the Gaps: Striving for Accessible Cancer Care
                    Sharon Castellino, MD, MSc

                    In this episode, Dr. Sharon Castellino, a pediatric oncologist at Children’s Healthcare of Atlanta, examines the impact of healthcare equity and barriers to care for patients and caregivers dealing with blood cancer.

                    Dr. Castellino sheds light on how groundbreaking treatments have transformed the landscape of cancer care, emphasizing the crucial role that LLS, patient advocates and government entities can play in ensuring accessible and quality care for all.

                    DOWNLOAD TRANSCRIPT
                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Clinical Trial Support Center
                    •  Shared decision making interactive program
                    • Advocacy and Public Policy
                    • American Association for Cancer Research (AACR)
                    • Resources for Children and Young Adults
                    • Acute lymphoblastic leukemia
                    • Hodgkin lymphoma
                    • Additional LLS Support Resources: 

                      • Information Specialists 
                      • Free Nutrition Consultations
                      • Financial support
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Young Adult Resources
                      • Caregiver support 
                      • Caregiver Workbook
                      • Survivorship Workbook
                      • Online chats 
                      • LLS Community 
                      • Support groups 
                      • Patti Robinson Kaufmann First Connection Program 
                      • Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

                        The post Bridging the Gaps: Striving for Accessible Cancer Care first appeared on The Bloodline with Blood Cancer United Podcast.

                        39 min
                      • Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL)
                        Teresa Altemeyer

                        Join us on a heartfelt journey woven by support and education, as we speak to Teresa Altemeyer, who was diagnosed with chronic lymphocytic leukemia in 2009. In this episode, Teresa shares her experience with CLL from diagnosis through long-term survivorship. On the advice of her doctor, she went out to live her life, and found herself supporting other blood cancer patients and survivors in doing the same. Despite her own physical and mental health struggles with this disease, she shares beautiful advice learned along the way.

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Chronic lymphocytic leukemia
                        • Mental health resources
                        • Minimal/Measurable Residual Disease
                        • Clinical Trial Support Center
                        • Financial support
                        • Finances podcast
                        • Shared decision making interactive program
                        • Shared decision making for CLL podcast
                        • Light The Night
                        • Advocacy
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • Free Nutrition Consultations
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Young Adult Resources
                          • Caregiver support 
                          • Caregiver Workbook
                          • Survivorship Workbook
                          • Online chats 
                          • LLS Community 
                          • Support groups 
                          • Patti Robinson Kaufmann First Connection Program
                          • Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

                            The post Live Your Life: Navigating Mental Health and Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

                            44 min
                          • Visions of Hope: Continuing to Beat AML
                            Elie Traer, MD
                            Karin Rodland, PhD
                            Lee Greenberger, PhD

                            The fight to effectively treat and cure the complex disease of acute myeloid leukemia (AML) continues.

                            In this episode, we speak to Dr. Elie Traer, Dr. Karin Rodland and Dr. Lee Greenberger about an exciting new study for AML. The doctors share about a longtime collaboration between Oregon Health & Science University (OHSU) and Pacific Northwest National Laboratory (PNNL) using patient samples from LLS’s Beat AML Master Clinical Trial to further understand the proteins on the cancer cells, resulting in the development of more targeted treatments for AML patients.  

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Acute Myeloid Leukemia
                            • Beat AML Master Clinical Trial
                            • Beat AML Documentary
                            • Stem Cell Transplant
                            • Mapping The Proteogenomic Landscape Enables Prediction of Drug Response in Acute Myeloid Leukemia
                            • Additional LLS Support Resources: 

                              • Information Specialists 
                              • Free Nutrition Consultations
                              • Financial support
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Clinical Trial Support Center
                              • Young Adult Resources
                              • Caregiver support 
                              • Caregiver Workbook
                              • Survivorship Workbook
                              • Online chats 
                              • LLS Community 
                              • Support groups Patti Robinson Kaufmann First Connection Program
                              • Support for this episode provided by: Abbvie Inc. and Genentech, Inc. & Biogen.

                                The post Visions of Hope: Continuing to Beat AML first appeared on The Bloodline with Blood Cancer United Podcast.

                                38 min
                              • You Aren’t Alone: Navigating The Financial Impact of Cancer
                                Monica Fawzy Bryant, Esq.

                                Dealing with cancer extends beyond physical health, often bringing financial challenges that can overwhelm patients and their loved ones.  

                                In this episode, we offer a beacon of support as we speak to Monica Bryant, Esq., a cancer rights attorney and Co-founder/Chief Operating Officer of Triage Cancer. She reviews the financial hurdles that may arise during treatment and provides practical strategies to help with economic hardships. She also highlights a wealth of resources designed to aid patients, covering everything from financial grants to transportation, Social Security benefits and navigating the complex world of health insurance.  

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • Financial support
                                • Triage Cancer
                                • Continuation of Health Coverage (COBRA)
                                • State Health Insurance Marketplace
                                • Health Insurance Appeals Guide
                                • Family and Medical Leave Act (FMLA)
                                • Social Security Disability (SSDI)
                                • Social Security Return To Work program
                                • Road to Recovery – transportation
                                • Be Informed: Beneficial Medicare Changes – podcast episode
                                • Inflation Reduction Act and Medicare
                                • Additional LLS Support Resources: 

                                  • Information Specialists 
                                  • Free Nutrition Consultations
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Clinical Trial Support Center
                                  • Young Adult Resources
                                  • Caregiver support 
                                  • Caregiver Workbook
                                  • Survivorship Workbook
                                  • Online chats 
                                  • LLS Community 
                                  • Support groups 
                                  • Patti Robinson Kaufmann First Connection Program 
                                  • Support for this episode provided by: Genentech, Inc. & Biogen.

                                    The post You Aren’t Alone: Navigating The Financial Impact of Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

                                    49 min
                                  • Soy cuidador de un paciente con cáncer.  ¿Y ahora qué?
                                    Mayra Gomez Padua, PhD

                                    Ser cuidador, para muchos es una muestra de compasión. Sin embargo, a medida que pasa el tiempo, muchos cuidadores se encuentran abrumados por el estrés, la carga, y la tristesa asociado con ser un cuidador de alguien dianosticado con cáncer. En muchas ocaciones los cuidadores se encuentran dejando su salud al lado.

                                    En este episodio, la Dra. Mayra Gómez Padua, psicóloga clínica bilingüe nos explica la importancia de mantener el equilibrio entre ser cuidador y manteniendo su autocuidado.  Aquí, ella ofrece herramientas y alternativas que ayudarán a los cuidadores navegar de manera efectiva su papel sin tener que sacrificar su bienestar.

                                    DESCARGAR TRANSCRIPCIÓN
                                    HAGA CLIC AQUI para participar en la encuesta del episodio.

                                    Mentionado en este episodio:

                                    • Medicare en Español
                                    • Especialistas en Información
                                    • Recursos  Addiciónales de LLS:

                                      • LLS en Español
                                      • Apoyo entre pares
                                      • Consultas personalizadad sobre de nutrición
                                      • Manuales del cuidador
                                      • Manuales del sobreviviente
                                      • Publicaciones informativas gratuitas
                                      • Webcast, Vídeos, Episodios de Pódcast
                                      • The post Soy cuidador de un paciente con cáncer.  ¿Y ahora qué? first appeared on The Bloodline with Blood Cancer United Podcast.

                                        27 min
                                      • Hope for a Rare Disease: Myelofibrosis
                                        Naveen Pemmaraju, MD

                                        “If you have a rare disease, it’s not rare to you.”

                                        In this episode, Dr. Naveen Pemmaraju of MD Anderson Cancer Center in Houston, TX, sheds light on the latest treatment advancements for myelofibrosis. The pace of scientific discovery for rare diseases is moving at a fast rate, resulting in better outcomes for myelofibrosis patients.

                                        *This episode was recorded on Rare Disease Day, February 29, 2024

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • Myelofibrosis
                                        • Myeloproliferative Neoplasms (MPNs)
                                        • Acute Myeloid Leukemia
                                        • CAR T-cell Therapy
                                        • Immunotherapy Fact Sheet (Bispecific Antibodies)
                                        • Stem Cell Transplant
                                        • TRANSFORM-1 trial
                                        • American Society of Hematology (ASH)
                                        • Additional LLS Support Resources: 

                                          • Information Specialists 
                                          • Financial support
                                          • Free telephone/web patient programs 
                                          • Free booklets 
                                          • Clinical Trial Support Center
                                          • Young Adult Resources
                                          • Caregiver support 
                                          • Caregiver Workbook
                                          • Survivorship Workbook
                                          • Online chats 
                                          • LLS Community 
                                          • Support groups 
                                          • Patti Robinson Kaufmann First Connection Program 
                                          • Free Nutrition Consultations
                                          • Support for this episode provided by: GSK plc.

                                            The post Hope for a Rare Disease: Myelofibrosis first appeared on The Bloodline with Blood Cancer United Podcast.

                                            39 min

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