Episodes - The Bloodline with Blood Cancer United Podcast

Episodes - The Bloodline with Blood Cancer United Podcast

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Episodes - The Bloodline with Blood Cancer United Podcast episodes

  • How New Therapies Are Changing The Future of Myeloma
    Nishi Shah, MD, MBBS

    Remarkable progress has been made in the treatment of myeloma over the past decade, giving patients and families much hope for the future. In this episode, we speak to Dr. Nishi Shah of Montefiore Einstein Comprehensive Cancer Center in New York City. While the wide variety of therapies available to patients are discussed, this episode also focuses on the newest, cutting-edge therapies for myeloma, such as CAR T-cell therapy and bispecific antibodies.  

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    Mentioned on this episode: 

    • Multiple Myeloma
    • CAR T-cell Therapy
    • Bispecific Antibodies – Immunotherapy Booklet
    • Stem Cell Transplant
    • Multiple Myeloma and Agent Orange
    • Additional LLS Support Resources: 

      • Information Specialists 
      • Financial support
      • Free telephone/web patient programs 
      • Free booklets 
      • Clinical Trial Support Center
      • Young Adult Resources
      • Caregiver support 
      • Caregiver Workbook
      • Survivorship Workbook
      • Online chats 
      • LLS Community 
      • Support groups 
      • Patti Robinson Kaufmann First Connection Program 
      • Free Nutrition Consultations
      • Support for this episode provided by: AbbVie Inc.; Genentech, Inc. & Biogen; and Johnson & Johnson.

        The post How New Therapies Are Changing The Future of Myeloma first appeared on The Bloodline with Blood Cancer United Podcast.

        32 min
      • Living with Myeloproliferative Neoplasms (MPNs)

        In the episode, we explore the family of diseases called myeloproliferative neoplasms (MPNs). Dr. Anand Patel and Dr. Olatoyosi Odenike of The University of Chicago Medicine share the latest advances in treatments for MPNs, including myelofibrosis (MF), polycythemia vera (PV) and essential thrombocythemia (ET). We also highlight how treatment teams prioritize the improvement of patients’ quality of life as a key aspect of care.

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        CLICK HERE to participate in our episode survey.

        Mentioned on this episode: 

        • Myeloproliferative Neoplasms (MPN)
        • MPN Booklet
        • Chronic Myeloid Leukemia
        • Acute Myeloid Leukemia
        • Hopeful Advancements for Chronic Myeloid Leukemia (CML) – podcast episode
        • Stem Cell Transplant
        • American Society of Hematology (ASH)
        • Additional LLS Support Resources: 

          • Information Specialists 
          • Financial support
          • Free telephone/web patient programs 
          • Free booklets 
          • Clinical Trial Support Center
          • Young Adult Resources
          • Caregiver support 
          • Caregiver Workbook
          • Survivorship Workbook
          • Online chats 
          • LLS Community 
          • Support groups 
          • Patti Robinson Kaufmann First Connection Program 
          • Free Nutrition Consultations
          • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

            The post Living with Myeloproliferative Neoplasms (MPNs) first appeared on The Bloodline with Blood Cancer United Podcast.

            48 min
          • Bite By Bite: Supporting Cancer Patients Through Nutrition

            Nutrition is a crucial part of cancer care. Many patients and caregivers play an active role in managing their nutrition during and after treatment. In this episode, we discuss nutrition after a cancer diagnosis with Luz Chavez and Susanne Massarani, Registered Dietitians from The University of Chicago. Learn the basics of oncology nutrition and how a good diet can help combat treatment-related weight loss and side effects. Caregivers will also benefit from tips on how to care for their loved ones when they experience appetite changes or other gastrointestinal symptoms.

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            CLICK HERE to participate in our episode survey.

            Mentioned on this episode: 

            • LLS Nutrition Resources and Free Consults
            • New American Plate
            • Graft-vs-host disease (GVHD)
            • CAR T-cell Therapy
            • Stem Cell Transplant
            • Additional LLS Support Resources: 

              • Information Specialists 
              • Financial support
              • Free telephone/web patient programs 
              • Free booklets 
              • Clinical Trial Support Center
              • Young Adult Resources
              • Caregiver support 
              • Caregiver Workbook
              • Survivorship Workbook
              • Online chats 
              • LLS Community 
              • Support groups 
              • Patti Robinson Kaufmann First Connection Program 
              • Free Nutrition Consultations
              • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

                The post Bite By Bite: Supporting Cancer Patients Through Nutrition first appeared on The Bloodline with Blood Cancer United Podcast.

                42 min
              • Exploring Hairy Cell Leukemia
                Caner Saygin, MD

                A diagnosis of cancer can cause significant emotional distress to a patient.  A diagnosis of a rare leukemia can leave patients and caregivers feeling unsure and nervous about the future.  In this episode, we speak to Dr. Caner Saygin of University of Chicago Medicine about hairy cell leukemia, a rare, but treatable cancer.  Dr. Saygin delves into this disease, highlighting the need for an accurate diagnosis, as well as current and emerging treatments.  Patients will be given hope for a good quality of life while managing this disease.

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                CLICK HERE to participate in our episode survey.

                Mentioned on this episode: 

                • Hairy Cell Leukemia
                • Flow Cytometry and Next Generation Sequencing Tests
                • MRD (Minimal/Measurable Residual Disease)
                • Hairy Cell Leukemia Foundation
                • Additional LLS Support Resources: 

                  • Information Specialists 
                  • Financial support
                  • Free telephone/web patient programs 
                  • Free booklets 
                  • Clinical Trial Support Center
                  • Young Adult Resources
                  • Caregiver support 
                  • Caregiver Workbook
                  • Survivorship Workbook
                  • Online chats 
                  • LLS Community 
                  • Support groups 
                  • Patti Robinson Kaufmann First Connection Program 
                  • Free Nutrition Consultations
                  • Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

                    The post Exploring Hairy Cell Leukemia first appeared on The Bloodline with Blood Cancer United Podcast.

                    31 min
                  • Improving Quality of Care for Myelodysplastic Syndromes (MDS)
                    Colin Vale, MD

                    Myelodysplastic Syndromes (MDS) is a group of diseases that have a variety of different treatments and outcomes. In this episode, we speak to Dr. Colin Vale of Emory University in Atlanta, GA, about the treatments for MDS, the potential for transforming into acute myeloid leukemia (AML), and new strategies to give patients the quality of care that they deserve.

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                    CLICK HERE to participate in our episode survey.

                    Mentioned on this episode: 

                    • Myelodysplastic Syndromes (MDS)
                    • IMerge Phase 3 Study (Imetelstat)
                    • Classification Systems
                    • Germline Predisposition Article
                    • Patient-Doctor Perspectives: Hereditary Myelodysplastic Syndromes (MDS) | The Bloodline with LLS
                    • International Prognostic Scoring System
                    • Allogeneic Stem Cell Transplantation
                    • Additional LLS Support Resources: 

                      • Information Specialists 
                      • Financial support
                      • Free telephone/web patient programs 
                      • Free booklets 
                      • Clinical Trial Support Center
                      • Young Adult Resources
                      • Caregiver support 
                      • Caregiver Workbook
                      • Survivorship Workbook
                      • Online chats 
                      • LLS Community 
                      • Support groups 
                      • Patti Robinson Kaufmann First Connection Program 
                      • Free Nutrition Consultations
                      • Support for this episode provided by: Taiho Oncology, Inc.

                        The post Improving Quality of Care for Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with Blood Cancer United Podcast.

                        24 min
                      • Mission To Complete Remission: Utilizing MRD Testing In Blood Cancer
                        Adriana Rossi, MD

                        Testing for minimal or measurable residual disease (MRD) in blood cancer has transformed the way we look at remission and treatment planning.

                        In this episode, we speak to Dr. Adriana Rossi of Mt. Sinai Hospital in New York about how MRD testing is being utilized for blood cancer patients. Join us as we explore minimal/measurable residual disease (MRD) testing for blood cancer and its role in guiding treatment decisions and predicting relapse and prognosis.   

                        DOWNLOAD TRANSCRIPT
                        CLICK HERE to participate in our episode survey.

                        Mentioned on this episode: 

                        • Minimal/Measurable Residual Disease
                        • Minimal/Measurable Residual Disease Chart 
                        • Tests (FISH, Flow Cytometry, Next-generation Sequencing)
                        • The Revolution of Genomics: How Testing Leads to Individualized Treatment
                        • Multiple Myeloma
                        • Acute Lymphoblastic Leukemia
                        • Additional LLS Support Resources: 

                          • Information Specialists 
                          • Financial support
                          • Free telephone/web patient programs 
                          • Free booklets 
                          • Clinical Trial Support Center
                          • Young Adult Resources
                          • Caregiver support 
                          • Caregiver Workbook
                          • Survivorship Workbook
                          • Online chats 
                          • LLS Community 
                          • Support groups 
                          • Patti Robinson Kaufmann First Connection Program 
                          • Free Nutrition Consultations
                          • Support for this episode provided by: Adaptive Biotechnologies

                            The post Mission To Complete Remission: Utilizing MRD Testing In Blood Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

                            30 min
                          • Continuing The Dream: An Inspiring Story of Resilience
                            Cliff Davis

                            Cliff Davis was only sixteen weeks away from graduating medical school when he received the shocking news that he had Hodgkin Lymphoma.  His path has been unique and his story will inspire you.

                            Cliff has a story that is familiar to many patients –a cancer diagnosis that resulted in pausing his schooling and career aspirations. In this case, going back to finish medical school proved much more difficult than expected when he took a leave of absence. Be sure to tune into this incredible story of resilience, as Cliff never gave up on the one thing he felt like he was meant to do – while learning so much about the world of patient care along the way. 

                            DOWNLOAD TRANSCRIPT
                            CLICK HERE to participate in our episode survey.

                            Mentioned on this episode: 

                            • Hodgkin Lymphoma
                            • Financial support
                            • Team In Training
                            • Additional LLS Support Resources: 

                              • Information Specialists 
                              • Free telephone/web patient programs 
                              • Free booklets 
                              • Clinical Trial Support Center
                              • Young Adult Resources
                              • Caregiver support 
                              • Caregiver Workbook
                              • Survivorship Workbook
                              • Online chats 
                              • LLS Community 
                              • Support groups 
                              • Patti Robinson Kaufmann First Connection Program 
                              • Free Nutrition Consultations
                              • Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

                                The post Continuing The Dream: An Inspiring Story of Resilience first appeared on The Bloodline with Blood Cancer United Podcast.

                                44 min
                              • The Revolution of Genomics: How Testing Leads to Individualized Treatment

                                Have you ever wondered how doctors determine the treatment for a blood cancer patient? In this episode, we’re speaking with Dr. Eric Severson of Labcorp Oncology and Dr. John DiPersio of Washington University in St. Louis, MO, about genomics testing, what it is, and how it benefits blood cancer patients. You will learn about the crucial collaboration between pathologists and oncologists to make sure patients are getting the most accurate diagnosis and best possible treatments for their particular blood cancers.

                                DOWNLOAD TRANSCRIPT
                                CLICK HERE to participate in our episode survey.

                                Mentioned on this episode: 

                                • Genomics Testing Video
                                • Genomics Tests (FISH, Flow Cytometry, Next-generation Sequencing)
                                • Acute Myeloid Leukemia
                                • Minimal/Measurable Residual Disease
                                • A Medication Resource for Blood Cancer Patients
                                • Minimal/Measurable Residual Disease Chart 
                                • CAR T-cell Therapy
                                • Stem Cell Transplantation
                                • Beat AML Master Clinical Trial
                                • Dare To Dream
                                • Additional LLS Support Resources: 

                                  • Information Specialists 
                                  • Free telephone/web patient programs 
                                  • Free booklets 
                                  • Clinical Trial Support Center
                                  • Financial support
                                  • Young Adult Resources
                                  • Caregiver support 
                                  • Caregiver Workbook
                                  • Survivorship Workbook
                                  • Online chats 
                                  • LLS Community 
                                  • Support groups 
                                  • Patti Robinson Kaufmann First Connection Program 
                                  • Free Nutrition Consultations
                                  • Support for this episode provided by: Labcorp Oncology.

                                    The post The Revolution of Genomics: How Testing Leads to Individualized Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

                                    48 min
                                  • Supporting the Patient: Caregiving Takes a Village
                                    Iris Cohen Fineberg, PhD, MSW, OSW-C

                                    Caregivers can come from many places in a patient’s life. They may be a spouse, family member, neighbor or “chosen family”. When caring for a cancer patient takes a village, caregivers come together to do what’s best for the patient.

                                    Join us as we sit down with Dr. Iris Cohen Fineberg, an Associate Professor at Stony Brook University, who specializes in oncology social work and palliative care. In this episode, we discuss planned family meetings, communicating with the treatment team, and how the community can provide supportive care to the patient. We invite caregivers, patients and their treatment teams to listen in on this important discussion.

                                    DOWNLOAD TRANSCRIPT
                                    CLICK HERE to participate in our episode survey.

                                    Mentioned on this episode: 

                                    • Caregiver support 
                                    • Caregiver Workbook
                                    • Palliative Care
                                    • Caregiver Online Chat
                                    • Caregiver Videos
                                    • Caregiver telephone/web programs
                                    • Additional LLS Support Resources: 

                                      • Information Specialists 
                                      • Free telephone/web patient programs 
                                      • Free booklets 
                                      • Clinical Trial Support Center
                                      • Financial support
                                      • Young Adult Resources
                                      • Survivorship Workbook
                                      • Online chats 
                                      • LLS Community 
                                      • Support groups 
                                      • Patti Robinson Kaufmann First Connection Program 
                                      • Free Nutrition Consultations
                                      • The post Supporting the Patient: Caregiving Takes a Village first appeared on The Bloodline with Blood Cancer United Podcast.

                                        33 min
                                      • LIVE! At CancerCon: Coping with Cancer
                                        Aerial Donovan
                                        Alique Topalian, PhD, MPH
                                        Peter Drahms, RN, BSN, C.
                                        Robert Bennett, PhD, CPNP-AC

                                        Please join us for this second live episode from CancerCon® 2023, a young adult cancer conference presented by Stupid Cancer®. In this episode, we’ll be speaking with experts who discussed “chemo brain”, palliative care, and healing through writing.

                                        Cancer patients and survivors of all ages, whether newly diagnosed, in treatment or post-treatment, can benefit from hearing from these experts.

                                        Be sure to tune into the previous episode from CancerCon, where we heard from young adult cancer patients and survivors on the milestones and challenges that they have experienced along the road of survivorship.

                                        DOWNLOAD TRANSCRIPT
                                        CLICK HERE to participate in our episode survey.

                                        Mentioned on this episode: 

                                        • Young Adult Resources
                                        • Survivorship Workbook
                                        • YAConnect: Young Adults Living with Blood Cancer Online Chat
                                        • Stupid Cancer®
                                        • Cactus Cancer Society
                                        • “Chemo brain”
                                        • Palliative Care
                                        • Voicing My Choices
                                        • Additional LLS Support Resources: 

                                          • Information Specialists
                                          • Financial support
                                          • Free telephone/web patient programs 
                                          • Patti Robinson Kaufmann First Connection® Program
                                          • Free booklets 
                                          • LLS Public Policy & Advocacy
                                          • Online chats 
                                          • Caregiver support 
                                          • Support groups 
                                          • Free Nutrition Consultations 
                                          • LLS Advocacy
                                          • Support for this episode provided by: Genentech, Inc. & Biogen and Merck & Co., Inc.

                                            The post LIVE! At CancerCon: Coping with Cancer first appeared on The Bloodline.

                                            26 min

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                                          A podcast for patients and caregivers