In this episode, we continue the discussion from last week about the importance of routines, especially for those living with dementia. Hosts Tom, Fran, and their partners Mary and Frank share personal experiences on how maintaining a routine helps them manage daily life and cognitive function.

We talk about the disruptive impact of festive seasons like Christmas on their routines and how they adapt to changes. The episode also explores practical tips like using diaries for planning, engaging in activities to stay mentally active, and the significance of having a supportive community. Whether dealing with dementia or supporting someone who is, this episode offers valuable insights for all.

Resources & Further Reading:

Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging

SURF (Service Users Reference Forum): https://surfdementia.org/

Alzheimer’s Society: https://www.alzheimers.org.uk/

Carers UK: https://www.carersuk.org/

Reddit Dementia Communities: https://www.reddit.com/r/dementia/

Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney

Chapters:

00:00 Introduction

00:55 Christmas and Routine Disruptions

02:17 Managing Daily Routines

04:24 Work and Routine Structure

06:30 Living in the Moment

10:26 Energy Management

13:27 Exploring New Hobbies and Skills

14:01 The Joy of Painting by Numbers

15:12 Engaging in Creative Activities

16:33 The Importance of Routine

18:40 Staying Active with Dementia

19:41 Final Thoughts and Reflections

In this episode of the Fighting Dementia Podcast, we are joined by Frank and Marion, partners of Tom and Fran, as we discuss the significance of maintaining routines for those living with dementia. With the aftermath of the Christmas holiday season as a backdrop, our guests share their experiences and challenges in managing daily routines. We dive into how disruptions during holiday periods can lead to increased agitation and exhaustion, emphasising the need for structure and predictability. Additionally, we touch on the importance of self-care for those supporting people with dementia, discussing the balance between caregiving duties and personal well-being. Frank and Marion provide valuable insights from their years of experience, highlighting the benefits of acceptance, the role of community, and the everyday strategies that support both the caregivers and those living with dementia. Join us for this heartfelt conversation as we explore practical ways to foster a balanced life amidst the complexities of dementia care.

Resources & Further Reading:

Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging

SURF (Service Users Reference Forum): https://surfdementia.org/

Alzheimer’s Society: https://www.alzheimers.org.uk/

Carers UK: https://www.carersuk.org/

Reddit Dementia Communities: https://www.reddit.com/r/dementia/

Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney

Chapters:

00:00 Introduction to the Podcast

00:24 Discussing the Importance of Routines

01:47 Challenges of Maintaining Routines

03:57 Personal Routines and Self-Care

06:25 Balancing Caregiving and Personal Time

13:03 Managing Schedules and Routine Changes

15:03 Managing Energy Levels in Dementia Care

16:48 Understanding the Disconnect Between Mind and Body

18:25 Words of Wisdom for Dementia Caregivers

22:13 Changing Perceptions: From Carer to Supporter

27:58 Concluding Thoughts and Podcast Outro

Welcome to the latest episode of the Fighting Dementia Podcast, where hosts Leon, Tom, and Fran share their personal experiences and insights into living with dementia. Joined by Tom's wife Marion, they discuss the significance of adopting new skills and hobbies for brain health and emotional well-being. Hear inspiring stories of painting, polygraphy, golf, and even candle making, and learn how these activities can bring moments of joy and fulfillment. This episode emphasises living in the moment, tackling the challenges of dementia head-on, and the importance of staying mentally active. Tune in for an uplifting conversation on managing dementia, from diagnosis to daily life, filled with practical advice and heartfelt moments.

Resources & Further Reading:

Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging

SURF (Service Users Reference Forum): https://surfdementia.org/

Alzheimer’s Society: https://www.alzheimers.org.uk/

Carers UK: https://www.carersuk.org/

Reddit Dementia Communities: https://www.reddit.com/r/dementia/

Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney

Chapters:

00:00 Introduction to the Fighting Dementia Podcast

00:35 The Importance of Learning New Skills

00:55 Tom's Experience with Polygraphy and Painting

01:30 Fran's Artistic Journey

05:02 Marian's Hobbies and Interests

07:09 Tom and Fran on Trying New Things

12:22 The Value of Trying New Activities

13:16 Reminiscence Corner

13:40 Embracing the Moment

14:05 Living in the Present

15:06 Coping with Diagnosis

15:55 Challenges and Acceptance

16:46 Support and Understanding

18:04 Planning for the Future

19:23 Raising Awareness

20:19 The Importance of Early Diagnosis

25:40 Final Thoughts and Reflections

Leon hosts Tom and Fran - both living well with dementia (Tom diagnosed 8 years ago, Fran 6 years ago) - alongside guest Grahame Smith, Associate Professor in Mental Health Innovation, to discuss brain health, neurodegeneration, and practical ways to live positively with dementia. The episode highlights Tom’s detailed painting of a ship in a cove (completed over three weeks) and how learning new skills like painting, carving wood, dancing, or joining a choir can support brain health by building new neural connections rather than relying on old pathways. Fran shares starting paint-by-numbers, how it sparked childhood memories, and a humorous near shoplifting incident while buying art supplies.

Resources & Further Reading:

Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging

SURF (Service Users Reference Forum): https://surfdementia.org/

Alzheimer’s Society: https://www.alzheimers.org.uk/

Carers UK: https://www.carersuk.org/

Reddit Dementia Communities: https://www.reddit.com/r/dementia/

Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney

Chapters:

00:00 Welcome to the Podcast

03:21 Fran Tries Paint-by-Numbers: Memories, Laughter, and Getting Started

06:06 Hands, Movement & Touch: Motor Skills, Dancing, and Staying Active

10:12 Living Well With Dementia: Changing Behaviours, Social Connection, and Support Networks

15:36 Identity, Grief, and the ‘Self’: A Zen/Buddhist Lens + Tech, AI, and Memory

18:20 Subscribe & Community Mission + Living for the Moment (Peter’s Story)

20:01 Mindfulness Myths vs Being Present: Breaking Out of the ‘Box’ at Any Age

23:06 Diagnosis as a Wake‑Up Call: Changing Attitudes & Behavior

24:56 “Is Dementia You?” Identity, Labels, and Redefining Your Life

29:29 Routines for Brain Health: Cognitive Rehearsal (and When to Break the Routine)

32:50 Social Connection vs Sedentary Habits: TV, Tech, and Staying Engaged

36:42 Reminiscence Corner: Overstimulation in Crowds & How to Cope

45:43 Wrap‑Up, Thanks, and Listener Reminder to Do Your Own Research

In this episode of the Fighting Dementia Podcast, hosts Leon, Fran, Tom, and Lizzie welcome music therapist Lizzie for an enlightening discussion on the benefits of music therapy for those living with dementia. Lizzie shares her journey into music therapy, highlights the personalised approach she adopts to engage patients of all ages, and recounts heartwarming stories of how music has helped individuals connect and communicate. The conversation also delves into practical advice for integrating music into daily life to enhance emotional well-being. Tune in to discover the transformative effects of music and learn practical tips for incorporating music therapy into dementia care.

Resources & Further Reading:

Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging

SURF (Service Users Reference Forum): https://surfdementia.org/

Alzheimer’s Society: https://www.alzheimers.org.uk/

Carers UK: https://www.carersuk.org/

Reddit Dementia Communities: https://www.reddit.com/r/dementia/

Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney

Chapters:

00:00 Introduction to the Podcast

00:09 Meet the Presenters

00:31 What is Music Therapy?

02:14 Lizzie's Journey into Music Therapy

05:33 Working with Different Groups

08:21 Impact of Music on Dementia

15:43 Memorable Moments in Music Therapy

19:09 Reflecting on Personal Experiences

19:33 The Power of Music in Dementia Care

20:26 Choosing the Right Music

21:26 Practical Tips for Using Music at Home

21:46 The Role of Music Therapists

26:01 Improvisation and Personalized Music

31:32 Music's Emotional Impact

35:58 Concluding Thoughts and Advice

Welcome to the Fighting Dementia Podcast! In this episode, hosts Leon and Tom, who was diagnosed with dementia eight years ago, are joined by Meryl and Dawn. Dawn shares her experience of living with posterior cortical atrophy, a rare form of dementia, while Meryl discusses her role as a supportive partner. The group converses about their daily routines, the challenges of maintaining independence, and the significance of music therapy in Dawn's life. The episode also delves into the importance of routine, dealing with new symptoms, and future plans for support. Tune in for an insightful conversation about living with dementia and the supports that make a difference.

Chapters:

00:00 Welcome to the Fighting Dementia Podcast

00:20 Meet Meryl and Dawn

01:08 Music Therapy and Learning New Skills

02:49 Kitchen Adventures and Daily Challenges

05:33 The Importance of Routine

10:12 Community Groups and Social Connections

11:42 Traveling and Managing Fatigue

14:32 Independence and Daily Life Adjustments

21:32 Perception of Time and Planning

27:16 Daily Life with Dementia

27:33 Using Alexa for Reminders

29:44 Maintaining Independence

31:02 Support and Caregiving

34:55 Reflecting on the Past

42:31 Music Therapy Benefits

48:13 Therapy and Cognitive Issues

52:59 Concluding Thoughts

Welcome to this episode of the Fightin g Dementia Podcast where hosts Leon, Fran, and Tom discuss their intentions for 2026 in the context of living with dementia. They stress the importance of focusing on intentions rather than goals for a kinder approach to managing expectations. The conversation touches on brain health, early detection, and the importance of public awareness and support for dementia. Fran and Tom share their own journeys and challenges while advocating for better resources and support networks. The team also shares exciting plans for their care home management software and a new app aimed at helping people with dementia live better lives. They wrap up with a call to action, encouraging listeners to like, subscribe, and share the podcast to help spread awareness.

Resources & Further Reading:

Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging

SURF (Service Users Reference Forum): https://surfdementia.org/

Alzheimer’s Society: https://www.alzheimers.org.uk/

Carers UK: https://www.carersuk.org/

Reddit Dementia Communities: https://www.reddit.com/r/dementia/

Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney

Chapters:

00:00 Welcome to the Fighting Dementia Podcast

00:07 Meet the Hosts: Personal Stories

00:52 Understanding Dementia: Intentions vs. Goals

01:05 Brain Health and Dementia Prevention

02:44 Living Well with Dementia

04:13 Challenges and Advocacy

07:09 Future Plans and Innovations

14:03 Raising Awareness and Fighting Stigma

17:57 Final Thoughts

Welcome to the Fighting Dementia Podcast! In this special episode, we reminisce about our journey over the past year, discussing with experts, those living with dementia, and their supporters. Hear highlights of our many heartwarming and inspiring conversations, including guest appearances from individuals who continue to live full lives despite their diagnoses. Join us as we reflect on the insights shared, the laughter, and the important lessons learned about person-centered care and community support. We also discuss behavioral changes, the impact of community, and how small efforts can lead to significant positive impacts on those living with dementia. Tune in and help us build a supportive and informative community for all those affected by cognitive issues.

Resources & Further Reading:

Meditation & Dementia Research:https://news.med.miami.edu/worried-about-alzheimers-meditate-and-mingle-study-says/ https://www.psychologytoday.com/gb/blog/a-subtle-impact/202506/meditation-could-reverse-brain-aging

SURF (Service Users Reference Forum): https://surfdementia.org/

Alzheimer’s Society: https://www.alzheimers.org.uk/

Carers UK: https://www.carersuk.org/

Reddit Dementia Communities: https://www.reddit.com/r/dementia/

Powers of Attorney Info (UK): https://www.gov.uk/power-of-attorney

Chapters:

00:00 Welcome to the Fighting Dementia Podcast

00:20 Reflecting on the Year: Highlights and Memories

01:01 Challenges and Perspectives on Dementia

03:05 Inspiring Stories and Personal Triumphs

05:00 Behavioral Changes and Support Systems

06:26 Engaging Conversations and Personal Growth

10:47 Behavior Change and Water Intake

11:28 The Impact of Diet and Routine

12:59 Vitamin D Deficiency Discussion

15:03 Reflecting on the Year

17:22 Building a Supportive Community

19:45 Concluding Thoughts and Reminders

In this episode of the Fighting Dementia podcast, host Leon and co-host Tom discuss living with dementia and the challenges they face. Tom shares his personal experience battling mood changes before and after his diagnosis. They introduce guest expert Tami Anastasia, who discusses her work in dementia care, the importance of understanding personal histories in dementia, and her new book, 'Dementia, Caregiving, and Personal History: How to Help Cope, Connect, and Heal.' They also dive into the challenges of seeking help as a caregiver, the significance of physical exercise for brain health, and how dementia can sometimes unearth deep-seated emotional issues. The episode wraps up with a reflection on the personal symptoms of dementia experienced by Tom and how both he and his wife navigate life with the condition.Chapters:00:00 Introduction to the Podcast01:03 Discussing Mood Changes02:50 Physical Activity and Dementia03:13 The Importance of Support Groups04:13 Reflecting on Christmas and Singing05:43 Reintroducing Physical Activity10:57 Guest Introduction: Tami Anastasia15:11 Challenges of Asking for Help21:56 Planning for Future Care Needs22:30 Discussing Emotional Challenges24:21 Understanding Dementia and Personal History26:10 Healing Through the Dementia Journey30:08 Tom's Personal Reflections33:09 The Importance of Knowing the Person40:05 Living with Mixed Dementia41:42 Tom's Unique Perspective on Emotions44:19 Concluding Thoughts and Future Plans

Join us in this special Christmas podcast episode where we discuss the challenges of using cookbooks designed for people with dementia. The conversation touches on the need for more practical and visually engaging recipes. Later, Tim, the head of knowledge from the Alzheimer's Society, joins the discussion to talk about the latest research in dementia, the importance of support networks, and how lifestyle changes can impact dementia progression. The episode also highlights the societal stigma around dementia and the invaluable role of caregivers. Tune in for an insightful exploration into living well with dementia and the strides being made in research and support.Christmas is traditionally a time for joy, laughter and creating memories. But for many of the one million people in the UK living with dementia, the festive season can be a painful reminder of how once familiar traditions become harder to hold onto.Dementia is the UK’s biggest killer, with one in three people born today expected to develop the condition. This Christmas, with your donation, Alzheimer’s Society can be here for more people affected by dementia through our lifechanging support services.It will take a society to defeat dementia. To donate or find out more, visit alzheimers.org.uk/Christmas or call Alzheimer’s Society’s Dementia Support Line on 0333 150 3456.Chapters:00:00 Welcome to the Christmas Podcast00:15 Critiquing Cookbooks for Dementia04:11 The Goat Curry Story05:07 Introducing Tim from Alzheimer's Society07:23 Tim's Journey with Alzheimer's Society10:21 Discussing Dementia Stigma16:09 Research and Treatments for Dementia24:07 Exploring the Cost and Benefits of Dementia Treatments24:49 The Individual Nature of Dementia25:35 Challenges and Changes in IV Therapy27:54 Encouraging Participation in Research Trials29:00 Preventing Dementia: Lifestyle Factors31:11 The Impact of Sports on Dementia Risk34:03 Advice for Early Stages of Dementia39:54 Supporting Carers and Emotional Well-being46:45 Concluding Thoughts and Resources