Sign up to save your podcasts
Or
Share Fondo sets the bar for LatAm Engagement, Samar’s interview, Andrade’s paper, the 2nd Soiree was a hit, grants are rolling in! — #S10e113
Share to email
Share to Facebook
Share to X
Share to email
Share to Facebook
Share to X
Or
Fondo sets the bar for LatAm Engagement, Samar’s interview, Andrade’s paper, the 2nd Soiree was a hit, grants are rolling in! — #S10e113
Super Heroine: Vicky Arteaga
Fondo Syngap is tireless:
- 2 Congreso en Español on September 23, 2023
https://www.syngapresearchfund.org/professionals/2023-en-espanol
Spanish Podcast #CafeSyngap1e01
- YouTube https://www.youtube.com/watch?v=dh0lPuLLUFg
- Google https://podcasts.google.com/feed/aHR0cHM6Ly9hbmNob3IuZm0vcy9lNjAyMDgwMC9wb2RjYXN0L3Jzcw
- Spotify https://spotify.link/MJZZVMoKGCb
- Amazon Music https://music.amazon.com/podcasts/6e65b878-4506-4882-b6cd-1ea873c0ba7e/caf%C3%A9-syngap1
#FondoSYNGAP
SRF is at ILAE
- Let’s thank Katrien Deckers & Olga for representing SRF at ILAE in Dublin Sep 2nd - 6
- Vicky on one of the panels on Saturday called: Clinical diagnostic challenges in the genetic epilepsies and opportunities for precision treatment
Super Heroine: Ashley Frye with Suzanne Jones and Samar Katnani
#SyngapStories #KETO #MAD
- Samar Interview https://twitter.com/cureSYNGAP1/status/1693987401952342442?s=20
- Keto works, remember this old gem? https://www.syngapresearchfund.org/post/ketogenic-diet
Where have I been all week?
- Syngap Stories about Tony https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-016
Soiree was AMAZING
- Tweet https://twitter.com/curesyngap1/status/1696595956467183904
- Ashley’s Speech https://www.youtube.com/watch?v=qw2mG3wTjfc
Super Heroine: Sydney Stelmazek
- CHOP Update
- 16 seen so far
- 27 signed up
- QEEG is SYNGAP1 compatible https://twitter.com/phalliburton/status/1694845802336641315?s=20
CANNONBALL 3 is coming! October 4-6.
Super Heroine: Dr. Danielle Andrade
Huge thanks to Dr. Andrade for this paper on Adults with SYNGAP1 https://twitter.com/DrDaniAndrade/status/1694717693080092976?s=20
Proposals came in today, we need to raise money!
Finally, we have at least 6 grant proposals received! Donate and Fundraise! https://www.syngapresearchfund.org/donate/donate
Share you time and blood too!
Volunteer - https://www.syngapresearchfund.org/volunteer-with-syngap-research-fund
Donate to the biorepository in OH or IL:
- Sept 22, Liberty Township, OH: IRF2BPL Foundation (Home 2 Suites, 7145 Liberty Centre Drive, Liberty Township, OH 45069)
- Sept 29, Chicago, IL: KCNQ2 Cure Alliance Conference, September 29th 2023 (Hilton Hotel Chicago 300 E Ohio St, Chicago, IL 60611
CONFERENCE
Registration link: https://Syngap.Fund/Orlando
Hotels ASAP: https://Syngap.Fund/2023hotel
Shirts https://www.bonfire.com/srf-syngap1-conference-2023/
Volunteer with SRF! [email protected]
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here
- https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts:
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 113 of #Syngap10 - September 2, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
View all episodes
By Syngap Research Fund, 501(c)(3)
5
8383 ratings
Super Heroine: Vicky Arteaga
Fondo Syngap is tireless:
- 2 Congreso en Español on September 23, 2023
https://www.syngapresearchfund.org/professionals/2023-en-espanol
Spanish Podcast #CafeSyngap1e01
- YouTube https://www.youtube.com/watch?v=dh0lPuLLUFg
- Google https://podcasts.google.com/feed/aHR0cHM6Ly9hbmNob3IuZm0vcy9lNjAyMDgwMC9wb2RjYXN0L3Jzcw
- Spotify https://spotify.link/MJZZVMoKGCb
- Amazon Music https://music.amazon.com/podcasts/6e65b878-4506-4882-b6cd-1ea873c0ba7e/caf%C3%A9-syngap1
#FondoSYNGAP
SRF is at ILAE
- Let’s thank Katrien Deckers & Olga for representing SRF at ILAE in Dublin Sep 2nd - 6
- Vicky on one of the panels on Saturday called: Clinical diagnostic challenges in the genetic epilepsies and opportunities for precision treatment
Super Heroine: Ashley Frye with Suzanne Jones and Samar Katnani
#SyngapStories #KETO #MAD
- Samar Interview https://twitter.com/cureSYNGAP1/status/1693987401952342442?s=20
- Keto works, remember this old gem? https://www.syngapresearchfund.org/post/ketogenic-diet
Where have I been all week?
- Syngap Stories about Tony https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-016
Soiree was AMAZING
- Tweet https://twitter.com/curesyngap1/status/1696595956467183904
- Ashley’s Speech https://www.youtube.com/watch?v=qw2mG3wTjfc
Super Heroine: Sydney Stelmazek
- CHOP Update
- 16 seen so far
- 27 signed up
- QEEG is SYNGAP1 compatible https://twitter.com/phalliburton/status/1694845802336641315?s=20
CANNONBALL 3 is coming! October 4-6.
Super Heroine: Dr. Danielle Andrade
Huge thanks to Dr. Andrade for this paper on Adults with SYNGAP1 https://twitter.com/DrDaniAndrade/status/1694717693080092976?s=20
Proposals came in today, we need to raise money!
Finally, we have at least 6 grant proposals received! Donate and Fundraise! https://www.syngapresearchfund.org/donate/donate
Share you time and blood too!
Volunteer - https://www.syngapresearchfund.org/volunteer-with-syngap-research-fund
Donate to the biorepository in OH or IL:
- Sept 22, Liberty Township, OH: IRF2BPL Foundation (Home 2 Suites, 7145 Liberty Centre Drive, Liberty Township, OH 45069)
- Sept 29, Chicago, IL: KCNQ2 Cure Alliance Conference, September 29th 2023 (Hilton Hotel Chicago 300 E Ohio St, Chicago, IL 60611
CONFERENCE
Registration link: https://Syngap.Fund/Orlando
Hotels ASAP: https://Syngap.Fund/2023hotel
Shirts https://www.bonfire.com/srf-syngap1-conference-2023/
Volunteer with SRF! [email protected]
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here
- https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts:
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 113 of #Syngap10 - September 2, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
More shows like SynGAP10 weekly 10 minute updates on SYNGAP1
View all
The Joe Rogan Experience
226,206 Listeners
How Did This Get Made?
22,865 Listeners
Fantasy Footballers - Fantasy Football Podcast
28,686 Listeners
20/20
11,771 Listeners
The Ben Shapiro Show
153,924 Listeners
Pod Save America
86,708 Listeners
Crime Junkie
365,972 Listeners
Behind the Bastards
15,304 Listeners
The Megyn Kelly Show
38,676 Listeners
The Deck
11,149 Listeners
The Best of You
794 Listeners
SYNGAP1 Stories
20 Listeners
Café SYNGAP1
18 Listeners
THREE
5,228 Listeners