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We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence.
• Red Hat Society join and conference highlights
• Down syndrome and CHD awareness link
• Upcoming Zoom listening session details
• Live recording on transition and life stages
• Ayrton’s diagnosis of drug‑induced Long QT
• Warning signs during exercise and daily walks
• Role of wearables in spotting heart‑rate thresholds
• Tapering off venlafaxine and mental health impact
• Switching to citalopram and ongoing vigilance
• Triggers to avoid including sudden noises and swimming
• Practical safety tips including hydration and potassium
• Advocacy advice and seeking second opinions
• Remembering Edward and hidden electrical disorders
Join us on November 25th, 2025 at 4 p.m. Central Time for a Zoom listening event to hear Ellen Boyer’s episode "Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects.” Here is the Zoom link: https://tinyurl.com/HUGZoomRoom
Patrons, meet us on October 30th at 4 p.m. Central Time for our live recording on "Transition and Life Changes." Here is the Zoom link: https://tinyurl.com/HUGZoomRoom
Support the show
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website
By Anna Jaworski4.4
1919 ratings
Send us a text
We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence.
• Red Hat Society join and conference highlights
• Down syndrome and CHD awareness link
• Upcoming Zoom listening session details
• Live recording on transition and life stages
• Ayrton’s diagnosis of drug‑induced Long QT
• Warning signs during exercise and daily walks
• Role of wearables in spotting heart‑rate thresholds
• Tapering off venlafaxine and mental health impact
• Switching to citalopram and ongoing vigilance
• Triggers to avoid including sudden noises and swimming
• Practical safety tips including hydration and potassium
• Advocacy advice and seeking second opinions
• Remembering Edward and hidden electrical disorders
Join us on November 25th, 2025 at 4 p.m. Central Time for a Zoom listening event to hear Ellen Boyer’s episode "Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects.” Here is the Zoom link: https://tinyurl.com/HUGZoomRoom
Patrons, meet us on October 30th at 4 p.m. Central Time for our live recording on "Transition and Life Changes." Here is the Zoom link: https://tinyurl.com/HUGZoomRoom
Support the show
Anna's Buzzsprout Affiliate Link
Baby Blue Sound Collective
Social Media Pages:
Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website

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