This Unexpected Life

From Diagnosis to Heaven With Breena Holt on Grief, Guilt, and God’s Faithfulness


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In part two of this conversation, Carrie M Holt continues her conversation with Breena Holt as she shares the heartbreaking diagnosis of Batten Disease for her son Ezekiel—and the faith and hope that carried her family through his final days. Breena vulnerably unpacks her dreams of God’s glory, the paradox of relief and grief in a terminal diagnosis, and the spiritual battle she faced as Zeke entered heaven.

Together, Carrie and Breena also discuss the raw mom-guilt that special needs mothers carry, how siblings process loss differently, and why God’s faithfulness continues to anchor their family, even years later. This episode is both heartbreaking and profoundly hopeful, reminding us that in the valley of the shadow of death, we are never alone.

Eps. 23; September 9, 2025

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*This podcast features honest conversations with special needs parents and faith-filled guests. While I deeply value the stories and insights shared, the views and opinions expressed may not always reflect my own. Any resources listed are shared for reference, not necessarily a personal recommendation. I invite you to listen with spiritual discernment and ask the Holy Spirit to guide you in what you hold onto and set aside.

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This Unexpected LifeBy Carrie M Holt

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