They discuss the complexities of managing overlapping conditions and the importance of a strong support system. Alice highlights the invaluable support she receives from her family, friends, church community, and online groups. They also talk about the challenges of explaining chronic illness to others, dealing with unsolicited advice, and finding comfort in relationships. This episode serves as a guide for both patients and their loved ones on fostering understanding and meaningful support.

Alice also discusses the significance of finding specialized support groups, such as the 'Rheum to Thrive' community, led by Cheryl. Both Cheryl and Alice stress the importance of open communication, patience, and understanding in building effective support systems. 

Episode at a glance:

• Alice's Health Journey: Alice shares her experience living with and navigating multiple chronic conditions such as Rheumatoid arthritis, Sjogren’s syndrome, fibromyalgia, and chronic fatigue syndrome.
• The Importance of Support from a Strong and Diverse Support System: Cheryl and Alice discuss the importance of support from family and friends, church community, and online support groups. 
• Finding and Building Support Systems: Cheryl and Alice discuss Cheryl’s Rheum to Thrive Program and how a specialized community is valuable in building a support system.
• Dealing with Misunderstandings and Unsolicited Advice: Cheryl and Alice discuss how to maintain boundaries and navigate unsolicited advice.
• Reflections on Long-Term Relationships: Alice shares insights from over 50 years marriage. 

 

Medical disclaimer: 

All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Episode Sponsors

Rheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now!