SynGAP10 weekly 10 minute updates on SYNGAP1

Happy Epilepsy Awareness Day! #S10E53


Listen Later

Three events to plan on:

  1. Jackie’s webinar on Severe Behaviors, Wednesday April 6th.  https://us02web.zoom.us/webinar/register/WN_5ojt2t3PSCWqGROpGaxVEw 
  • Dr. Anderson’s webinar on Stem Cells, Thursday April 28th. https://us02web.zoom.us/webinar/register/WN_23J7Zy22R_-yDrz8RJHXHg 
  • 2nd Annual #Sprint4Syngap is coming April 30, 2022, help us raise funds by starting a team and/or donating!  Sign up now: https://syngap.fund/sprint2022 
  • Here are the dates to think about for the rest of the year…

    April 7-8

    5th Dianalund International Conference on Epilepsy - Implementing Epilepsy Genetics in Clinical Practice

    Denmark

    April 30

    Sprint for Syngap

    Worldwide

    May 13-15

    EpiCon Convention

    Nashville, TN

    June 5 – 6

    Epilepsy Foundation Pipeline Conference

    Santa Clara, CA

    June 11

    Million Dollar Bike Ride

    Philadelphia, PA

    June 21

    Splash for Syngap

    Worldwide

    June 23-25

    2022 DSF Family & Professional Conference

    Fort Worth, TX

    June 25

    Dr. Perry presenting exclusively to Syngap1 families

    Fort Worth, TX

    July 11-13

    World Orphan Drug Congress

    Boston, MA

    September 26

    Global Genes Patient Advocacy Summit

    San Diego, CA

    October 8

    Scramble for Syngap

    Travelers Rest, SC

    October 8

    2nd Annual Caren Leib Gala

    New Jersey

    Oct 31-Nov 1

    Epilepsy Awareness Day Expo

    Anaheim, CA

    November 2

    Epilepsy Awareness Day Disneyland

    Anaheim, CA

    November 12

    Sparks of Hope

    Atlanta, GA

    November 29

    Giving Tuesday

    Worldwide

    December 1

    Scientific Meeting hosted by SRF

    Nashville, TN

    December 2-6

    AES & the 4th Annual Synapse Roundtable

    Nashville, TN

     

    Thank you to #UFDTech for your fundraiser today, check it out: https://www.youtube.com/watch?v=Whkborgb-90 

    This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast 

    Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818 

    Episode 53 of #Syngap10 - March 25, 2022

    #SYNGAP1 #Syngap #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology

     

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