In 1993, Angelina Namiba was finishing her finals at Manchester Metropolitan University when she fell seriously ill. Her GP suggested an HIV test. She took the referral paper, put it under her bed, and didn't go. When he wrote again, underlining "strongly" in red, she went for the test but never collected the results. She already knew what HIV looked like. Her brother, studying in London, had been in and out of specialist wards with Kaposi's sarcoma, meningitis, and epileptic fits. He died at Mildmay Hospice. She was terrified.
Eventually, pre-test counselling gave her the courage to try again. A friend from secondary school in Kenya called and said: ring me when you get the result. Whatever it is, I'll be there. Angelina tested positive in her early twenties, believing she had perhaps six months to live.
She didn't die. She took a job the same week as her diagnosis to keep busy whilst waiting for the end. That decision, and the peer support she found through organisations run by gay men who already knew how to do this work, kept her going. In 1998, she had a daughter, born HIV-free thanks to treatment during pregnancy. She went on to co-found the 4M Network, training mentor mothers to support women through the pregnancy journey. And with four other African women living with HIV in the UK, she co-authored Our Stories Told by Us, a book reclaiming the narrative from statistics and tragedy.
Timestamped Takeaways00:02:09 - Before diagnosis. Angelina was focussed on her university finals. As a foreign student from Kenya, she needed to justify the fees her mother had paid.
00:03:11 - The spirit of Harambee. In Kenya, communities come together to help those in need, whether for school fees, funerals, or weddings. This collective spirit shaped Angelina's approach to peer support.
00:04:41 - The test she didn't take. After her GP suggested an HIV test, Angelina put the referral under her bed and went to the library to look up hepatitis B instead. HIV felt too frightening to face.
00:06:32 - No information for women like her. Everything Angelina had seen about HIV featured white gay men. The image of Freddie Mercury on the tabloids after his death. Men getting ill and dying. Nothing aimed at African women.
00:07:55 - The letter underlined in red. When Angelina still hadn't gone for the test, her GP wrote again, underlining "strongly" in red ink. That scared her enough to go.
00:10:09 - What she already knew. Angelina's brother had been diagnosed before her. She watched him develop Kaposi's sarcoma, meningitis, and epileptic fits. He spent his final year between specialist wards and died at Mildmay Hospice. This was her understanding of HIV.
00:11:24 - A friend at the end of the line. Before going for her results, Angelina's school friend from Kenya said: call me whatever happens. Knowing someone was waiting made it possible to face the news.
00:12:40 - Two ways to take it. Diagnosed in her early twenties, Angelina decided she could either go negative or make the most of her remaining time. She chose the latter.
00:13:24 - Finally, another woman. A friend came to Angelina with news of her own diagnosis. Angelina's response: yes, finally, another woman in London living with HIV. Her friend took her to support groups.
00:14:47 - Learning from gay men. The main support available came from organisations led by gay men who already understood stigma, illness, and mutual aid. They welcomed the women and showed them how to do support work themselves.
00:16:43 - Stigma and silence. Many African women were being diagnosed but not accessing services. Internalised stigma, fear of judgement, and the taboo around talking about sex kept them hidden.
00:18:25 - "How did you get HIV?" Journalists kept asking this question, trying to place her in a box of guilt or innocence. Angelina eventually answered: I got HIV not because of what I did, but because of what I didn't do. I didn't use a condom. Like millions of other young people.
00:21:57 - Pregnancy and motherhood. In 1998, Angelina had a daughter, born HIV-free thanks to treatment during pregnancy. Guidelines then required caesarean section and no breastfeeding. She kept a week-by-week pregnancy diary for her daughter to read.
00:23:57 - Eighteen months of waiting. In those days, babies were tested repeatedly until 18 months old. Only then could mothers breathe a sigh of relief.
00:25:01 - Her daughter now. Angelina's daughter is a singer-songwriter. She can be found on Instagram at @realhamzaa.
00:26:33 - The 4M Network. Angelina co-founded this perinatal peer mentoring project. 4M stands for My Health, My Choice, My Child, My Life. It trains mentor mothers to support their peers through pregnancy and beyond.
00:27:37 - Why mentor mothers matter. A mentor mother has walked the journey before. She understands the anxieties, the domestic violence some women face when disclosing, the immigration issues, the poverty. She can hold your hand through it.
00:29:52 - Breastfeeding and choice. With undetectable viral load, women can now be supported to breastfeed safely if they choose. HIV should not remove that option.
00:31:59 - Disclosure from a position of power. When sharing your status, Angelina advises doing so not from fear but from trust. You are giving someone information because you believe they should have it. If they walk, that's about them, not you.
00:33:30 - Learning from the Global South. African countries have incredible interventions, skills, and expertise. The flow of knowledge shouldn't only go one way.
00:34:22 - Our Stories Told by Us. With four other African women living with HIV in the UK, Angelina co-authored a book celebrating the African contribution to the HIV response. Over forty contributors, each with a photograph, challenging stigma and reclaiming the narrative.
00:39:45 - Remembering her brother. Angelina asks us to remember Kennedy, known as Kay. A gentle soul who loved fashion, saved his money for quality, danced beautifully, and made her laugh.
00:40:53 - The postcard. "Women living with HIV are just like you and me. We are sisters, friends, lovers, parents. With access to treatment and support, we can lead healthy, fulfilling lives. We can start families if we wish. We are just like you."
00:42:12 - Thank you to the activists. Angelina pays tribute to the early gay activists who put their bodies on the line for treatment and research. Without them, many would not be here today. She gives a special shout-out to dan glass, who "puts the act into activism."
Guest BioAngelina Namiba is originally from Kenya and has been living with HIV since 1993. She is a co-founder of the 4M Network, which trains mentor mothers to support women through pregnancy. She worked for many years at Positively Women (now Positively UK) and co-authored Our Stories Told by Us: Celebrating the African Contribution to the UK HIV Response. She is a mother, mentor, and tireless advocate for women's voices in the HIV response.
Resources- Our Stories Told by Us - ourstoriestoldbyus.com - The book celebrating African contributions to the UK HIV response
- 4M Mentor Mothers Network: https://4mmm.org/
- Salamander Trust (Trustee): https://salamandertrust.net
- UK AIDS Memorial Quilt: https://aidsquiltuk.org
- Positively UK: https://positivelyuk.org
- HIV and Black African Communities in the UK (NAT): https://nat.org.uk/publications/hiv-and-black-african-communities-in-the-uk/
- Angelina's daughter Hamzaa on Instagram: @realhamzaa