The Bloodline with Blood Cancer United Podcast

Hope for a Rare Disease: Myelofibrosis

Listen Later
Naveen Pemmaraju, MD

“If you have a rare disease, it’s not rare to you.”

In this episode, Dr. Naveen Pemmaraju of MD Anderson Cancer Center in Houston, TX, sheds light on the latest treatment advancements for myelofibrosis. The pace of scientific discovery for rare diseases is moving at a fast rate, resulting in better outcomes for myelofibrosis patients.

*This episode was recorded on Rare Disease Day, February 29, 2024

DOWNLOAD TRANSCRIPT
CLICK HERE to participate in our episode survey.

Mentioned on this episode: 

  • Myelofibrosis
  • Myeloproliferative Neoplasms (MPNs)
  • Acute Myeloid Leukemia
  • CAR T-cell Therapy
  • Immunotherapy Fact Sheet (Bispecific Antibodies)
  • Stem Cell Transplant
  • TRANSFORM-1 trial
  • American Society of Hematology (ASH)

    • Additional LLS Support Resources: 

    • Information Specialists 
    • Financial support
    • Free telephone/web patient programs 
    • Free booklets 
    • Clinical Trial Support Center
    • Young Adult Resources
    • Caregiver support 
    • Caregiver Workbook
    • Survivorship Workbook
    • Online chats 
    • LLS Community 
    • Support groups 
    • Patti Robinson Kaufmann First Connection Program 
    • Free Nutrition Consultations

      • Support for this episode provided by: GSK plc.

      The post Hope for a Rare Disease: Myelofibrosis first appeared on The Bloodline with Blood Cancer United Podcast.

      ...more
      View all episodesView all episodes
      Download on the App Store
      The Bloodline with Blood Cancer United PodcastBy Blood Cancer United
      • 4.9
      • 4.9
      • 4.9
      • 4.9
      • 4.9

      4.9

      46 ratings

      More shows like The Bloodline with Blood Cancer United Podcast

      View all
      The NPR Politics Podcast by NPR

      The NPR Politics Podcast

      25,920 Listeners

      NPR News Now by NPR

      NPR News Now

      14,575 Listeners

      The Rachel Maddow Show by Rachel Maddow, MS NOW

      The Rachel Maddow Show

      37,256 Listeners

      Science Vs by Spotify Studios

      Science Vs

      12,159 Listeners

      Pod Save America by Pod Save America

      Pod Save America

      87,976 Listeners

      The Daily by The New York Times

      The Daily

      113,095 Listeners

      The ONS Podcast by Oncology Nursing Society

      The ONS Podcast

      206 Listeners

      Everything Happens with Kate Bowler by Everything Happens Studios

      Everything Happens with Kate Bowler

      5,134 Listeners

      Treating Blood Cancers by Blood Cancer United

      Treating Blood Cancers

      12 Listeners

      Life Kit by NPR

      Life Kit

      4,855 Listeners

      The Happiness Lab with Dr. Laurie Santos by Pushkin Industries

      The Happiness Lab with Dr. Laurie Santos

      14,390 Listeners

      Short Wave by NPR

      Short Wave

      6,578 Listeners

      Chasing Life by CNN Podcasts

      Chasing Life

      8,223 Listeners

      Consider This from NPR by NPR

      Consider This from NPR

      6,446 Listeners

      We Can Do Hard Things by Treat Media and Glennon Doyle

      We Can Do Hard Things

      41,675 Listeners