I'm Dying to Tell You

In Her ALS Shoes: A Chat with Leah Stavenhagen


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Listen in as I talk to Leah Stavenhagen, 28, about her ALS journey and the "In Her ALS Shoes" movement she created.   "I was an active 26-year-old so why did I feel like my feet couldn’t quite keep up?   She couldn’t find my knee-jerk reflex and suggested that I visit a neurologist. Naively, I didn’t understand why I was being referred to a neurologist over a podiatrist. This quickly changed. I learned that I had ALS and a 2-5 year life expectancy."   

That is from my guest, Leah.  In this episode, hear Leah share what it was like learning she had ALS, how it changed her perspective on life and  how she's empowering other young women.  Leah is leading a movement called "In Her ALS Shoes" where women who were diagnosed with ALS under the age of 35 are teaming up to support each other and to raise awareness that ALS can affect anyone.  Please consider supporting this movement by sharing this episode.  If you were diagnosed under the age of 35, share your story https://iamals.org/action/in-her-als-shoes/ here.  Detailing your ALS story will help other young women feel connected, relatable and less lonely.  Thank you for listening and sharing with a friend.  Hugs, Lorri

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If it's in your heart to rate and review this episode, please do.  It really helps new listeners find this special community.  Thank you.

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I'm Dying to Tell YouBy Lorri Carey

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