Fellow ALS widow Willy Grant, who lost her husband, Glenn, to the disease in November of 2024, joins Kelsie to talk about the ALS information gap, misdiagnosis, learning to accept help, the personal benefits of public vulnerability and adjusting to life on the other side of loss. 

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Calgarians Dan Pubben and Kate Tuff join Kelsie to talk about their life since Dan was diagnosed with ALS in the fall of 2024 at 42 years old, about navigating this disease with their two young children, about how we respond when bad things happen and about the reality of living in the hopefully many years between diagnosis and -- what remains an inevitability with this disease -- death. 

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Heather Lucier, who lost her daughter, Jessie, to ALS in 2019, joins Kelsie for three years after they last spoke to talk about caregiving, advocacy and what we do with our grief. 

Compass for Caregivers

Compass for the ALS Caregiver

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In March 2018, Jessie Ravnsborg was diagnosed with ALS. She was just  35 years old. She died just before her 37th birthday. In today's episode, our second about Medical Assistance in Dying (MAID), you’ll meet Jessie through her mom, Heather Lucier. This is a story about choosing joy, about wringing out all the good from life that you can for as long as you can and, when the joy can no longer compete with the darkness of a most insidious disease, choosing to say goodbye. It's about facing your mortality, about knowing what matters to you in life and about the bravery of understanding what it means when those things move beyond your reach. 

This episode of Sorry, I'm Sad was originally published in March, 2022. We are reposting it in advance of our next episode, which is a new episode with Jessie's mom, Heather, about ALS advocacy, what we owe the people we've lost and caregiving. 

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Kelsie is back with her first episode in more than a year to talk about navigating this new life since losing Chris.

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On Chris and Kelsie's 16th wedding anniversary, almost three months after Chris' death, Kelsie talks about life without her husband and best friend. 

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Kelsie shares updates on Chris' health, what his two-week stay in the ICU in December cost him in terms of function and independence, how the Snow family is adapting to life in the last six months and why Chris is not joining her for this episode.

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In October Chris' disease reached a tipping point and sent the Snow family into a months-long free fall. Now, more than four months since things started spiralling out of control, Chris and Kelsie sit down to talk about what happened in October, about losses of function that started to turn the tide of how their family works and about the trauma of repeated medical emergencies.

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Kelsie is back with an update on the Snow family and to read her most recent blog post, which can be found on her website, www.kelsiesnowwrites.com. 

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