Grammy-nominated, platinum-selling singer-songwriter Eric Paslay joins me to talk about about the night he drew my song idea out of a hat.

Eric brought his unique songwriting experience, "Song In A Hat" to Hop On A Cure's "Harmony for Hope"" event and something magical happened there.  My "Song In A Hat" idea was randomly drawn.  This led to me joining musicians Eric Paslay, Kristian Bush, Chris Gelbuda, Cyndi Thomson and DJ Goodman on stage to witness my song idea turn into an actual song - in under just 10 minutes.  My idea was "Come Into Our World."  My intent was to have a song created that would invite others to understand ALS and join our fight for a cure. Here we learn more about this master of music, talk about that evening and how we can wrap up the song and release to the world.  

Eric has made a significant impact on the music industry with his hit singles "Friday Night", "Song About a Girl", and "She Don't Love You".  He has written and co-written many hits for other artists, including Lady A, Rascal Flatts, Keith Urban, Amy Grant, Dierks Bentley, Charles Kelley and more.  

Eric co-wrote Jake Owen's "Barefoot Blue Jean Night", the Will Hoge/Eli Young Band song "Even If It Breaks Your Heart", and Love and Theft's "Angel Eyes" all of which were number 1 singles on the country charts. 

He was diagnosed with Type 1 diabetes at 10 years old, and uses his platform to advocate for diabetes awareness, inspiring and supporting others living with the condition.

Listen in to our heartfelt and powerful conversation bursting with HOPE.  Thank you for sharing with a friend.

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In this deeply moving episode, I sit down with Salym Liufau, a 33-year-old mother of four living with ALS, whose grace and honesty have touched thousands online. Salym opens up about adapting to a body that’s changing while holding tight to joy, purpose, and presence. We talk about motherhood in the face of uncertainty, the traditions she’s building for her children, the legacy she hopes to leave behind, and the truths she feels called to share while she still can. This conversation is tender, grounding, and a powerful reminder to live with intention, love boldly, and never postpone what matters most. Salym is also an active member of Her ALS Story, a non-profit organization specifically for women diagnosed with ALS before the age of 35.  Thank you for listening and sharing with a friend. Hugs, Lorri

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In this second part of my chat with 33-year-old widow Melanie Lang, we talk about her & her husband Tyler’s biggest miracle, their daughter.   Tyler only spent 6 weeks with his precious baby girl before he died of ALS at a young 33.

Melanie’s perspective & big heart shines through as she talks about using their platform “Don’t Waste A Day” to help other families in Tyler’s memory.  Her family will be raising funds to send ALS families on vacations that they wouldn’t experience otherwise.  

To learn more about Melanie’s first “Don’t Waste A Day” event, visit here:  https://www.dontwasteaday.org/

Listen in & share with a friend.  If it’s on your heart, leave a review to help others find this sweet message.  Hugs, Lorri 

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I catch up with 33-year-old widow Melanie Lang to share how she and her husband Tyler faced ALS with relentless honesty, deep faith, and a simple motto that became their North Star: Don’t Waste A Day!

If you’re navigating illness, grief, or the heavy unknown, this conversation offers a grounded way forward: focus on today, serve the people in front of you, and let purpose be practical. Listen, share with someone who needs strength, and leave a review to help others find this story.  

Hugs, Lorri 

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This Veterans Day episode brings together three service members living with ALS—Liz Fassler (Army), Ron Faretra (Air Force), and John Hudacek (Army)—to share how the discipline, teamwork, and purpose they learned in uniform now guide them through life with this disease. They talk candidly about the realities of ALS, the unique challenges and resources available to veterans, and the importance of building a strong support team. Through stories from the field and insights from daily life, they offer both practical guidance and a reminder that courage doesn’t end when service ends—it evolves.  Thanks for listening and sharing with a friend.  Hugs, Lorri

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In this Happy Hour Chat, I talk with Tina Cascio, Mira Hudson and Kelly McGinn, all young women who share their journey living with ALS after being diagnosed in their 20's and 30's.  John Driskell Hopkins of Zac Brown Band who is also battling ALS joins the conversation too. We discuss finding community, maintaining independence, and embracing joy despite a terminal diagnosis.  Tina has familial ALS with the SOD1 mutation and has been living with it for nearly five years.  Kelly was diagnosed two years ago and is balancing motherhood and ALS.  Mira had symptoms since age 14 but was misdiagnosed for years before her ALS diagnosis at 24.  John (Hop) continues performing with Zac Brown Band and will play at the Sphere in Las Vegas in December.  The ladies share their fun experience attending a retreat in Cape Cod with 40 other Her ALS Story members.  I love how they each emphasize the importance of community over isolation when battling this terminal illness.  Follow Her ALS Story and witness the incredible strength of this group.  Join John Driskell Hopkins for Harmony for Hope on October 18th in Atlanta, a fundraising gala for ALS research featuring world-class singer-songwriters in an intimate format.  Thanks for listening and sharing with a friend.  Hugs, Lorri

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This episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indie rock band Supermilk, who was diagnosed with ALS at just 38. Rather than despair, Jake felt relief—finally understanding the cause behind years of unexplained symptoms. As his physical abilities shift, Jake and his bandmates have chosen adaptation over retreat, pouring their energy into their recent album Lazy Teenage Boasts. Balancing terminal illness, mental health challenges, and a relentless creative drive, Jake leans into dark humor and online community to navigate the journey. His story is a testament to resilience, reinvention, and finding meaning through music in the face of life's harshest realities.  Thanks for listening.  Hugs, Lorri

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The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—four remarkable women who lost husbands and a sister to ALS—share their paths through grief toward finding purpose and even joy again.  Years after their losses, these women formed "Antiques Roadshow for ALS," a cycling team of women over 60 who donned pearls, vintage clothing, and tutus while raising over $28,000 for ALS TDI's  research. Their stories reveal the complex reality of grief—how it never truly ends but evolves into something you learn to carry alongside new experiences and memories.  These women candidly discuss experiencing depression, anxiety, and PTSD years after their losses, normalizing these ongoing struggles while demonstrating that healing doesn't mean forgetting.  For those currently caregiving or recently bereaved, their stories offer a glimpse into a future where community, purpose, and even joy remain possible. Enjoy the listen and thanks for sharing with a friend. Hugs, Lorri

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In this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation, Operation Ramp It Up, Que4Care and the Cincinnati Reds — a community who turned their ALS grief into life-changing support for others. From accessible vans to wheelchair ramps to lift chairs and patient care, these local nonprofits are honoring those they've lost to ALS, by providing crucial support to ALS families.  Although their capacities so far only allow them to meet the needs of local families, it's a beautiful example of what happens when we lead with love, faith and community.  These four Ohio/Kentucky based foundations have also formed a powerful partnership with the Cincinnati Reds for Lou Gehrig Day on June 2nd.   All MLB teams will be hosting their own Lou Gehrig Day on or around June 2nd as well.  Thanks for listening to this story of legacy, love, and community in action. Hugs, Lorri

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Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the charge to support families facing the same fight.  When Elin's husband, Larry was diagnosed with both ALS and FTD, her world changed forever.  In this episode, Elin shares how she navigated the overwhelming challenges of caregiving through two devastating and progressive diseases—often without a clear roadmap or coordinated support. After her husband’s passing, Elin turned her grief into action, becoming a fierce advocate for families facing similar dual diagnoses. Her story is one of love, resilience, and the power of transforming personal loss into lasting impact. Whether you're a caregiver, healthcare professional, or someone seeking hope amid hardship, this conversation offers insight, inspiration, and a call for greater awareness.  Thanks for listening and sharing with a friend.  Hugs, Lorri!

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