When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this episode, I bring together 3 others who are living with ALS to talk about their experiences with these tough conversations.  Here, I’m talking to Amy Stiens, Jim Plews-Ogan and Matt Klingenberg.  I am grateful for their willingness to chat about how they were told they had a terminal illness with no cure, how they told their children and friends and even the toughest conversations yet.  Amy, Jim & Matt share their advice on how to go about having "tough talks" like these as well.  Thanks for listening in and sharing with a friend.  Hugs, Lorri 
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In this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California.  She became reliant on a wheelchair for everyday mobility after she was child abused by her dad when she was 9 months old, resulting with a spinal cord injury.  I've been following her journey as she shows us that life doesn’t stop after you have been abused and have lost the ability to walk. Courtney shares how she believes the mind is the most important thing a person can have.  With that knowledge she is able to live a positive life after all she's been through.  She explains how she feels that she is meant to be where she is today.  I love her outlook and her strength and how she lives a full, rich life.  She has such a beautiful awareness and is using it to inspire others.  Courtney is on a mission to show others how strong your mind is when facing adversity.  She is an author at Push Living (PUSHLIVING.COM) an organization highlighting wheelchair lifestyle.  Thanks for listening in to our chat.  Stay connected on Instagram: https://www.instagram.com/imdyingtotellyoupodcast/?hl=en  Hugs, Lorri  

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May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness.  My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36.  They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?"  "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? "  "What's important now that wasn't before your diagnosis?"  "What makes you feel inspired or like your best self now?"  and "How are you dealing with the mental side of living with ALS."  Those are a few examples of questions they answer and generate a full conversation around.  Please consider sharing this episode to share their courageous spirits and to tell others about ALS.  Thank you. Hugs, Lorri  

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In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness.  May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I chatted with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness.  My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36.  They dig deep and open their hearts to answer your questions like, "Can you share about the moment you were diagnosed with ALS?"  "How do you find the strength day in and out to persevere and overcome fears, pain, negative emotions, etc.? "  "What's important now that wasn't before your diagnosis?"  "What makes you feel inspired or like your best self now?"  and "How are you dealing with the mental side of living with ALS."  Those are a few examples of questions they answer and generate a full conversation around.  Please consider sharing this episode to share their courageous spirits and to tell others about ALS.  Thank you. Hugs, Lorri  

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On this episode of  I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie.  We chat about the newly released book, “The Wisdom of Morrie.”   The book was written by Morrie Schwartz, recently edited and released by Rob.  The number one bestseller Tuesdays with Morrie was written from conversations with author Mitch Albom after Morrie was sick and knew he was in the process of dying from ALS.   However, this newly released book, The Wisdom of Morrie was written by Morrie before he was diagnosed ALS.   Rob rediscovered this manuscript that Morrie wrote about staying vibrant and connected for life.  Morrie explores living and aging joyfully and creatively.  Later life can be filled with many challenges, but it can also be one of the most beautiful and rewarding passages in anyone's lifetime.  Morrie draws on his experiences as a social psychologist, teacher, father, friend, and sage to offer us a road map to navigate our futures.  I hope you'll listen in and hear more from Morrie all these years later.  Hugs, Lorri

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 Here I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou Gehrig’s Disease.  John was diagnosed with ALS, a terminal illness with no cure in 2021.  John, also known as Hop, decided to go public with his ALS hoping his reach could result in awareness, action and ultimately support for an ALS cure.  He and his wife, Jennifer formed the Hop On A Cure organization which supports promising ALS research.  In this episode, I chat with John about, his start in music, how he became a part of the award winning Zac Brown Band and how he noticed something wasn’t right with his health on tour.  He shares intimate details about his thoughts right after diagnosis, telling his family, his daughters and more.  I chat with Jennifer about their foundation, Hop on a Cure.  John continues to perform and record with the Zac Brown Band as they are currently on tour. Thank you for listening and sharing with a friend.  Hugs, Lorri

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Here I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease.  Brooke was diagnosed with the terminal illness, ALS, at a young 33.   With the support of her family, friends, and co-workers, Brooke's been able to laugh in the face of ALS by using humor on social media..  Brooke created a TikTok account @LimpBroozkit to help explain what she  was going through without making it a heavy conversation.  Not only is creating TikTok videos about ALS a case of "laughter is the best medicine" right now, but Brooke is also educating others and creating new ALS awareness.   With millions of views, Brooke's ultimate goal is that her humor continues to boost others through any hard times.  Brooke said that after getting a terminal diagnosis, she felt a mix of shock and sadness and was depressed during the first couple of months.   Right now, Brooke's TikTok videos are helping her cope.   She hopes her videos can help start conversations to drive awareness, support and ultimately cures for ALS.  Check out Brooke's TikTok channel @LimpBroozkit .  Thank you for listening in and sharing with a friend.  Hugs, Lorri
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Here I talk to someone who has  ALS for over 25 years.  I reconnect with a former colleague from Kraft Nabisco, John Carthum.  It was a few decades ago when I heard John left the company for medical reasons.  I never knew what hand he was dealt that made him have to leave his career at such a young age until I was diagnosed with ALS in 2004.  That’s when I learned that it was also ALS that John was diagnosed with in 1995. 
Now he is outliving the typical 2 to 5 year death sentence that comes with ALS, also known as Lou Gehrig's Disease.  It's incredible that John has been living with ALS for 27 years now. I am so grateful that John decided to take me up on my invitation to chat for this episode.  I knew his precious insights would be a blessing to many.  Listen in and hear John share what it has been like living with a terminal illness with no cure for such a long time, how he and his wife decided to have children after his diagnosis and what keeps him living life to the fullest while struggling every single day.  Thanks for listening in and sharing with a friend.  Hugs, Lorri

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Here I chat with award-winning director/producer, Jared Callahan.  He shares the inspiration behind the film, SOMETIMES I SHAKE.  The documentary film follows PLNU music professor and jazz conductor Dan Nelson as he navigates his life and profession around an ever-increasing shake caused by his Parkinson's disease.  Then suddenly, Dan is devastated by the additional, and terminal, diagnosis of ALS. The film is an inspirational tale full of vigor, humor, and raw honesty, that follows Dan’s wild pilgrimage toward death, and along the way, discovering how to fully live. The film takes us through Dan's final days as he decides if he will marry the woman he loves, when to end his career in music, and how to invest the remaining months of his life.  Dan has since passed away, but hopefully you will listen in and be moved to experience his spirit by viewing the film, SOMETIMES I SHAKE.  Jared Callahan also founded and runs People People Media, an Emmy-nominated production company and has had projects premiere at the best film festivals in the world.  Thanks for listening and sharing with a friend.

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In this episode, it's just ME talking about LOVE :)
Here I mix it up a little and talk about what's on my heart.  This releases on Valentines Day, so talking about LOVE ... specifically 4 Easy Ways To Spread More Love.  I talk about the first few things that came to mind, Listen, Words, Time and Action.  I thought to myself, these seem so simple but realized I always need reminders, so why not share?  We all have the power to show others they are loved and not alone. There are no limits on love with those who are close or even strangers.  Listen in, open your mind & heart and reach out to someone with these in mind.  Thanks for listening and sharing with a friend.  Hugs and Love, Lorri

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