Listen in to my conversation with David Richman who rode his bike 5,000 miles to explore the emotional journey of cancer.  After losing his sister to brain cancer, David was led to do something incredible that can inspire us all.  In this chat we talk about his intense and unique fundraiser in his sister's memory which was writing a book, Cycle of Lives.  This book is the result of 15 people’s stories, 5,000 miles and a journey through the emotional chaos of cancer.  David shares what motivated him to deeply explore  emotional journeys with cancer and the various traumas in their lives that affected their experience.  I love how he pulled it all together in his book where the stories are interwoven amongst the narrative of David’s solo 5,000-mile bike ride to go meet the book participants.   He shares some of the interconnected stories of people overcoming trauma.  David generously donates 100% of the net proceeds of the book to various cancer-related charities picked by the book participants or their survivors.  Cancer and other diseases come with so much physical impact.  I love seeing how David was able to create a safe space to talk about the tough emotions that come with it.   Thanks for listening.  Hugs, Lorri  

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Listen in to my conversation with former Kansas City police officer, Sarah Nauser as we chat about  life and love while living with a terminal illness.  For eight years, Sarah earned high praise as a young, vibrant, rising star within the Kansas City Police Department.   She was living her dream until she was told she had ALS at the young age of 29.    Sarah, also a former body builder continues to be strong and determined.   In our conversation, we talked about life before ALS, her dream of being a police officer, her love for the Kansas City Royals, finding love after her diagnosis & even being a grandma at 33.  Sarah shares how she’s able to live a joyful life despite being diagnosed with a terminal illness.  Sarah has faced this devastating disease with a positive attitude and a resilience to focus on the good in her life.  "Your life can change in an instant like mine, don’t wait.  Be kind you never know the lives you may touch or the difference you can make," Sarah.  I hope you'll tune in to our chat and share it with a friend.  Thanks for listening.  Hugs, Lorri

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Here I chat with  13 year old Samirah Horton, aka DJ Annie Red who uses her music to spread an anti-bullying message.   This award winning DJ  is also a  rapper, author, motivational speaker and anti-bullying activist from Brooklyn, New York.   From the age of 6, Samirah was picked on by her peers for the things that made her different—her raspier voice, her unique sense of style, and her unwavering confidence in herself.   The way she decided to fight back was to use her love of music and make sure other kids knew they weren’t alone.   Now she’s combining her musical talents and her antibullying platform to reach kids across the country.   As she DJ's to a variety of audiences, her favorites to play include hip-hop classics as well as her own antibullying anthem “No You Won’t Bully Me.”     Samirah has been recognized nationally as, Time Kid of the Year Finalist,  H&M Kids Role Model, the President's Award 2022 and more.  DJ Annie Red is having a blast being the Kid Resident DJ at the Brooklyn Nets, playing basketball and creating more ways to get her positive message out in the world.  I'm excited to share this amazing teen with you.  Listen in and meet, DJ Annie Red!  Hugs, Lorri

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Here I catch up with David & Scott Lloyd, the brothers who created Racing for ALS.  Growing up, David and Scott loved racing and always talked about racing cars together.  As life happened, that desire got put to the side,  yet they kept putting off their dreams of auto racing.  That all changed in 2017, when David was diagnosed with ALS.  They realized quickly that their dream of someday buying cars and going racing for fun needed to happen now.   As they did that to simply have fun together, the generous people of the racing community quickly showed them that their racing could benefit more than just 2 brothers!   So now David and Scott are living their dream, even though ALS looms large in the rear view.   Racing for ALS has become a mission to raise funds and awareness for research and treatment of ALS.   So far, they have raised over $550.000 for ALS research.  This conversation is full of love, hope and the power of community.  Listen in and hear more.  Hugs, Lorri

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In this episode, I chat with college student John Sexton, CEO and Founder of LifeDrive.  What started as an idea to help his dad who has ALS, John now creates adaptive technology for people with disabilities in order to give them more independence.   John is an upcoming senior at the University of Notre Dame and next drum major for the Notre Dame Band.  All while being a full-time student and band member,  John has been fighting for his father's independence.  John's father, Shawn is battling ALS and John has been working for over 4 years to give him back freedom that ALS has taken away.  John founded LifeDrive in 2021 after realizing he could invent ways to increase his dad's independence through wheelchair control as his strength was declining from ALS.  John and his dad started brainstorming ways to help people living with ALS extend their freedom of mobility and improve their quality of life.  As a result, they created EyeDrive, CareDrive, and VoiceDrive technologies. These solutions give all individuals who face mobility challenges alternative power wheelchair control options to regain their freedom.  Now John leads the LifeDrive team hoping to change the lives of those who are going through what he and his family have gone through.  Listen in and hear more about this father-son initiative.  Thanks for being here.  Hugs, Lorri

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In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? "   More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions.  So in this episode, I chat with  Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland  as we go through each question submitted by listeners of this podcast.  Between us, our ALS diagnosis ages vary from 27- 47 and years living with ALS spans from 2 to 18 years, so it was great to have a wide range of experience to learn from.   I love the incredible support and curiosity for this unique episode.  We had such an amazing "round table" discussion, I decided to have 2 episodes so we could address all the questions.  In this part 2/2, we answer questions about mental strength, the grieving process, bucket list, sex/intimacy, thoughts on getting a trach, fears about what's to come, planning our own funeral and more.  If you missed part 1, we answered questions about fears of dying, mental health, survivor's guilt, what brings joy, boundaries and faith.  I hope you'll listen in and share with a friend to help us create more awareness of ALS.  Hugs, Lorri             
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In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? "   More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions.  So in this episode, I chat with  Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland  as we go through each question submitted by listeners of this podcast.  Between us, our ALS diagnosis ages vary from 27- 47 and years living with ALS spans from 2 to 18 years, so it was great to have a wide range of experience to learn from.   I love the incredible support and curiosity for this unique episode.  We had such an amazing "round table" discussion, I decided to have 2 episodes so we could address all the questions.  In this part 1/2, we answer questions about, fears of dying, mental health, survivor's guilt, what brings joy, boundaries, faith and more.  Part 2 will release as the next episode where we answer questions about mental strength, the grieving process, bucket list, sex/intimacy, thoughts on getting a trach, fears about what's to come and planning our own funeral.  I hope you'll listen in and share with a friend.  Hugs, Lorri

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In this episode, I talk to Kim Nuxhall who created the Joe Nuxhall Miracle League so that everyone with any challenge can play the game of baseball.  Kim is the Chairman of the Board of Directors for the Joe Nuxhall Miracle League.  He joins the podcast to tell the powerful story and mission behind his father's legacy projects.  Kim's dad,  Joe Nuxhall, was the youngest player to ever pitch in the MLB at the ripe age of 15.  After his professional baseball career, Joe joined Marty Brennaman in the radio broadcast booth for the Cincinnati Reds, forming a dynamic 31-year duo that has gone unmatched to this day.  Joe brought energy, honesty, and an unapologetic joy to the radio that the entire Cincinnati community embraced. After his passing in 2007, Kim continued to follow their hearts and vision by creating the Joe Nuxhall Miracle League in 2012.  The Miracle League aims to revolutionize and set the standard for creating recreational and athletic opportunities for people with disabilities.  With two rubber baseball fields, a unique putt putt course, and more, the Joe Nuxhall Miracle League aims to provide "every individual with every challenge every chance to play the game of baseball."   Kim is living out his dad's legacy and is one of the most compassionate people I know.  Listen to our conversation and see how the Miracle League is so much more than baseball.  Thanks for listening and sharing with a friend.  Hugs, Lorri
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Here I chat with Alison Burell and David Stanley, who each lost the love of their life way too early.  Alison's husband Cory Burell, passed away from ALS at the age of 35 after a valiant fight with familial ALS.   David's wife Angela Stanley, died from ALS at a young  50 years old.   Through the ALS community, Alison and David met after they each lost their person.   Without even searching for love, their friendship grew and love found them.   Now they are building a new life together and sharing their journey through their new podcast,  "I Lost My Person."   Through the podcast, they chat about widowhood, juggling family responsibilities, a long distance relationship and how they are chasing  joy.   Their primary theme in their episodes illustrate how it's possible to find love after loss and keep the person you've lost in your life as well.   It's heartwarming to see how love is working through these two.  I hope you'll listen in and share with a friend.   Hugs, Lorri
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In this episode, I talk to Tracy Croxen and her daughter, Jocelyn who are surviving cancer and helping others navigate their journeys.  In September 2017, Tracy was diagnosed with ovarian cancer.   Almost exactly to the day two years later, in 2019, her 7-year-old daughter Jocelyn was diagnosed with a rare form of cancer called T-Cell Acute Lymphoblastic Leukemia.  Tracy said, “I really think I went through my cancer journey to prepare me for hers.”
Now, they are sharing their journey through cancer and survivorship to bring awareness, support and hope to others.   I love Jocelyn’s sweet outlook and the strength she’s gained from her mom.   Now, 10 years old, Jocelyn is simply amazing and resilient.   Listen in to this mother-daughter team and be encouraged to fight!   Thanks for listening and sharing.   Follow:  https://bit.ly/ImDyingToTellYouInstagram

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