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In Episode 33 of the Know Stroke Podcast, we were joined by Orlena Shek.Orlena Shek is a former in-house software technology licensing attorney. She lives in the San Francisco Bay Area with her husband and two young children. After experiencing major hemorrhagic stroke in late 2011 due to a rare congenital condition called Moyamoya Disease, she put her law career on hold to focus on her rehab and her family.The numbers that she shares speak for themselves to the long and turbulent journey she went on.14 ambulance rides within 5 months6 week hospitalization at Stanford. 3.5 weeks in a medically induced coma3 different acute rehab hospital stays ranging from Marin to Santa Clara County.Two 10 hour plus brain surgeries, a week apart.One thousand eight hundred paper origami cranes folded by countless co-workers, neighbors, and friends. Some of whom are on the call here tonight. More than a 100 nights spent hospitalized, away from home.  2 children:1st born pre-Stroke, 2nd born post-Stroke.1 trip to Las Vegas by myself for a Bachelorette party.Orlena shares with us today that journey and what led her to authoring a book titled "Emerging from the smoke, a collection of warrior voices"This book is a beautiful collection of short poems from 30+ stroke survivors.You can learn more about Orlena's story, and purchase here book here: https://www.storiesofstroke.com/orlena-shek/This episode can be streamed on our YouTube Channel here:https://youtu.be/4FdR39I9xLgShow Info:Music intro jingle credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on this episode Thank you Caroline!Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to be a guest on the Know Stroke Podcast

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In episode 32 of the Know Stroke Podcast, we were joined by Professor Nick Ward.About our Guest:Professor Ward is a consultant neurologist at National Hospital for Neurology and Neurosurgery and a professor of clinical neurology and neurorehabilitaion at Queen Square UCL Institute of Neurology. His special clinical interest is in stroke and neurorehabilitation, focusing in particular on recovery of arm and hand function through the Queen Square upper limb neurorehabilitation programme. He is the founder of the Neurorehabilitation Online N-ROL project. He is co-founder of the UCLP Centre for Neurorehabilitation, co-editor Oxford Textbook of Neurorehabilitation and associate editor of the journals Neurorehabilitation and Neural Repair and Journal of Neurology, Neurosurgery and Psychiatry.Professor Ward leads a research program to help understand the mechanisms of upper limb impairment and treatment after stroke. In particular, he uses structural and functional brain imaging to study the relationship between brain network reorganisation and recovery of movement after stroke.This episode is also available to stream on our YouTube Channel.Special mentions:Emilia Clark's charity SameYou for Brain injury and stroke recoveryGripable training platform for upper arm rehabilitationCatherine Doogan, Post Doc and Clinical Psychologist who is working on developing Digital Interventions in Neuro-Rehabilitation (DINR)In the news:A call for architect students to help design the Next Generation of Stroke Rehabilitation Centers Show Info:Music intro jingle credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777. Once Jake gets settled in to college life at university we’ll be glad to have him back at the helm producing our podcast again! You’ll be missed here Jake on so many levels, thank you!Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on this episode Thank you Caroline!Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to be a guest on the Know Stroke Podcast

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Know Stroke Podcast Episode 31Interview with Ralph Preston Founder of Stroke BuddiesAfter a stroke, Ralph Preston leveraged over 40 years of professional video experience to continue to do good with his camera. He “turned the lens on himself “ and is developing high-quality videos for stroke survivors and for local non-profits. About our Guest:Preston is the founder of Stroke Buddies: By and For Stroke Survivors, a Facebook group for stroke survivors that currently has 8,000 members and is growing every day. Ralph built this community from the ground up so survivors can seek answers, learn with educational resources, and receive support. Last year, he launched a weekly virtual stroke survivor support group meeting in association with MedRhythms and is assembling a team of medical professionals, PTs, OTs, physicians, neurologists, and neuroscientists who have suffered stroke themselves and are interested in sharing their stories and knowledge at these support group meetings. Ralph also started a discussion show that is shared with the Stroke Buddies community and is called Stroke Roadmap. The purpose is to help those who are transitioning their recovery from PT to home therapy. Additionally, Ralph develops and shares dozens of home therapy exercise videos from his YouTube channel to improve at-home recovery.  This year Stroke Buddies was granted non-profit status, so now he is off to raise money and see if he can fundamentally change stroke recovery.Show Resources:Stroke Buddies Group on FacebookRalph Preston Videos on YouTubeShow Credits:Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777Be sure to give the show a like and share, +follow and connect with us on social or contact us to be a guest on the Know Stroke Podcasthttps://www.know-stroke.org

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Know Stroke Podcast Episode 30Stroke commonly damages motor function in the upper extremity (UE), leading to long-term disability and loss of independence in a majority of individuals. Rehabilitation seeks to restore function by training daily activities, which deliver repeated UE functional motions. The optimal number of functional motions necessary to boost recovery is unknown. This gap stems from the lack of measurement tools to feasibly count functional motions. Today's guest is Dr. Heidi Schambra from NYU Langone. She and her team at the Mobilis Lab, out of NYU Langone developed the PrimSeq pipeline to enable the accurate and rapid counting of building-block functional motions, called primitives. PrimSeq uses wearable sensors to capture rich motion information from the upper body, and custom-built algorithms to detect and count functional primitives in this motion data. They showed that their deep learning algorithm precisely counts functional primitives performed by stroke patients and outperformed other benchmark algorithms. The study also showed patients tolerated the wearable sensors and that the approach is 366 times faster at counting primitives than humans. PrimSeq provides a precise and practical means of quantifying functional primitives, which promises to advance stroke research and clinical care and to improve the outcomes of individuals with stroke.In our discussion we covered how this tool can translate into rehab happening in the clinical setting, a patient's home, and how insurers think about reimbursing stroke rehab. About our guest:Dr. Heidi Schambra is an Associate Professor of Neurology and Rehabilitation Medicine, Director of the Division of Neuro-Epidemiology, Director of Research Strategy in Neurology, and Director of the Mobilis Lab. Dr. Schambra received her BS in neuroscience from Brown University and MD from Emory University. She completed her training in neurology at Harvard-Partners and in neurorehabilitation at Burke Rehabilitation Hospital. She also completed a postdoctoral fellowship in motor learning and noninvasive brain stimulation with Dr. Leonardo Cohen at NINDS/NIH. Dr. Schambra was on faculty at Columbia University until 2016, when she joined NYU Langone. When not in the lab, she can be found taxonomizing clouds, cute-aggressing her pets and husband, and menacing New York on a Citibike.Watch this Episode on YouTube: https://youtu.be/PUGDDVrxjGgIn the news:Frequent napping may b

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Know Stroke Podcast S4E4In the news: It’s Hot- Tips to Know Avoid Heat StrokeAnnouncements: Health Podcast Network move is completeWhat’s Next? In this brief episode the co-hosts connect on a podcast catch-up to explain more about their recent move to expand the reach of the podcast via the Health Podcast NetworkAbout the Health Podcast Network:Health Podcast Network features authoritative shows, hosts and guests who take on the tough topics in health and care with empathy, expertise and a commitment to excellence. We are one of the largest and fastest-growing collections of high-quality health podcasts.Health Podcast Network connects content creators, engaged listeners and organizations working to improve health and care for people around the world. From clinicians and executives, to investors and inventors, and everyone in between, we help people discover and tune into the podcasts that matter most to them.Health Podcast Network is the place to discover the shows, hosts and guests providing original programming that covers a range of topics facing the health sector in creative, engaging episodes.Tune in to our show here on the health Podcast Network:https://healthpodcastnetwork.com/show/the-know-stroke-podcast/Call to Action:  Get involved in research for our partnership on stroke education with a new Health Unmuted short form podcast in development. Take our interest survey here:https://www.know-stroke.org/health-unmuted-strokeWatch this Episode: https://youtu.be/ExwAS1YknsgIn the NewsWe discuss heat stroke and knowing the warning signs:Throbbing headacheDizziness and light-headednessLack of sweating despite the heatRed, hot, and dry skinMuscle weakness or crampsNausea and vomitingRapid heartbeat, which may be either strong or weakRapid, shallow breathingBehavioral changes such as confusion, disorientation, or staggeringSeizuresUnconsciousnessHeat stroke is a medical emergency and you should call 911 immediately. Read more here:https://www.webmd.com/a-to-z-guides/heat-stroke-symptoms-and-treatmentWhere we’ll be next:Podcast Events Coming Up:David will be a guest on Stroke Buddies Live Event with Ralph Preston on July 26th at 11am https://www.youtube.com/watch?v=izfb7EY6zIU and later that week on Brains with Brian a MedRhythms live event with Brian Harris on July 29th https://medrhythms.com/brains-with-brian/Credits:Music Show Intro Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777Connect with us on social or contact us to be a guest on the  Know Stroke Podcast

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Know Stroke Podcast -S4E3-Henry Hoffman

On this episode we were joined by Henry Hoffman,MS,OTR/L co-inventor and co-founder of Saebo, Inc. We were introduced to Henry through Dr. Carolyn Brown, a previous guest of the podcast in season one.

Saebo, Inc. is a medical device company primarily engaged in the discovery, development and commercialization of affordable and novel clinical solutions designed to improve mobility and function in individuals suffering from neurological and orthopedic conditions. With a vast network of Saebo-trained clinicians spanning six continents, Saebo has helped over 100,000 clients around the globe achieve a new level of independence.

About our Guest:

Henry graduated from D’Youville College in Buffalo, NY in 1997 with a Masters degree in occupational therapy. Since graduation, he has worked in a variety of settings including home health, acute, sub-acute, and outpatient rehab. Prior to leaving Burke Rehabilitation Hospital in New York, he worked as a clinical specialist in orthopedic medicine and manual therapy of the upper quadrant. Henry left Burke in the fall of 2002 to co-launch Saebo.

This was a great discussion and as co-hosts we share a common mission with Henry to continue to dispel the believe that stroke recovery has an end when a “plateau” is reached. Listen in to learn how Henry and his team are on a mission to offer new affordable treatment options that deliver tangible results, and offer hope and support for continued recovery and improved function.

Learn more about Saebo’s mission and connect with Henry here.

Watch Episode on YouTube: https://youtu.be/E-rsCdtJ1SM

In the News mentions: 

Neurology Live

Show Credits:

Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777

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Know Stroke Podcast S4E2 Dan KendallIn today's episode we are joined by Dan Kendall. Dan is the founder and Managing Director at Mission Based Media. Dan has 20+ years experience in growing profitable and sustainable businesses in health technology, mobile and cloud computing, and telecommunications in domestic and international markets. In a change of pace, this discussion does not focus solely on stroke. Instead we talk about the impact that podcasts can make in the transition of care for patients and caregivers of not just stroke, but all conditions. Highlights from the episode:In the News:Otago Daily Times : Stroke Victims Asked About Care ExperiencesBrain & Life: Lindsey Vonn Describes Her Mother’s Inspiring Strength After StrokeIntroduction to the OG of Healthcare Podcasting - Dan KendallWhat led Dan to take a mission driven pathway to healthcare podcastingA lived experience of a caregiver to his daughter being diagnosed with Type1 Diabetes Why podcasts should be incorporated into a discharge Health Unmuted: A mini-series of short episodes focused on the specific conditionsWhat would a post stroke mini series look like?Announcement of a partnership between Health Unmuted and Know Stroke to develop a mini-seriesWhat does the evolution of podcasting look like over the next 5 years?Dan is open to anyone who would like to connect and learn more about his mission. You can reach out to him using the links below.Linkedin: https://www.linkedin.com/in/dankendall/Twitter: http://twitter.com/healthtechdanShow Credits:Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777Be sure to give the show a like and share, +follow and connect with us on social or contact us to be a guest on the  Know Stroke PodcastFor more information about joining our show or advertising with us visit: https://enable4us.comSupport the show

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Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Know Stroke Podcast S4E1 Jordyn Sims Pierce MS, CCC-SLP, ATP Vice President, Clinical Operations & Development Constant Therapy

In this kickoff episode to Season 4  (not 3 like I mentioned at the start of the show!*) we were fortunate to bring on Jordyn Sims Pierce, who is a Speech-Language Pathologist & Assistive Technology Specialist.  She serves as the Vice President, Clinical Operations and Development at Constant Therapy Health.   In addition to her role on the Constant Therapy team, Jordyn also is the Founder and Director of Pierce Speech, Language, and Learning Center in Lenox MA which is where we caught up to her for the recording of this podcast. To watch this episode and get a glimpse of the Berkshires too go to our YouTube Channel: https://youtu.be/mKjw3B3Df7sMore about Jordyn:Jordyn is an accomplished SLP professional and (like Mike and I) we found out she is also a rehab tech geek as well! We encourage you to learn more about Jordyn by joining us for this episode and be sure to check out her impressive bio for more professional accomplishments and contributions she has made in her field.  https://piercespeech.com

More about Constant Therapy:The mission of Boston based Constant Therapy is to help reimagine and improve access to therapy and recovery through their award-winning cognitive, language, and speech therapy mobile app and next-generation digital therapeutics platform. https://constanttherapyhealth.comIn the News Resources:

International Stroke Recovery and Rehabilitation Alliance

The Brain Bar (Share Your Stroke of Genius)

*[Personal Sidebar]- Even with the flub at the intro it was great firing up the pod mics and getting back to recording live podcast sessions again with my co-host Mike Garrow and learning more what’s the “craic” with Mike.  We’ll have more great announcements coming later this season as well with a focus on rehab technologies, more survivors and health professionals that are making ripples in the stroke community and recovery industry to encourage change and improve stroke outcomes. Mike dropped one teaser on this episode on how we are planning on growing the pod via the Health Podcast Network and expanding our reach this season.  More to come in the next episode!

Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777

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Today is the start of World Stroke Month, celebrated throughout the month of May. In this episode we are going to share a discussion we had with Carolyn Brown, Founder of Stroke OT and Marina Borukhovich of YourCoach at the Rehab Tech Summit on March 3rd. Watch full episode on our YouTube ChannelThis past week there was news that Noom inc, a weight loss app will be laying off a quarter of their health coaches. While this is devastating  for those coaching losing a job, it highlights just what Noom was missing - personalization.  Mike will speak to some of his thoughts on what else led to this decision for Noom, and what it means for health coaching to work in stroke rehab.We are excited to start Season 4 soon and  share more about what it means for us to be apart of the Health Podcast Network.For more information about joining our show or advertising with us visit: https://enable4us.comSupport the show

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Know Stroke Podcast Season3 Episode7Welcome to the Know Stroke Podcast.  I’m your co-host David Dansereau flying solo in this episode! If you like the show leave a review on the Apple podcast app and subscribe on your favorite podcast platform.  And if you’d like sponsor a show contact us through links below in our show notes.  In this episode and on this #WorldHealthDay recording we are talking all things health as it relates to  Stroke “In the News” including:7000 Steps for Health?Strokes and Health EquityAFib and StrokeAn update on Our Boston Marathon episode guestsAnd a plea for help finding my co-host!All coming up in this episode….Mentions on this show: First thank you to UConnHealth for having me for their March Stroke Support Group- I certainly hope we picked up a few podcast fans that are listening today-we had a great conversation around strategies to get moving after a stroke and what simple tools and resources you might try to get your brain and body back in balance.Thank you to Brooke for the invite, ( a guest on a previous episode of the show and by the way does a great job providing resources for her stroke support group, very impressive Brooke! Listen to Brooke's Interview  https://www.buzzsprout.com/1751132/9542853Lester Leung Tuft’s Medical Center Episode Caroline and Travis Boston Marathon EpisodeProduct Mentions:KardiaMobileApple Watch Series 7 with ECGHere’s the Resources Links to the "In the News" this Week:How many steps should you take a day? Hitting 7,000 may reduce risk of early death, study says:https://www.usatoday.com/story/news/health/2021/09/16/how-many-steps-should-take-per-day-study-death-risk/8321904002/Are strokes a social justice issue? A new study suggests they could be.https://www.newswise.com/articles/are-strokes-a-social-justice-issue-a-new-study-suggests-they-could-beA-Fib Detected in Nearly Three in 10 Cryptogenic Stroke Patientshttps://www.physiciansweekly.com/a-fib-detected-in-nearly-three-in-10-cryptogenic-stroke-patientsOur Top Gun ACE Producer:We wouldn't be able to get these episodes churned out so quickly without our great podcast producer! Thank you Jake! Music Credit and Podcast Production by Jake Dansereau, connect at JAKEEZo on Soundcloud  @user-257386777Connect with the Know Stroke Podcast Hosts:Please connect with us on social.  We appreciate your comments.  We are here to help you!https://www.enable4us.comhttps://twitter.com/Enable__Ushttps://www.instagram.com/enable.us/Thanks For Listening!For more information about joining our show or advertising with us visit: https://enable4us.comSupport the show (https://paypal.me/SmartMovesPT)

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Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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