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Welcome to episode 52 of the Know Stroke Podcast. In this episode we're joined by Stacie Broek, author, blogger, stroke survivor, overachiever, mother of 3 & invisible disabilities advocate. Stacie shares her powerful story of surviving a stroke while in Japan, and her work to support other survivor's and their family through a model of passion based therapy.Visit her website here - https://www.staciebroek.com/Family 2.0: The Caregivers Guide to Stroke Recovery - https://passionbasedtherapy.thinkific.com/courses/caregiver-guide-to-stroke-recoverySee her advocacy with Philips Healthcare here - https://youtu.be/NmuoQvinnYwWatch this episode on YouTube: https://youtu.be/CmaHCRmYj-MShow Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website to apply here: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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In Episode 51, we were joined by Marc Powell to speak about the ground-breaking neuro-technology he and his team at Reach Neuro are working on to restore arm and hand movement in patients who survived severe strokes.Globally, every fourth adult over the age of 25 will suffer a stroke in their lifetime, and 75% of those people will have lasting deficits in motor control of their arm and hand, severely limiting their physical autonomy.In April 2023, the FDA granted breakthrough device designation for Reach Neuro’s Avantis, a platform that delivers small electrical impulses to the spinal cord to restore shoulder, arm, and hand movement to post chronic stoke patients.The Avantis system is built to restore a patient's ability to control movement directly, giving them not only immediate relief but also allowing it to be possible for them to return to therapy. Early evidence has shown the effectiveness of the system in patients with chronic stroke up to 9 years poststroke, outside of the 6 month window where existing therapies are typically used.Connect with Marc on Twitter: @marcppowellVisit the Reach Neuro Website: https://www.reachneuro.com/Show Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website to apply here: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook

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Episode 50 of the Know Stroke Podcast is here! This has been a milestone we've had our eye on for a few months now and we're super excited to share this episode with you. We start off with an introduction from Mike and David speaking to some of the feedback and impact they've received since launching the podcast - these stories are what keep us going.In this episode we were joined by Dr. Christopher Richards. He is the Medical Director of the UC Health Mobile Stroke Unit and Assistant Professor in the Department of Emergency Medicine at the University of Cincinnati College of Medicine. Dr. Richards and his team work with 15 partner fire/EMS departments across Greater Cincinnati to bring emergency department-level stroke care to community members who need it through a mobile stroke unit.Episode highlights:The rich history of innovative stroke care at UC HealthBringing the stroke unit to the curbside with the UC Health Mobile Stroke UnitAnalyzing data from 911 calls to better understand how people describe stroke symptomsStandardizing MSUs into the stroke care of survival nationallyBalancing the clinical outcomes with cost-effectiveness for Mobile Stroke UnitsFollow Dr. Richards on Twitter @CTRMDMSShow Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website to apply here: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube | Facebook

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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About this Episode:For episode 49 of the podcast we sat down with Sarah Belson, International Development Manager at the World Stroke Organization; leading, developing and implementing a program of capacity building activities for new and emerging patient stroke support organizations (SSOs) around the world.Some of the highlights from our interview:Global mapping of SSOs: One of the key challenges that stroke patients and their families face is a lack of awareness and support for their condition. To address this, the World Stroke Organization has been working to map SSOs around the world and develop a comprehensive database of resources and contacts for patients and their families.Framework for long-term sustainability: Another challenge that SSOs face is maintaining their operations over the long term. To address this, the World Stroke Organization has developed a framework for building capacity and ensuring the sustainability of SSOs. This includes training and support for organizational development, fundraising, and advocacy.Stroke Connector: Stroke Connector is an online platform developed by the World Stroke Organization to connect stroke survivors, caregivers, and advocates around the world. The platform includes a directory of SSOs, resources for patients and their families, and a forum for sharing experiences and best practices.Collaboration with SAFE: The World Stroke Organization has also been working closely with the Stroke Alliance for Europe (SAFE) to support Life After Stroke programs across Europe. This includes training and capacity building for SSOs, advocacy for better stroke care and support, and raising awareness about the impact of stroke on patients and their families.Overall, the World Stroke Organization's efforts to support SSOs around the world are crucial for improving the lives of stroke patients and their families, and for raising awareness and advocacy for better stroke care and support.Links that were mentioned in todays episode:https://www.world-stroke.orghttps://www.world-stroke.org/what-we-do/sso-capacity-buildinghttps://www.world-stroke.org/what-we-do/sso-capacity-building/stroke-connectorhttps://www.safestroke.euShow Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.Until next tim

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In episode 48 we sat down with stroke survivor and accomplished entrepreneur Tim Whitmire. Tim co founded the largest free men's fitness movement in the US. He speaks to us about how he grew a community built around fitness, fellowship, and faith into the largest mens' fitness movement in the US, and how those pillars transferred into his rehab journey.

About our guest:Whitmire started as a freelance journalist, then got a job at the Associated Press and covered Harvard Men’s Basketball. He moved to the Providence Bureau of the Associated Press and eventually to New York City. He was transferred to Lexington, Kentucky to work as a sports writer and moved to Charlotte, North Carolina after that. He worked at the Charlotte Observer and then returned to the Associated Press to work as the head of the Charlotte Bureau until 2006. Tim Whitmire was working for the AAP when he decided to look for work in Charlotte, NC. He ended up getting hired in a marketing and business development role at a sell side and investment bank. He then co-founded a firm called Black Arch Partners, where he worked for a few years. After leaving the second bank, he found his way into his current work as an executive strategy consultant. Will then asked him about his nonprofit, F3 Nation. The Mission of F3 is to plant, grow and serve small workout groups for men for the invigoration of male community leadership. 

Show highlights:

• Forming the movement of F3 Nation
• From 5am workouts to stroke rehab
• How Fitness, Fellowship, and Faith impacted Tim's recovery
• The truths of post stroke depression

Show Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast. Thank you Caroline!

Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. 

Visit our new website to apply here: https://www.knowstrokepod.com/

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Watch this episode on YouTube:https://youtu.be/S51KzH06BvA

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Know Stroke Podcast Bonus EpisodeAbout the AHA/ASA Voters’ Choice Hero Award and How to Vote for show co-host Mike GarrowThe Voters’ Choice Hero award nominee link to vote for Mike is here:https://heroes.stroke.org/michael-garrow/ Voting is open from 8 a.m. Central on March 8 to 8 p.m. Central on March 22. All winners will be announced the week of April 24.Please cast your vote for Mike and use the shareable links to encourage others to vote for Mike as well!If you’re 18 or older and have a valid email address, you can cast a vote for your favorite finalist once every 24 hours. If you try to vote more often or with multiple email addresses, your votes could be removed.Confirm your vote by email-If you don’t see a confirmation email in your inbox right away, please check your junk email folder.About MikeMichael was 6 weeks old when his mother had a stroke — unexpectedly disrupting their lives and showing him how disconnected survivors can feel. It inspired his health care career and sparked a passion to change the stroke continuum of care. Michael is co-host of the Know Stroke Podcast, an international podcast in which he and his co-host David Dansereau use their lived experience with stroke to amplify the voices of survivors, caregivers, medical professionals and researchers from around the world.You can listen to episode one here for more on Mike's story:https://www.knowstrokepod.com/podcast/episode/4c1ecb33/lets-know-stroke-the-co-hosts-introduce-the-know-stroke-podcastShow Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast. Thank you Caroline!Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website to apply here: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube

Support the show

Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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In 2020, William Kyler Lewis, 15, was riding in the car with his mom in College Station, Texas, when he suddenly turned to her confused.His head hurt, he was sick to his stomach and his vision was blurred. Soon, he couldn’t remember anything for more than a few seconds.After his mom rushed him to the pediatrician, he got a shot and was told to go home. Instead, his mom drove 1½ hours to a children’s hospital in Houston. Nurses there thought Kyler had taken drugs, but his mom insisted no, he was not that type of kid, and something was very wrong. A CT scan revealed Kyler had an acute spontaneous intracranial hemorrhage from a brain arteriovenous malformation (AVM) that he unknowingly had when he was born. A brain AVM is a condition that is not inherited. AVMs are a random occurrence due to a gene malfunction in utero where a mass of arteries connect directly to veins.Kyler received lifesaving external ventricular drain (EVD) surgery to control the fluid build-up in his brain. After the stroke, memory and neuro fatigue became a big problem. Kyler has undergone radiation and chemotherapy and takes medication for epilepsy, headaches, dizziness, weakness and tremors.Yet, Kyler is inspiring many. He uses local news, community functions and social media to educate the public that a child can have a stroke, too. He also organizes walks to highlight the importance of recognizing the symptoms of a pediatric stroke.Kyler’s Facebook group, “A Cure for Kyler,” his CaringBridge page and YouTube channel educate and inspire pediatric stroke survivors by documenting his recovery.His video, “Being You after an Aneurysm/AVM Rupture,” and his family’s Facebook page, “AVM Alliance: A Cure for Kyler and Friends,” share stories of other hemorrhagic stroke survivors and educate people about symptoms and conditions.Links:Cxnadvisory.comhttps://www.f3metro.com/Freed to Lead CONTACT INFO:https://www.linkedin.com/in/tim-whitmire-7955145/Twitter: @trwhitmire_OBTShow Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast. Thank you Caroline!Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Episode 46: In this weeks episode we sit down with a Dr Eva Mistry, assistant professor of clinical neurology and rehabilitation medicine at the University of Cincinnati in Ohio. Dr Mistry was announced the 2023 winner of the Robert G. Siekert New Investigator Award in Stroke. The award encourages new investigators to undertake or continue stroke-related research. Mistry's award-winning presentation (Abstract LB18), "Blood Pressure After Endovascular Stroke Treatment (BEST)-II: A Randomized Clinical," was presented at the International Stroke Conference in February 2023. Additionally Dr Mistry is the principal investigator of a new study with $9.6 million funding support from the Patient-Centered Outcomes Research Institute (PCORI) that will examine the effectiveness of a stroke treatment for patients with a pre-stroke disability, one of the first studies to focus on this population.Some of the topics we spoke about:Research opportunities with the Mobile Stroke Unit at UC HealthExamining stroke treatment for people with disabilitiesBP Management After Endovascular Stroke TreatmentA magic wand approach to advancing stroke researchShow Mentions:University of Cincinnati Health Show Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast. Thank you Caroline!Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website to apply here: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTubeWatch this episode on our YouTube Channel:https://youtu.be/GFnWm4JxGFU

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Episode 45: In this weeks episode we sit down with a David Putrino, Director of Rehabilitation Innovation for the Mount Sinai Health System in NYC. David brings us on a journey from his childhood in Western Australia, to the big city lights of NYC and his human-centered approach towards clinical research and innovation in neuro rehabilitation.Some of the topics we spoke about:How an injury while playing Australian football led to a passion for PT & human-centered careMoving to the United States to study the emerging field of Cognitive NeuroscienceVirtual Reality to assist stroke rehab in the home and clinicThe possibilities that Brain-computer interfaces can have in stroke recoveryAbout our Guest:David is a physical therapist with a PhD in Neuroscience. He is currently the Director of Rehabilitation Innovation for the Mount Sinai Health System, and an Associate Professor of Rehabilitation and Human Performance at the Icahn School of Medicine at Mount Sinai. He develops innovative rehabilitation solutions for adults and children who need better health care accessibility. He also works with high-performance partners such as Red Bull, the Brooklyn Nets NBA team, and the U.S. Olympic team to use evidence-based technologies to improve athletic performance. He is the author of Hacking Health: How to Make Money and Save Lives in the HealthTech world. In 2019, he was named "Global Australian of the Year" for his contributions to health care. Show Mentions:Abilities Research CenterMindMazePutrino LabSynchronShow Credits:Music intro credit to Jake Dansereau, connect at JAKEEZo on Soundcloud @user-257386777.Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast. Thank you Caroline!Until next time, be sure to give the show a like and share, +follow and connect with us on social or contact us to support us as a show sponsor or become a guest on the Know Stroke Podcast. Visit our new website to apply here: https://www.knowstrokepod.com/Connect with Us and Share our Show on Social:Website | Linkedin | Twitter | YouTube

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Episode 44: In this episode we sit down with Kim Malkin, Angels Initiative Lead for Australia to discuss the work she and her team are doing across the region to improve stroke care delivery. The Angels Initiative was launched in 2016 by Boehringer Ingelheim in partnership with the European Stroke Organisation (ESO), the World Stroke Organisation (WSO), the Stroke Alliance for Europe (SAFE), and many other national stroke societies, companies and health institutions. Their mission is aimed at reducing the burden of stroke for countless patients by working with hospitals, stroke teams, societies and individuals to build an innovative network of stroke-ready hospitals worldwide to reduce treatment delays and provide patients with the optimal standard of acute stroke care.About our guest:A move to Australia in 2004 provided not only more sunshine for Kim but also the opportunity to begin a long and diverse career with Boehringer Ingelheim – over a decade of which is in improving outcomes for stroke patients through the delivery of innovative preventative and acute stroke treatments. The company’s mission to improve the health and wellbeing of people and animals resonated strongly but more than that it is Boehringer Ingelheim’s inclusive culture and social responsibility which provides a source of great pride and motivation to Kim every day.In Australia, more than half of eligible stroke patients miss out on treatments that reduce disability and death. Although a developed country, Australia faces significant challenges when it comes to providing equity of access to optimal stroke care - particularly the tyranny of distance. Australia is a vast country, the sixth largest in the world, with a total area of 7,686,850 square kilometres and a population of over 25 million. Two-thirds of Australia’s population reside within metropolitan areas however the remaining live in regional or remote areas with poorer access to healthcare services.Leading the Angels Initiative in Australia, Kim is committed to establishing Angels as a sustainable model of quality improvement. With her dedicated team of Angels Consultants and over a decade of working closely with the Australian stroke community, they aim to achieve this through close collaboration with the many stakeholders across State and National health systems who are passionate about creating a better future for Australian stroke patients and their families.Show Resources:https://www.

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Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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