Leukemia - The Bloodline with Blood Cancer United Podcast

Tune in to the latest episode of the Patient-Doctor Perspectives series, featuring an enlightening conversation with Dr. Judith Shizuru of Stanford Medicine and acute lymphoblastic leukemia (ALL) survivor, Peter Feinberg. Delve into the world of cutting-edge ALL treatments and gain insight from a patient who shares his personal story of treatments, bone marrow transplantation and re-vaccination challenges.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Amgen Inc.

The post Patient-Doctor Perspectives: Adult Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we sit down with Dr. Deborah Stephens from the University of Utah, as we discover the latest breakthroughs in treating chronic lymphocytic leukemia (CLL).  We also gain valuable insights into enhancing patient’s quality of life.

In this episode, Dr. Stephens emphasizes the importance of effective communication with your healthcare team, unveiling strategies that not only optimize disease management, but also minimize the impact of side effects. Your path to empowered long-term care with CLL begins here.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: AbbVie Inc.; BeiGene USA, Inc.; Genentech, Inc. & Biogen.

The post Empowering Lives: Advancements in Chronic Lymphocytic Leukemia first appeared on The Bloodline with Blood Cancer United Podcast.

While chronic myelomonocytic leukemia (CMML) is a rare disease, it is not rare to the patients and loved ones who are affected by it.

In this episode, Dr. Mrinal Patnaik of the Mayo Clinic in Rochester, MN, discusses the unique aspects of CMML and how it is classified and treated.  Dr. Patnaik shares the latest treatment advances and discusses the importance of patients’ quality of life.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Taiho Oncology, Inc.

The post Treating Rare Disease with Compassion: Chronic Myelomonocytic Leukemia (CMML) first appeared on The Bloodline with Blood Cancer United Podcast.

Nourishing your body after a cancer diagnosis can seem like an impossible task when your mind is focused on survival. Join us as we talk to chronic myeloid leukemia (CML) patient, Jonathan Daige, and Registered Dietitian, Jennifer Redlich, about healthy eating and the benefits of a balanced diet.

In this episode, Jonathan, a three-time cancer survivor, shares his journey of nutrition and exercise through his cancer treatments. Jennifer gives tips on putting together balanced meals that provide patients with the nutrients they need to nourish their bodies during cancer treatments. All cancer patients and caregivers can benefit from this episode, as we learn that no step is too small to maintain good nutrition.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this episode provided by: Novartis Pharmaceuticals Corporation.

The post Fueling Hope: Nutrition Insights for Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with Blood Cancer United Podcast.

Most blood cancer patients can experience side effects from their cancer diagnosis, or its treatments. In certain blood cancers, an urgent condition called tumor lysis syndrome (TLS) can develop. Dr. Tina Bhatnagar of the West Virginia University Cancer Institute joins us in this episode to explain why tumor lysis syndrome occurs and how it is treated. Although considered a medical emergency, Dr. Bhatnagar reviews how prevention and treatment can be successful in the treatment of TLS.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this program is provided by: Sanofi US.

The post Tumor Lysis Syndrome: What Patients Need to Know first appeared on The Bloodline with Blood Cancer United Podcast.

As a cancer patient or caregiver, telling your story can not only be a way to update loved ones about your condition or be a comfort to current patients, it can be healing for yourself. In this episode, we speak to Steve Buechler about his treatment for acute myeloid leukemia as well as his experience through survivorship.

Steve shares how writing helped him heal from the emotional effects of cancer. As an LLS volunteer, he now facilitates writing workshops for our LLS Community and wrote an article about how language matters when speaking to patients.

Join us to hear about Steve’s “odyssey” through AML, which he describes as not something he chose, but something that taught him more about life and himself.

Mentioned on this episode: 

Additional LLS Support Resources: 

Support for this program is provided by: Bristol Myers Squibb.

The post Healing Through Writing: An Odyssey Through Acute Myeloid Leukemia (AML) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we hear two different perspectives from people living with chronic myeloid leukemia (CML); Tim Sohn, a 16-year survivor and Becky Dame, a 32-year survivor. In this episode, we hear how CML treatment has changed since 1991, when Becky was diagnosed. Becky had a difficult journey through cycles of relapse, transplant, and remission, while Tim shares his experience using newer therapies. Both share their stories and how CML has impacted their lives.

Both Tim and Becky have worked to build and maintain a good quality of life and have used their experiences to help others in the cancer community and find connection.

Mentioned on this episode: 

• Chronic Myeloid Leukemia (CML)
• Tyrosine Kinase Inhibitors (TKIs)
• Leukapheresis
• Stem Cell Transplant
• Donor Lymphocyte Infusion (DLI)
• Graft-Vs-Host-Disease (GVHD)
• Showing Up: Perspectives On Cancer Show
• Perspectives On Cancer Book
• PodcastNotPodcast: Tim Sohn. Leukemia and Livestreaming.
• Information Specialists 
• Caregiver support 

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Young Adult Resources
• Survivorship Workbook
• Clinical Trial Support Center
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by: Novartis Pharmaceuticals Corporation.

The post Perspectives on Quality of Life: Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Richard Larson and Dr. Anand Patel from University of Chicago Medicine about chronic myeloid leukemia (CML). In this episode, they discuss the latest advances in treatment for CML and what is on the horizon.

With decades of progress with targeted treatments, CML patients are now given more hope of achieving deep remission and potentially discontinuing medication. A cure for an incurable disease may now be in sight.

Mentioned on this episode: 

• Chronic Myeloid Leukemia (CML)
• Tyrosine Kinase Inhibitors (TKIs)
• FISH test
• Stem Cell Transplant
• Cellular Therapies
• Instilling Hope Through Progress: Myelodysplastic Syndromes (MDS)

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Young Adult Resources
• Survivorship Workbook
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode is provided by University of Chicago Comprehensive Cancer Center.

The post Hopeful Advancements for Chronic Myeloid Leukemia (CML) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Veronika Panagiotou, a non-Hodgkin lymphoma survivor and Alique Topalian, a two-time AML survivor. In this episode, Veronika and Alique discuss the long-term side effects they have been experiencing as a result of their chemotherapy treatments.

While their lives have been impacted by these treatments, they have been able to find joy and peace as they work to overcome these side effects. Don’t miss out on this important episode, as blood cancer patients learn to give themselves grace during challenging days in treatment and beyond.

Mentioned on this episode: 

• Diffuse large b cell lymphoma (DLBCL)
• Acute myeloid leukemia (AML)
• LIVE! At CancerCon: A Journey Through Survivorship podcast episode
• Armenian Bone Marrow Donor Registry
• Cancer-related cognitive impairment
• The Gathering Place
• Gilda’s Club Kentuckiana (other cities available)
• Caring for Kids and Adolescents Workbook
• Survivorship Workbook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Financial Assistance Program
• LLS Community 
• Online chats 
• Caregiver support 
• Support groups 
• Caregiver Workbook
• Free Nutrition Consultations 
• LLS Advocacy

Support for this episode provided by: Pharmacyclics, An AbbVie Company and Janssen Biotech.

The post Give Yourself Grace: Overcoming Long-term Side Effects first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Heidi MacAlpine, a chronic lymphocytic leukemia (CLL) patient and occupational therapist. In this episode, Heidi talks to us about her diagnosis of CLL and how she has utilized wellness techniques to reduce inflammation and maintain a good quality of life while on a watch and wait protocol. 

This episode will help patients, caregivers and healthcare professionals understand the benefits of adding wellness practices to conventional therapies, such as yoga, mindfulness, journaling, and massage, to decrease side effects and improve the life of patients following a cancer diagnosis. 

Mentioned on this episode: 

• Chronic Lymphocytic Leukemia (CLL)
• Watch and Wait (Active Monitoring) protocol
• LLS Write It Out Journal
• Genetic predisposition to CLL
• National Center for Complementary and Integrative Health
• Patient-Doctor Perspectives: Shared Decision Making podcast episode
• Shared Decision Making in Chronic Leukemias interactive program
• American Association for Cancer Research
• Interleukin 8
• Caregiver support

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Financial Assistance Program
• LLS Community 
• Online chats 
• Support groups 
• Caregiver Workbook
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by: BeiGene USA, Inc.; Bristol Myers Squibb; Genentech, Inc. & Biogen; Loxo Oncology at Lilly and Pharmacyclics, An AbbVie Company & Janssen Biotech.

The post Improving Quality of Life Through Wellness Practices first appeared on The Bloodline with Blood Cancer United Podcast.