Leukemia - The Bloodline with Blood Cancer United Podcast

Join us as we speak to John Falco, who was diagnosed with chronic myeloid leukemia (CML) in 2019 and then later diagnosed with acute myeloid leukemia (AML) in his brain in 2021. This incredibly rare second diagnosis changed the course of John’s treatment and thankfully led to him achieving a complete remission after a stem cell transplant.

As a young adult professional, John was at the heart of his career at the time of his diagnosis and felt the pressure to return to normal, which meant returning to work quickly. He shares advice with other young adult cancer patients to slow down and enjoy life, while also listening to your body and advocating for yourself.

Mentioned on this episode: 

• Chronic Myeloid Leukemia
• Acute Myeloid Leukemia
• Stem Cell Transplant
• Tyrosine Kinase Inhibitors (TKIs)
• Be The Match – Bone Marrow Donor Registry
• Let’s Talk About Stem Cell Transplantation: Benefits and Side Effects podcast episode
• Tips about Talking to Your Employer 
• Light The Night event

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Free booklets 
• LLS Public Policy & Advocacy
• Patti Robinson Kaufmann First Connection Program
• Clinical Trial Support Center
• LLS Community 
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

The post A Young Adult’s Journey Through Two Leukemia Diagnoses first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us as we speak to Dr. Matthew Davids of Dana-Farber Cancer Institute. In this episode, Dr. Davids discusses current treatments for chronic lymphocytic leukemia (CLL) and the exciting possibilities for the future using immunotherapies.

Dr. Davids shares how the goal of treatment is long term remission and quality of life. Since 2010, BTK Inhibitors, CAR T-cell therapy and other treatments have come on the market and have increased the possibilities for patients to live a long life with CLL.

Mentioned on this episode: 

• Chronic Lymphocyctic Leukemia (CLL)
• How CAR T Cell Therapy Gives Hope to Cancer Patients Podcast Episode
• CURE Magazine Article on CAR T and Young CLL Patients
• American Journal of Managed Care – CAR T cells persist
• Minimal/Measurable Residual Disease (MRD) Fact Sheet
• CAR T-cell Therapy
• CAR T-Cell Therapy Webinar
• How CAR T-Cell Therapy Works In Augmented Reality
• Stem Cell Transplant
• Allogeneic Stem Cell Transplant
• Autologous Stem Cell Transplant
• LLS COVID-19 Resources
• Clinical Trial Support Center
• The Bloodline Subscriber Lounge

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Free booklets 
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by BeiGene USA, Inc.; Bristol Myers Squibb; Genentech, Inc. & Biogen; Loxo Oncology at Lilly and Pharmacyclics, An AbbVie Company & Janssen Biotech, and Thomas D. Oxley Fund for CLL Patient Education and Support.

The post Achieving Long-term Remission with Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

Please join us as we speak to Howard Willens, a chronic myelomonocytic leukemia (CMML) patient. In this episode, Howard shares how he was diagnosed with this rare blood cancer. He shares how patient support groups have assisted him, and how he no longer feels alone. His story encourages CMML patients to focus on stability and the present, while living their lives to the fullest.

Mentioned on this episode: 

• Chronic Myelomonocytic Leukemia (CMML)
• CMML Fact Sheet
• Stem Cell Transplant
• Myelodysplastic Syndromes (MDS)
• Myeloproliferative Neoplasms (MPNs)
• Mental Health Resources
• LLS Community 
• CMML Friends on Facebook

Additional LLS Support Resources: 

• Information Specialists
• Financial support
• Free telephone/web patient programs 
• Patti Robinson Kaufmann First Connection Program
• Free booklets 
• LLS Public Policy & Advocacy
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• Survivorship Workbook

Support for this episode provided by Taiho Oncology.

The post Support and Stability: Living with CMML first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Charles Huang and Dr. Gabriel Mannis in honor of AML Awareness Day (April 21st). In this episode, Charles tells us about his treatment for AML, participation in clinical trials, and shares about his struggle to find a bone marrow donor as an Asian Pacific Islander. Charles then turned his struggle into legislation to make it easier to join a bone marrow donor registry to save lives. Dr. Mannis, of Stanford Medicine, shares about the latest advances in AML research, from clinical trials in Chimeric Antigen Receptor (CAR) therapy to medications that reduce graft-vs-host disease (GVHD). With research advancing quickly in the field of AML treatment, patients and caregivers are given reasons to have hope after the uncertainty of a diagnosis.

Mentioned on this episode: 

• Acute Myeloid Leukemia
• Myelodysplastic Syndromes (MDS)
• Minimal/Measurable Residual Disease
• CAR T-cell Therapy
• Stem Cell Transplant
• Graft-Vs-Host-Disease (GVHD)
• Charlie’s Law
• Be The Match – Bone Marrow Donor Registry
• LLS Advocacy & Public Policy
• Innovative Therapies in Acute Leukemias podcast episode

Additional LLS Support Resources: 

• Information Specialists
• Free telephone/web patient programs 
• Clinical Trial Support Center
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Myeloma Link
• Patti Robinson Kaufmann First Connection Program 
• Young Adult Resources
• Survivorship Workbook

Support for this episode provided by Astellas and Genentech, Inc & Biogen.

The post Patient-Doctor Perspectives: Hope in the Uncertainty of AML first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Hongtao Liu and Dr. Adam DuVall from University of Chicago Medicine, about current and emerging cellular therapies for acute leukemias. These innovative therapies include CAR T-cell therapy, modified Natural Killer (NK) cells and stem cell transplantations. In this episode, we discuss how these groundbreaking therapies have changed the landscape of treatment for acute leukemias. The doctors share what they are excited about in the future, citing how clinical trials are advancing therapies and how cancer centers can better serve the unique needs of adolescent and young adults (AYAs) with acute leukemias by utilizing a holistic and comprehensive approach.

Mentioned on this episode: 

• Acute Lymphoblastic Leukemia
• Acute Myeloid Leukemia
• CAR T-cell Therapy
• Stem Cell Transplant
• Cellular Therapies
• Minimal/Measurable Residual Disease (MRD)
• Graft-Vs-Host Disease
• Adolescent and Young Adult (AYA) Oncology Program at University of Chicago
• CALMM Clinic at University of Chicago
• Young Adult Resources
• Survivorship Workbook
• Between Two Kingdoms

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode is provided by University of Chicago Medicine.

The post Innovative Therapies for Acute Leukemias first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Lee Greenberger, the Chief Scientific Officer of The Leukemia & Lymphoma Society, and Dr. Larry Saltzman, the Executive Research Director of the LLS Patient Registry. In this episode, Dr. Greenberger and Dr. Saltzman provide important updates on the continued COVID-19 pandemic, the LLS Antibody Research Study, patients’ responses to the COVID vaccines, and additional methods of protection. Be sure to tune in to these important updates as LLS strives to protect patients.

Mentioned on this episode: 

• LLS Patient Registry
• LLS Antibody Study
• COVID Resources
• FDA Approved Monoclonal Antibodies – including Evusheld
• Ask The Expert in LLS Community *Membership (no cost) required

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Online chats 
• Financial support
• Clinical Trial Support Center
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

As part of LLS’s COVID-19 Response Program, this podcast episode is supported in part by BeiGene, Bristol Myers Squibb, Kite, A Gilead Company, Pfizer and Pharmacyclics, An AbbVie Company & Janssen Biotech.

The post Protecting Patients: COVID and Vaccine Updates first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to determine the best treatment course for Donnie’s CLL/SLL. Shared decision making is a key component of patient-centered healthcare that balances risks and expected outcomes with patient preferences and values. Be sure to tune into this real-world example of how SDM works and how patients can have open communication with their healthcare team.

Mentioned on this episode: 

• Chronic Lymphocytic Leukemia (CLL)
• Small Cell Lymphocytic Lymphoma (SLL)
• Shared Decision Making Fact Sheet
• Shared Decision Making in Chronic Leukemias immersive program
• Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) podcast episode
• Minimal/Measurable Residual Disease
• Information Specialists

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Clinical Trial Support Center
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by AbbVie Inc. and Genentech, A Member of the Roche Group.

The post Patient-Doctor Perspectives: Shared Decision Making first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic lymphoma (SLL). In this episode, Donnie shares his experience and the stresses of living with a chronic disease like CLL/SLL, the various treatments he has had since he was diagnosed in 2008 and how he has worked with his doctor to determine the best treatment for him. Don’t miss this engaging story of how, throughout his cancer journey, Donnie continues to celebrate life and hope with volunteering, advocacy and the love of his family.

Mentioned on this episode: 

• Chronic Lymphocytic Leukemia (CLL)
• Small Cell Lymphocytic Lymphoma (SLL)
• Shared Decision Making in Chronic Leukemias
• Blood Cancer Conferences
• Light The Night
• Man and Woman of the Year
• Patti Robinson Kaufmann First Connection Program
• Information Specialists

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Clinical Trial Support Center
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by Eli Lilly.

The post Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Mariam Nawas and Dr. Satyajit Kosuri from University of Chicago Medicine, about graft-vs-host disease (GVHD) and the Transplant Optimization Program (TOP). In this episode, we discuss stem cell transplants, how GVHD occurs and what can be done to manage and treat symptoms. The doctors also share how the TOP program at the University of Chicago Medicine utilizes multiple specialties to improve post-transplant success for patients over 50.   

Mentioned on this episode: 

• Stem Cell Transplant
• Graft-Vs-Host Disease
• Barnes and Loutit Mouse Leukemia Study  
• University of Chicago Medicine Cancer Center
• Transplant Optimization Program (TOP)
• Be The Match

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Young Adult Resources
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode is provided by University of Chicago Medicine.

The post Transplant Support and Graft-Versus-Host-Disease (GVHD) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the fourth episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the post-treatment stage of acute myeloid leukemia (AML).

Mentioned on this episode: 

• Acute Myeloid Leukemia
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.