Leukemia - The Bloodline with Blood Cancer United Podcast

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the third episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the schooling stage of acute lymphoblastic leukemia (ALL).

Mentioned on this episode: 

• Acute Lymphoblastic Leukemia (ALL)
• Caregiver support 
• Hopecam

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Schooling first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the second episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Maggie Tappana about the experience of caregiving for her young son, Benjamin, through the treatment stage of acute lymphoblastic leukemia (ALL).

Mentioned on this episode: 

• Acute Lymphoblastic Leukemia (ALL)
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of children with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of a child’s cancer journey – diagnosis, treatment, post-treatment survivorship, and the child going back to school.

In the first episode of this series, Nancy Cincotta, LCSW, MPhil, CPA will talk with parent caregiver, Dave Garcia about the experience of caregiving for his young son, Andy, through the diagnosis stage of acute myeloid leukemia (AML).

Mentioned on this episode: 

• Acute Myeloid Leukemia
• Caregiver support 

Additional LLS Support Resources: 

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Child’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Eunice Wang, the Chief of Leukemia Service and Professor of Oncology at Roswell Park Comprehensive Cancer Center in Buffalo, NY. In this episode, Dr. Wang delves into the rare blood cancer, blastic plasmacytoid dendritic cell neoplasm (BPDCN). Usually identified by characteristic deep purple lesions, oncologists continue to raise awareness of this rare diagnosis, as swift referral and treatment usually leads to better outcomes. After being universally identified as BPDCN by World Health Organization (WHO) in 2018, clinical trials and CAR T-cell therapies have brought new hope to BPDCN patients.

Mentioned on this episode: 

• Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN)
• Why Roswell Park for Leukemia & Blood Cancers 
• Stem Cell Transplantation
• CAR T-cell Therapy
• Clinical Trial Support Center

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by ImmunoGen.

The post Hope for Rare Cancers: Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. To celebrate the 100th episode of The Bloodline with LLS, we will be speaking with Mel Mann, a chronic myeloid leukemia (CML) survivor and Dr. Brian Druker, a physician researcher at Oregon Health Sciences University (OHSU). 

Mel shares how Dr. Druker’s research saved his life with the drug, Gleevec®, and we get to hear his inspirational message of how one person can make a difference. Dr. Druker discusses this revolutionary therapy, how it transformed the lives of CML patients like Mel, and how targeted treatments are continuing to transform how we treat cancer. 

Mentioned on this episode:

• Chronic Myeloid Leukemia
• The rise of precision medicine for patients with CML
• TKI Therapy
• Be The Match – Bone Marrow Donor Registry
• LLS Translational Research
• LLS Specialized Centers of Research Program
• Beat AML Master Clinical Trial
• Oral Parity Laws
• LLS Advocacy
• Clinical Trial Support Center
• LLS Myeloma Link

Additional LLS Support Resources:

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by Pfizer.

The post Patient-Doctor Perspectives: Groundbreaking Research in CML first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this fourth episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the survivorship stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• CAR T-cell Therapy
• Young Adult Resources
• Caregiver support 

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Survivorship first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this third episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the moving home stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 
• COVID resources

Additional LLS Support Resources:

• Caregiver Workbook
• Young Adults
• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Moving Home first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In this second episode of the series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the treatment stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 
• Medical Power of Attorney
• Ulman Foundation

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for our special series where we focus on parent caregivers of young adults with cancer.  In this series we will be listening in on a conversation between a social worker and parent caregiver as they navigate the various stages of the young adult cancer journey – diagnosis, treatment, post-treatment survivorship, and the young adult moving back home. 

In the first episode of this series, Sage Bolte, PhD, LCSW, CST, will talk with parent caregiver, Lisa Dominisse about the experience of caregiving for her young adult son, Will, through the diagnosis stage of Acute Lymphoblastic Leukemia (ALL).

Mentioned on this episode:

• Acute Lymphoblastic Leukemia (ALL)
• I Will Survive: A Viral Tiktok Star’s Journey Through ALL
• Caregiver support 

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by the Carolan Research Institute.

The post Cancer & Caregiving: Navigating My Young Adult’s Cancer – Diagnosis first appeared on The Bloodline with Blood Cancer United Podcast.

Join us in this next installment of our series, Patient-Doctor Perspectives, where we explore a diagnosis from the view of a patient and doctor. In this episode, we speak to Dr. Larry Saltzman, a Chronic Lymphocytic Leukemia (CLL) survivor and physician researcher and Dr. Steven Coutre from Stanford Medicine. Dr. Larry shares his experience living with CLL, participating in LLS Team In Training events, and his current work with LLS studying patient outcomes and COVID-19 vaccine antibody response. Dr. Coutre then delves deeper into CLL treatments, responses to vaccines and what is on the horizon for new treatments and clinical trials. 

*Please note that this episode was recorded prior to the rise of the COVID Delta variant and release of booster shots. We encourage patients to consult with your physician regarding COVID-19 safety and vaccines. Preliminary results have also been released for the antibody study and can be found in the show notes below.

Mentioned on this episode:

• Chronic Lymphocytic Leukemia (CLL)
• Small Cell Lymphocytic Lymphoma (SLL)
• CAR T-cell Therapy
• Minimal Residual Disease
• Team In Training
• Financial support
• Clinical Trial Support Center
• LLS Patient Registry
• Vaccines for Blood Cancer Patients
• LLS COVID-19 Antibody Research Study: Your Questions Answered

Additional LLS Support Resources:

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by Genentech, Inc. & Biogen and Pharmacyclics, An AbbVie Company & Janssen Biotech.

The post Patient-Doctor Perspectives: CLL and a Decade of Transformation first appeared on The Bloodline with Blood Cancer United Podcast.