Leukemia - The Bloodline with Blood Cancer United Podcast

Join us as we speak to Dr. Caron Jacobson, an Assistant Professor of Medicine at Harvard Medical School and a lymphoma physician and researcher at the Dana-Farber Cancer Institute. In this episode, Dr. Jacobson shares about the use and benefits of CAR T-cell therapy in B-cell cancers, such as diffuse large B-cell lymphoma (DLBCL), mantle cell lymphoma (MCL) and chronic lymphocytic leukemia (CLL). You will hear about how CAR T-cell therapy works, why it is used for B-cell cancers and the benefits of joining a clinical trial for this type of treatment.

Mentioned on this episode:

• CAR T-cell Therapy
• Diffuse Large B-cell Lymphoma
• Mantle Cell Lymphoma
• Chronic Lymphocytic Leukemia
• Immune Effector Cell Therapy Program – Dana-Farber Cancer Institute
• Clinical Trial Support Center

Additional LLS Support Resources:

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support – **Mantle Cell Lymphoma funding is OPEN** 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by Allogene; Bristol Myers Squibb; CRISPR Therapeutics; Kite, a Gilead Company; Janssen Oncology & Legend Biotech; and Novartis Pharmaceuticals.

The post How CAR T-cell Therapy Gives Hope to Cancer Patients first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Alex Okafor, a defensive end with the Kansas City Chiefs. Alex lost his mother to acute myeloid leukemia (AML) in 2020. In this episode, Alex talks about his mother’s short battle with AML and the difficulties his family faced receiving this diagnosis during a global pandemic. Following his mother’s death, Alex found a new determination to make his mother proud and continue her legacy in fighting against racial injustice and creating a better society for the black community.

*Since the taping of this podcast, Alex has launched the Alex Okafor Family Foundation, which is raising funds for the LLS Scholarship for Blood Cancer Survivors Program. In addition, in honor of Mother’s Day, Alex wrote a touching letter to his mother, titled A Letter to My Mother for The Players Tribune website.

Mentioned on this episode:

• Acute Myeloid Leukemia
• Kansas City Star Article
• Kingdom United Reading Program
• Alex Okafor Family Foundation and Scholarship
• A Letter to My Mother

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode provided by Genentech, Inc. and Jazz Pharmaceuticals.

The post Tragedy to Legacy: NFL Player Continues The Fight first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to William Yank, a 23-year-old, three-time Acute Lymphoblastic Leukemia (ALL) survivor. In this episode, we hear about the variety of treatments William went through, his relapses and then subsequent stem cell transplant. Now one year out of transplant, he shares about his post-cancer journey – going viral on TikTok, becoming the face of the LLS Giving Tuesday campaign and then starting a podcast with another Young Adult Cancer survivor.

Mentioned on this episode:

• Acute Lymphoblastic Leukemia
• CancerCon by Stupid Cancer
• ClonoSeq®
• CAR T-cell Therapy
• Stem Cell Transplant
• The Illest. Podcast
• William’s TikTok page
• Family Service Society, Inc.
• LLS Young Adult Resources

Additional LLS Support Resources:

• Information Specialists
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Amgen Inc. and Jazz Pharmaceuticals.

The post I Will Survive: A Viral TikTok Star’s Journey through Acute Lymphoblastic Leukemia (ALL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Lori Muffly and Dr. Matthew Frank from Stanford Medicine in Stanford, CA, about the recent advancements in testing for Minimal/Measurable Residual Disease (MRD). In this episode, we delve into what MRD is, which blood cancers testing is currently used on, and how we can utilize it to more accurately monitor patients and customize treatment. The doctors also share exciting possibilities on how MRD and other testing can benefit patients in the future.

Mentioned

• Minimal/Measurable Residual Disease
• A Medication Resource for Blood Cancer Patients
• Minimal/Measurable Residual Disease Chart 
• Stanford Medicine Research
• CAPP-Seq test – Ash Alizadeh
• Acute Lymphoblastic Leukemia (ALL)  

Additional LLS Support Resources:

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode provided by Genentech, Inc. and Biogen.

The post Exploring Minimal/Measurable Residual Disease (MRD) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we report from the 2020 Virtual CancerCon and speak to Kyle Benner, a young adult survivor of Acute Lymphoblastic Leukemia (ALL), and Nikki Yuill, a social worker with the LLS Information Resource Center. In this episode, we discuss young adult cancer (15-39 yrs) and what happens from diagnosis through survivorship. Learn about the unique issues that young adults face and how LLS is here to help them through.

Mentioned on this episode:

• Acute Lymphomblastic Leukemia (ALL)
• Communicating with your Healthcare Team
• CancerCon
• Stupid Cancer
• Young Adult Chat
• More Young Adult Specific Resources
• Bone Marrow Transplant

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

The post I Am a Young Adult With Cancer…Now What? first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Courtney DiNardo from MD Anderson Cancer Center in Houston, TX. about the recent advancements in AML treatment.  Dr. DiNardo is an academic clinical researcher who has participated in clinical trials resulting in three new AML therapies since 2017. In this episode, we dive into the new treatments that are showing great promise, as well as discuss how AML can be hereditary.  With recent results of the Beat AML Master Clinical Trial, the increasing potential of immunotherapy and other new treatments, this episode is sure to give hope for current and future AML patients and caregivers.  

Mentioned on this episode:

• Acute myeloid leukemia (AML)
• MD Anderson
• Beat AML® Master Clinical Trial
• Personalized Medicine
• Minimal Residual Disease
• Hereditary Hematologic Malignancy Leukemia Clinic

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Astellas and Novartis.

The post Providing Hope for AML Patients first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Dr. Aaron Goldberg from Memorial Sloan Kettering Cancer Center in New York City.  Dr. Goldberg discusses how secondary AML differs from AML and how treatment is determined. Secondary AML is a diagnosis of AML that has occurred after previous exposure to radiation or chemotherapy for another cancer or has evolved from a prior diagnosis of MDS, MPN or Aplastic Anemia.  In this episode, Dr. Goldberg points out the major difference between secondary AML and de novo AML and new, promising treatments.

Mentioned on this Episode:

• Acute myeloid leukemia (AML)
• Integrative Medicine Service
• Stem Cell Transplantation
• Myelodysplastic syndrome (MDS)
• Myeloproliferative neoplasms (MPN)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations
• Understanding Secondary AML Webcast

Support for this episode provided by Jazz Pharmaceuticals.

The post Complexities of Secondary AML with Dr. Goldberg first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Kristin Furhrmann-Simmons, a caregiver and an LLS volunteer. Kristin talks to us about caring for her father who is a CLL survivor, and how she decided to join LLS’s advocacy efforts through our Office of Public Policy.  For Kristin, it was a great way to connect with people in her community and share her family’s story.  And she knew that for her dad, being as sick as he was, it was helpful to have her as his voice to bring forward some of the issues that her family was facing as a result of his treatment.  This episode highlights how advocates carry the ability to uphold a voice that may have been silenced by a diagnosis.

Mentioned on this Episode:

• Advocacy
• Caregiver
• Team in Training
• Medicare Part D
• Mobile Action Network

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations
• Oral Parity
• Prescription Out-of-Pocket Costs
• Share your Story
• Sign up to be an Advocate at LLS

The post I’m a Caregiver & Advocate: Kristin’s Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as Ellin Berman, MD a leukemia expert from Memorial Sloan Kettering Cancer Center discusses the advancements in treatment for Chronic Lymphocytic Leukemia (CLL). Dr. Berman explains how not all CLL is the same, as it is a heterogeneous disease which explains why one person’s CLL can act differently from another person’s CLL.  Dr. Berman speaks about how some patients do not start treatment right away and why some patients may be good candidates for clinical trials.  Every patient is different, and since there are newer treatments now available for CLL, Dr. Berman provides patients with different treatment options, and encourages patients to ask questions and to be a partner with their treatment team when making treatment decisions.

Mentioned on this episode:

• Chronic Lymphocytic Leukemia (CLL)
• Printable Question to ask your Doctor
• Memorial Sloan Kettering
• Clinical Trial Support Center (CTSC)
• Ibrutinib

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Pharmacyclics/Janssen.

The post CLL: Transformation in Treatment first appeared on The Bloodline with Blood Cancer United Podcast.

We will be speaking with WWE Superstar, actor, and former professional football player, Joseph Anoai, who many may know as Roman Reigns. Apart from fighting opponents in the ring, Roman found himself fighting his biggest opponent yet after receiving his leukemia diagnosis back in 2007. Listen as Roman Reigns explains his cancer journey to our very own President & CEO, Dr. Louis DeGennaro.   

Mentioned on this episode:

• Roman Reigns
• Chronic myeloid leukemia (CML)
• Leukemia
• Make-A-Wish
• Types of treatment for CML
• Roman Reigns and LLS join forces

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

The post Together in the Fight Against Chronic Myeloid Leukemia (CML): Roman Reigns’ Story first appeared on The Bloodline with Blood Cancer United Podcast.