Rare Mamas Rising: A Rare Disease Podcast

Lifting Her Voice and Envisioning Change with Through Evely's Eyes Founder and Rare Mama Tameka Diaz


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RARE MAMAS RISING- EPISODE 21

Lifting Her Voice & Envisioning Change with "Through Evely's Eyes" Founder & Rare Mama Tameka Diaz

Tameka Diaz is a mother of three, a homeschool teacher, a full-time caregiver to her daughter, who has multiple disabilities, an advocate, and a singer. In 2015, Tameka's daughter Evely was born and diagnosed with bilateral anophthalmia, a rare condition causing her to be born without eyes. Evely has received several diagnoses since birth, though her underlying rare genetic disorder is still unknown. Tameka started "Through Evely's Eyes" in honor of her daughter to advocate and assist other medical families. She pushes her local government for accessibility of braille and sensory books in libraries, consults and advises other caregivers, and organizes medical supplies and equipment donations. Tameka dreams of an accessible and inclusive tomorrow, and in this episode, you'll see that she's not just dreaming; she's doing!

EPISODE HIGHLIGHTS

  • Tameka & Evely's story
  • How Tameka created Through Evely's Eyes to advocate for Evely and others
  • The ways Tameka rises to the challenge of being a rare mama
  • Tameka's mantra
  • How Tameka and Evely use music and singing to help them through challenging times
  • Tameka's best advice for other rare mamas

LINKS & RESOURCES MENTIONED

Tameka Diaz

Instagram: www.instagram.com/thediazgirls

Facebook: vwww.facebook.com/throughEvelysEyes

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

[email protected]

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Rare Mamas Rising: A Rare Disease PodcastBy Nikki McIntosh

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