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Tonya and Jason Goodin's lives are divided distinctly into before and after and the divider is something unimaginable.
Multiple Sulfatase Deficiency (MSD) is an ultra-rare disease that attacks children and leads to premature and horrific death. The chances of it striking your children are about one in a million and a half.
Despite these odds, not one, but both of the Goodins' children were diagnosed with this beast of disease in 2019 at the tender ages of 8 and 6. Since then, the Goodins have been making history - fighting for their children's lives and every other child who comes after them.
Join me for this special episode, as Tonya shares their amazing story and how she finds hope amid her heartache.
Special Guest: Tonya Goodin, co-founder of Grant Us Grace, a non-profit designed to bring awareness to rare diseases and to raise funding for the necessary research. To follow Tonya on social media at: https://www.facebook.com/GrantUsGrace2cureMSD
To learn more about their story, watch this video: https://drive.google.com/file/d/1RNzmeMr5VZR2dP6NA3qDnjj0WeIk0x69/view
Episode edited by Jordan M Overkamp, Founder, PlayRoom Studio
4.9
7979 ratings
Tonya and Jason Goodin's lives are divided distinctly into before and after and the divider is something unimaginable.
Multiple Sulfatase Deficiency (MSD) is an ultra-rare disease that attacks children and leads to premature and horrific death. The chances of it striking your children are about one in a million and a half.
Despite these odds, not one, but both of the Goodins' children were diagnosed with this beast of disease in 2019 at the tender ages of 8 and 6. Since then, the Goodins have been making history - fighting for their children's lives and every other child who comes after them.
Join me for this special episode, as Tonya shares their amazing story and how she finds hope amid her heartache.
Special Guest: Tonya Goodin, co-founder of Grant Us Grace, a non-profit designed to bring awareness to rare diseases and to raise funding for the necessary research. To follow Tonya on social media at: https://www.facebook.com/GrantUsGrace2cureMSD
To learn more about their story, watch this video: https://drive.google.com/file/d/1RNzmeMr5VZR2dP6NA3qDnjj0WeIk0x69/view
Episode edited by Jordan M Overkamp, Founder, PlayRoom Studio
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