Living with Alzheimer's Disease Podcast

Living with Alzheimer's Disease Podcast

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Living with Alzheimer's Disease Podcast episodes

  • Ep 6: Caring for Someone with Alzheimer's Disease

    If you love someone with Alzheimer's disease, you know that caregiving can be complicated and challenging. But you are not alone. There are many resources to help on your journey. In this episode, we hear from experts and other caregivers about some important dos and don'ts, and share resources where you can find more information. 


    For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources.


    What did you think of this episode? We’d love to hear from you.

    Please visit healthunmuted.com/feedback to let us know!


    Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here.


    Resources

    Part 1: Making Changes to Environment

    • Home safety tips from MayoClinic
    • Environmental changes (Social Care Institute for Excellence)
    • Grants and resources to help make changes to the home (Alzheimer's Society, UK)

    • Part 2: Helping Someone with Personal Care

      • NIH
      • BetterHealth (Australia)
      • Alzheimer's Association
      • Social Care Institute for Excellence (UK)
      • MayoClinic
      • WebMD, handling outbursts
      • Alzheimer's Associations, managing anger

      • Part 3: Things Not to Do/Say

        • Alzheimer's Society
        • Alzheimer's San Diego

        • Part 4: Support for Caregivers

          • Coping with caregiver depression 
          • Managing stages of Alzheimer's disease 
          • Alzheimer's Association support for caregivers (US)
          • Alzheimer’s Association Local Chapters (US)
          • Alzheimer's Society support for caregivers (UK)
          • Alzheimer’s Society support groups (UK)
          • Dementia Friendly America
          • Healthline: How to find caregiver support groups (US)
          • Alzheimer's Speaks - Resources and links
          • Alz Authors - Books and Podcasts

             

            Part 5: Links to information about advanced care planning

            • Finding geriatric care managers
            • ElderCare Locator from the US Administration on Aging
            • Alzheimer's Association chapters 
            • Alzheimer's Association guide for advance planning
            • Finding your nursing home ombudsman (USA)
            • Alzheimer's Society (Canada)
            • Alzheimer's Society (UK)

            • Links to information about clinical trials:

              • Alzheimer's.gov
              • Alzheimer's Association 

              • Links to Guest’s Books

                • Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It
                • Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
                • Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
                • Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
                • Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
                • Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
                • Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia 
                • Dr. Jane Mullins - Finding the Light in Dementia: A Guide for Families, Friends and Caregivers


                  Get all the links and the episode transcript by visiting the website here.

                  Learn more about your ad choices. Visit megaphone.fm/adchoices

                  25 min
                • Ep 5: Treatment for Alzheimer’s Disease (Part 2): Medicine and Rehabilitation Therapies

                  Medication for Alzheimer's disease has been around since the 1980s, and for some people, it can be an important part of managing symptoms. In this episode, we talk about the medications that are available now, and we learn about therapy to improve motor, speech and language skills. 


                  For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources.


                  What did you think of this episode? We’d love to hear from you.

                  Please visit healthunmuted.com/feedback to let us know!


                  Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here.


                  Resources

                  For information about medication

                  • Overview of medications for Alzheimer's disease
                  • FDA approval for Aducanumab
                  • About Aducanumab
                  • About Cholinesterase Inhibitors
                  •  

                    For information about therapies

                    • American Physical Therapy Association
                    • American Speech Language and Hearing Association
                    • Total Health Works
                    • Speech Therapy Works
                    • Managing eating and swallowing challenges
                    •  

                      For information about clinical trials:

                      • Alzheimer's.gov
                      • Alzheimer's Association 
                      •  

                         References about Aducanumab

                        • NIH article
                        • Alzheimer's Association article
                        • Nature.com article
                        •  

                          Guest’s Books

                          • Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It
                          • Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
                          • Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
                          • Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
                          • Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
                          • Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
                          • Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia

                          • Get all the links and the episode transcript by visiting the website here.

                            Learn more about your ad choices. Visit megaphone.fm/adchoices

                            12 min
                          • Ep 4: Treatment for Alzheimer’s Disease (Part 1): Diet, Exercise and Lifestyle Changes

                            There's no cure for Alzheimer's disease, but there are ways to manage it and treat symptoms. In this episode, we hear from people living with the disease about the healthy changes they've made to continue leading active, social lives.


                            For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources.


                            What did you think of this episode? We’d love to hear from you.

                            Please visit healthunmuted.com/feedback to let us know!


                            Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here.


                            Resources

                            For information about lifestyle changes

                            • Alzheimer’s Society
                            • HelpGuide
                            • Healthline
                            • The MIND Diet
                            • Memory Cafe directory

                            • Patient Support and Advocacy Groups

                              • Alzheimer’s Speaks
                              • Alz Authors
                              • Alzheimer’s Association Local Chapters (US)
                              • Alzheimer’s Society support groups (UK)
                              • Dementia Friendly America
                              •  

                                Guest’s Books

                                • Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It
                                • Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
                                • Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
                                • Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
                                • Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
                                • Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
                                • Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia 
                                •  

                                  Get all the links and the episode transcript by visiting the website here.

                                  Learn more about your ad choices. Visit megaphone.fm/adchoices

                                  15 min
                                • Ep 3: What Are the Early Stages of Alzheimer’s Disease?

                                  Even though we know a lot more about Alzheimer's disease now than we used to, there are still a lot of misunderstandings about the disease. So in this episode, we hear from people with Alzheimer's disease about their day-to-day lives. Caregivers and medical professionals also share their experiences caring for people with more advanced Alzheimer's disease. If you love someone with advanced Alzheimer’s disease, stay tuned for an upcoming episode on how to manage your new normal– especially when the going gets tough. 


                                  For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources.


                                  What did you think of this episode? We’d love to hear from you.

                                  Please visit healthunmuted.com/feedback to let us know!


                                  Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here.



                                  Resources

                                  Patient Support and Advocacy Groups

                                  • Alzheimer’s Speaks
                                  • Alz Authors
                                  • Alzheimer’s Association Local Chapters (US)
                                  • Alzheimer’s Society support groups (UK)
                                  • Dementia Friendly America

                                  • Caregiver support 

                                    • Family Caregiver Alliance ​​​​
                                    • Memory Cafes
                                    • Memory Cafe directory

                                    • Guest’s Books

                                      • Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
                                      • Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope
                                      • Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
                                      • Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
                                      • Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
                                      • Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
                                      • 

                                        Get all the links and the episode transcript by visiting the website here.

                                        Learn more about your ad choices. Visit megaphone.fm/adchoices

                                        20 min
                                      • Ep 2: How Is Alzheimer’s Diagnosed?

                                        The first case of Alzheimer's disease was diagnosed in the early 1900s– but only after the person had died, and doctors were able to do an autopsy. Science has come a long way since then! There are several tests available now. And soon we may be able to tell if someone will develop Alzheimer's disease before they even develop symptoms. In this episode, we learn about the latest tests. And we hear from people and their loved ones about how they handled the shock of diagnosis.


                                        For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources.


                                        What did you think of this episode? We’d love to hear from you.

                                        Please visit healthunmuted.com/feedback to let us know!


                                        Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here.



                                        Resources

                                        History of Alzheimer's disease

                                        • Bright Focus 
                                        • Alzheimer's Society

                                        • Diagnosis information and what to expect at an appointment

                                          • National Institute of Aging
                                          • Alzheimer’s Society
                                          • Alzheimer's Association
                                          • Mayo Clinic
                                          • Mild Cognitive Impairment (MCI)
                                          • Alzheimer's Association
                                          • Cleveland Clinic

                                          • Caregiver support 

                                            • Family Caregiver Alliance
                                            • Memory Cafes
                                            • Memory Cafe Directory

                                            • Guest’s Books

                                              • Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
                                              • Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope
                                              • Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's
                                              • Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
                                              • Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
                                              • Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease

                                              • Get all the links and the episode transcript by visiting the website here.

                                                Learn more about your ad choices. Visit megaphone.fm/adchoices

                                                18 min
                                              • Ep 1: What Is Alzheimer’s Disease?

                                                Alzheimer's disease affects families across the United States, yet no two people with the disease are alike. Our understanding of Alzheimer’s has changed a lot over the years. In this first episode, we start with the basics. We talk about causes, risk factors, symptoms, and how it affects the brain. Plus we learn about the difference between Alzheimer's disease and dementia.


                                                For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources.


                                                What did you think of this episode? We’d love to hear from you.

                                                Please visit healthunmuted.com/feedback to let us know!


                                                Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here.


                                                Resources

                                                For information about Alzheimer's Disease

                                                • Alzheimer's Association 
                                                • National Institutes of Health (NIH) 
                                                • Healthline
                                                • Bright Focus, for more information about amyloid and tau
                                                • MayoClinic, for more information about disease progression


                                                  Patient Support and Advocacy Groups

                                                  • Alzheimer’s Speaks
                                                  • Alz Authors
                                                  • Alzheimer’s Association Local Chapters (US)
                                                  • Alzheimer’s Society support groups (UK)
                                                  • Dementia Friendly America
                                                  • HFC

                                                  • Guest’s Books

                                                    • Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It
                                                    • Dr Jason Karlawish - The Problem of Alzheimer’s: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it
                                                    • Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith
                                                    • Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease
                                                    • Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease
                                                    • Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia 

                                                    • Get all the links and the episode transcript by visiting the website here.

                                                      Learn more about your ad choices. Visit megaphone.fm/adchoices

                                                      18 min
                                                    • Trailer: Welcome to the Alzheimer's Disease Podcast

                                                      Alzheimer's affects at least 30 million people worldwide, not including of course, friends, family, and other loved ones, and that number is growing as we live longer. In this series, we talk to people living with Alzheimer's, caregivers and health experts about symptoms, causes, existing treatments, ongoing research into new therapies, and ways you can lower your risk of developing Alzheimer's or any form of dementia. 


                                                      And we discuss how caregivers and loved ones can cope with Alzheimer's, too. 


                                                      Listen, follow and share this series with the people in your life.


                                                      Follow: Website | Twitter | LinkedIn | Facebook | Instagram


                                                      For informational purposes only. Please consult a registered health professional for advice.

                                                      Learn more about your ad choices. Visit megaphone.fm/adchoices

                                                      3 min

                                                    About Living with Alzheimer's Disease Podcast

                                                    From the publisher's feed

                                                    Alzheimer's disease affects at least 30 million people worldwide, not including, of course, friends, family, and other loved ones, and that number is growing as we live longer. In this miniseries, we speak with health experts and people dealing with Alzheimer's about symptoms, causes, existing treatments, ongoing research into new therapies. We also discuss ways you can lower your risk of developing Alzheimer's disease or any other form of dementia. And we discuss how caregivers and loved ones can cope with Alzheimer's disease, too. 

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