Parkinson's Disease Podcast, by Health Unmuted

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Parkinson's Disease Podcast, by Health Unmuted episodes

September 06, 2022Ep 7: How Does Parkinson’s Affect Speaking and Swallowing? And What Can be Done About It?
Communication is vital for all parts of life, but Parkinson’s disease can greatly impact cognition and speaking.
That’s where a speech and language pathologist comes in - helping with common problems like drooling,swallowing, concentration and talking.
In this episode, we hear from a speech and language pathologist about different ways to improve communication and swallowing difficulties after diagnosis.
We also hear from people with Parkinson’s disease about what it’s like to live with these challenges, and what adaptations have been most helpful in overcoming them.
For more links and resources, visit our website at HealthUnmuted.com
Resources
Voice and swallowing support
Speech Therapist finder - Parkinson’s voice project
LSVT Program Finder
Live Home Practice Sessions - Parkinson’s Voice Project
Speech & Swallowing Issues - Parkinson’s Foundation
Adaptive Tools
Pocket talker device - Amazon

Community Groups:
Choirs improving PD symptoms
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

Learn more about your ad choices. Visit megaphone.fm/adchoices
18 min
September 06, 2022Ep 6: Food and Parkinson’s Disease: Nutrition, Meal Preparation and the Act of Eating
Food is an important part of everyone’s life. Adjusting your diet while managing a chronic illness can be a challenge.

In this episode, we speak to a dietician about the foods and diets that are often recommended for people with Parkinson's.

We also hear about tips and tools to make cooking and eating a little easier, especially while experiencing motor and non-motor symptoms.

For more links and resources, visit our website at HealthUnmuted.com

Resources

Diet and nutrition
Guide to eating a Mediterranean diet - Michael J Fox Foundation
Meal time booklet - Parkinson’s Foundation
Information of pro and prebiotics - Parkinson's Foundation
Common symptoms
Studies to show constipation as common symptom of Parkinson’s disease - Study 1 and Study 2
Webinar on gut related issues in Parkinson’s Disease - Michael J Fox Foundation
Adaptive Tools
Swivel Spoons - Various types available on Amazon.com
Lift steady table ware - Product website
Wrist weights - Various types available on Amazon.com
Weighted bracelet - Product website
Podcast
When Life Gives You Parkinson’s Podcast
Acid reflux podcast
Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Note: Links and resources provided are for informational purposes only. There is no commercial relationship between the organizations referenced and the publisher of this podcast

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21 min
September 06, 2022Ep 5: Exercise for People with Parkinson’s - From the Gym to Physical Therapy
When it comes to slowing down the progression of Parkinson’s disease, exercise is critical. But you don't need to be a lifelong athlete to benefit.

In this episode, we hear why exercise is so important, and some easy ways people living with Parkinson’s can get started today.

We also cover the importance of physical and occupational therapy, and hear tips on how home adaptations can help manage symptoms.

For more links and resources, visit our website at HealthUnmuted.com

Resources

The benefits of exercise
Study to show exercise improves depression in Parkinson’s patients
Benefits of exercise for slowing parkinson’s disease - Parkinson's Foundation
Downloadable resources on benefits of exercise for PD - Stanford Medicine
Why you should exercise - Parkinson’s Foundation
Terms Mentioned:
GERD, Gastroesophageal reflux disease - Mayo Clinic

Exercise guides
Skills and Wellness channel - Youtube - Mobility videos
Parkinson’s foundation - Youtube - Fitness Friday videos
Step by Step Physio Movements - Parkinson’s Wellness Recovery
MENTOR Program
Exercise videos - Brian Grant Foundation
Home Adaptations
Easy changes to make around the house - Davis Phinney Foundation Video
Bathroom and grooming aids - Parkinson’s Foundation
Webinar on creating a safe home environment - Parkinson’s Foundation
Podcast
Parkinson's Podcast by the Davis Phinney Foundation

Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Learn more about your ad choices. Visit megaphone.fm/adchoices
19 min
September 06, 2022Ep 4: Treatments for Parkinson’s Disease, and the Role of Clinical Trials
There's no cure for Parkinson's disease, but there are ways to manage it and treat symptoms.

In this episode, we explore how different types of medications can help, and the importance of clinical trials in progressing treatment options.

We hear from people who are living with Parkinson’s disease about their medication journeys.

We also discuss an alternative surgical treatment that is available: deep brain stimulation.

For more links and resources, visit our website at HealthUnmuted.com

Resources

Medication
Medication explained - Mayo Clinic
Webinar about on/off time - Michael J Fox foundation
Parkinson’s Drugs- Parkinson’s UK Resource
FDA Approved Medications- APDA
Terms Mentioned
Carbidopa-levodopa - Mayo Clinic
Sinemet, Parcopa, Duopa and other brand names for Sinemet - on Medscape
Dopamine agonists (pramipexole, ropinirole) - Mayo Clinic
Dyskinesia- Parkinson Foundation
Deep Brain Stimulation - Mayo Clinic
Alternative Surgical Treatment Option
Deep Brain Stimulation - Parkinson's Org

Clinical Trials
Clinical Trials- Parkinson’s Foundation
Clinical Trials Recruiting- Cure Parkinsons
Podcasts
Parkinson's Foundation Podcast

Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Learn more about your ad choices. Visit megaphone.fm/adchoices
20 min
September 06, 2022Ep 3: What Is Young-Onset Parkinson’s Disease?
Does Parkinson’s only affect older people?

A common misconception is that Parkinson’s disease only affects people in the later stages of life, but that isn’t always the case.

Young-Onset Parkinson’s disease refers to people who are diagnosed much earlier, sometimes in their 20’s or 30’s.

In this episode, we hear from three people who are living with Young-Onset Parkinon’s disease about their experiences, and the impact on and adjustments to their careers, health decisions and family life after diagnosis.

For more links and resources, visit our website at HealthUnmuted.com

Resources

Talking about Parkinson's
Talking to your Children about Parkinson’s - Michael J Fox Foundation
My parent has parkinson’s fact sheet - Parkinson’s Foundation
Talking to your employer about PD - Parkinson’s Foundation
Terms from this Episode
Hand Dystonia : "excessive, involuntary muscle contractions in the fingers, hand, forearm, and sometimes shoulder" - Dystonia Foundation
Podcasts
Learning About Parkinson's Podcast
Young Onset 101 podcast episode - Parkinson’s Foundation
Parkinson's Life Podcast
Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Learn more about your ad choices. Visit megaphone.fm/adchoices
21 min
September 06, 2022Ep 2: How Is Parkinson’s Disease Diagnosed? And How Is a Care Team Created?
Parkinson’s disease can’t be diagnosed through a simple blood test or scan. After a referral from a primary care doctor, it often takes visits to a neurologist or movement disorder specialist before receiving a clinical diagnosis.

In this episode, we speak to healthcare providers and those living with the disease about the diagnostic process. We also explain how to build a Parkinson’s care team - a group of healthcare providers that provide support after diagnosis.

For more links and resources, visit our website at HealthUnmuted.com

Resources

Building a care team
Movement disorder specialist directory - International Parkinson’s and Movement Disorder Society
Find a PD expert care center - Parkinson’s Foundation
Building a care team - Michael J Fox Foundation
Support after diagnosis
Early signs of PD- Brain and Life Magazine (AAN)
Guide to the early years after diagnosis - Michael J Fox Foundation
Terms Mentioned
DaTscan - test to help in the diagnosis of Parkinson’s, read more on APDA

Podcast
The Michael J Fox Foundation Parkinson’s Podcast

Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Learn more about your ad choices. Visit megaphone.fm/adchoices
17 min
September 06, 2022Ep 1: What Is Parkinson’s Disease?
The World Health Organization reports that the number of people with Parkinson's disease has doubled over the past 25 years, estimating over 8.5 million individuals living with Parkinson's globally. (1)

Parkinson’s is a degenerative condition which is often associated with tremors, imbalance and rigidity, but it affects every person differently.

In this first episode of the Parkinson’s Disease Podcast, we’ll start with the basics:
What is Parkinson’s Disease?
Who is at risk of developing Parkinson’s?
What are some early signs of the condition?
We’ll also hear what it’s like to live with Parkinson’s disease from those diagnosed.

For more links and resources, visit our website at HealthUnmuted.com

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Resources

What is Parkinson’s?
Webinar on recognising the early signs of Parkinson’s - Parkinson’s Foundation
Other parkinsonion conditions - Parkinson’s Foundation
Genetic causes of Parkinson’s - Michael J Fox Foundation
Webinar on sleep disorders and acting out dreams - Michael J Fox Foundation
Terms Mentioned
Dopamine - WebMD
Tremor and Resting Tremor - Parkinson's Foundation
Rapid eye movement (REM) sleep behavior disorder - Mayo Clinic
Olfactory nerve - nerve relating to the sense of smell
Hoehn & Yahr staging - Parkinson's Foundation
Axial symptoms - these include symptoms such as walking disorders, posture disorders, and speech and swallowing disorders
Helpline
Parkinson’s Foundation Helpline - 1-800-4PD-INFO (473-4636)

Podcast
Substantial Matters: Life and Science of Parkinson’s Podcast

Community Group
PD Avengers

Guests’ Books
Ending Parkinson’s Disease: a Prescription for Action by Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD and Bastiaan R. Bloem MD PhD

References
(1) https://www.who.int/news/item/14-06-2022-launch-of-who-s-parkinson-disease-technical-brief
Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

Learn more about your ad choices. Visit megaphone.fm/adchoices
22 min
July 28, 2022 Trailer: Welcome to the Parkinson's Disease Podcast
The World Health Organization reports that the number of people with Parkinson's disease has doubled over the past 25 years, estimating over 8.5 million individuals living with Parkinson's globally. (1)
A diagnosis brings questions, concerns and fears about what lies ahead. The Parkinson’s Disease podcast is a miniseries told by people living with Parkinson’s disease, their loved ones and health experts. We explore what causes Parkinson’s, how it’s diagnosed, and the treatments that are available.

And we discuss how caregivers and loved ones can cope with Parkinson's disease, too.

Listen, follow and share this series with the people in your life.

Follow: Website | Twitter | LinkedIn | Facebook | Instagram

For informational purposes only. Please consult a registered health professional for advice.

The Parkinson's Disease Podcast is made possible with support from Altoida and LSVT Global.

References
(1) https://www.who.int/news/item/14-06-2022-launch-of-who-s-parkinson-disease-technical-brief

Learn more about your ad choices. Visit megaphone.fm/adchoices
3 min

About Parkinson's Disease Podcast, by Health Unmuted

From the publisher's feed

The Parkinson’s Disease podcast is a miniseries told by people living with Parkinson’s disease, their loved ones and health experts. We explore what causes Parkinson’s, how it’s diagnosed, and the treatments that are available. And we discuss how caregivers and loved ones can cope with Parkinson's disease, too.