Dr. Heather Walter is a CF Mom.  I first heard Heather speak at a Mom's retreat in 2021 (via zoom). I was so impressed with her I asked her to speak on this podcast.

She is the Director of the School of Communication at The University of Akron and a professor of organizational communication.

Dr. Walter’s research is focused in the area of organizational communication and conflict, with a focus

on health organizations and post-trauma health communication. She has published many journal articles

and chapters on this topic, including several case studies designed to show the applied nature of

communication research. She has a textbook in press and available in January 2022, titled “Casing

Conflict Communication.” She currently serves as a faculty fellow for the Center for Conflict

Management and works regularly with local community organizations and hospitals to improve

communication skills and patient advocacy.

Video promoting the podcast: https://youtu.be/RoXurtSA2R8

Dr. Heather Walter Bio: https://www.uakron.edu/schlcomm2/faculty/bio-detail.dot?u=hlrosen

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

Sponsored by  https://www.fordfund.org/globalcaringmonth  

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Joan Galinken is a CF Mom who lives in New Jersey.  Her son Jesse is 33 years old, married and a new father. It's been a long road of ups and downs like the CF journey always is.  In the height of the pandemic Jesse got his new lungs. Joan talks about the fear of getting transplant in June of 2020, and about the transplant itself.  She would love to connect with other CF Mom's how have kids who received a lung transplant.  You can reach out to her at the email address below.

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

Sponsored by  https://www.fordfund.org/globalcaringmonth  

To contact Joan Galinkin:  [email protected]

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Steven Strickland is 28 years old and he's dealt with his own mortality more than he'd like. He was hoping to get a double lung transplant, but had to get rid of a deadly bacteria first (not once but 4 times).  Then, after waiting years to be listed and almost dying....he said, "No."  You'll hear why in this podcast.

Today he's an employee at the Apple Store in Troy, MI and owner of his own company, Giant Helmet.

Steven talks about the tough decisions he continues to make about transplant, mental health and his future.

 Stricklands company will donate proceeds to our Foundation and the Rock CF Foundation.  Strickland mentioned this in his podcast but made the official announcement after this podcast was released.  The hockey sticks he cells will help pay for the Giant Helmets he donates to teams like the Detroit Lions, Detroit Red Wings and Detroit Tigers. Check out his website to see how you can purchase one (and remember, donations will go to his two CF charities of choice)!

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

For more on Steven's Giant Helmets, you can check out https://gianthelmet.com/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

Sponsored by  https://www.fordfund.org/globalcaringmonth  

To reach Lorna McEwan: https://www.facebook.com/lorna.l.mcewan

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

61 year old Lorna McEwan lives in Saskatchewan, Canada where she is the oldest person living with cystic fibrosis.  She's a well known advocate, working to help CF families.  She lost two brothers to the disease and her son.  How can she even get out of bed in the morning? Is that what you're thinking?  Well wait until you meet her in this podcast!  She will inspire you, and lift you up.  She's an incredible woman sharing her journey with us in the Mums to Moms podcast(Beth Vanstone, Laura Bonnell and Patti Tweed).  It's all about empowerment!

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

Sponsored by  https://www.fordfund.org/globalcaringmonth  

To reach Lorna McEwan: https://www.facebook.com/lorna.l.mcewan

The original music in this podcast is performed by Marc Cotterell, who happens to have Cystic Fibrosis.   You can find him on Instagram here: https://www.instagram.com/m4rccotterill/ 

Or here on twitter: https://twitter.com/MarcCotterill

Or on YouTube here: https://studio.youtube.com/channel/UCxPDZTZt3hBuyomkxLFttNw/videos/upload?filter=%5B%5D&sort=%7B%22columnType%22%3A%22date%22%2C%22sortOrder%22%3A%22DESCENDING%22%7D

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Michele Ciancimino is an Integrative Nutrition Certified Holistic Health Coach. Michele provides coaching and support to individuals dealing with Cystic Fibrosis to help them successfully implement the nutrition recommendations of their care team.  Inspired by her daughter’s journey with CF and the powerful impact of good nutrition, this work is from the heart.  “My personalized approach begins and stays focused on you and what your body needs to run better. I walk alongside you as you transform your body, adjusting your plan as needed to make sure you are supported in achieving the results you desire.”

On the personal side, Michele's passions are ballet barre workouts, cooking healthy meals for friends and family, and playing with her rescue dogs. 

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Connect with Michele: https://goodnessgirl.com 

Vertex Pharma - the science of possibility.  https://www.vrtx.com

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

How I met Kate Bryan, the 1 Girl Revolution.    A mutual friend told Kate about me and The Bonnell Foundation.  I was still a news reporter at WWJ, and working on my Foundation.  Kate came to my house to record the podcast and we hit it off!  Kate has terrific energy and is doing amazing stories on her 1 Girl Revolution podcasts. Kate has an Emmy-Nominated short documentary “The Girl Inside” about incarcerated women.  You can also her the incarcerated women on Kate's podcast series.  Go Kate!

1 Girl Revolution Website and Podcast: https://1girlrevolution.com/

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

CF Dad's have a lot to say!  They don't gather like CF Mom's do (on zoom or at a gathering), but they do have a lot on their minds.  It was wonderful to get my husband Joseph Bonnell and Pastor David Hoffman together to talk about how Dad's think, and what gets them talking about CF.  The conversation began after a Dad's retreat couldn't gather enough Dad's to hold the conference, and so we started talking!  If you're interested in talking to Joe or Pastor David, please shoot us an email and we will connect you!

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Fifty one year old Chris MacLeod has lived a life of lessons, and he wants to share them with you in his new book, "Beating the odds". His life began with a heart condition and then cystic fibrosis diagnosis.  As an attorney he fought for clients sometimes while he was on oxygen.  His incredible story about remaining focused and present. MacLeod's advice is good for anyone...whether you have CF or not.

Link to Chris's Book: https://www.beatingtheodds.ca/

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

Sponsored by  https://www.fordfund.org/globalcaringmonth  

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

Cystic Fibrosis Moms, who have never met, have a common bond: they know what a disease does to their child(ren), marriage and to their mental health. Laura Bonnell, Beth Vanstone and Patti Tweed all have one or more kids with the disease. The women came together to discuss all the challenges Moms (and Mums in Canada) face.  Their hope is to get Mom's talking to each other about all the challenges they face.  We will feature other Moms and clinical experts too.  We want your input so please shoot us an email: [email protected]   Thank you.

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

Sponsored by  https://www.fordfund.org/globalcaringmonth  

The original music in this podcast is performed by Marc Cotterell, who happens to have Cystic Fibrosis.   You can find him on Instagram here: https://www.instagram.com/m4rccotterill/ 

Or here on twitter: https://twitter.com/MarcCotterill

Or on YouTube here: https://studio.youtube.com/channel/UCxPDZTZt3hBuyomkxLFttNw/videos/upload?filter=%5B%5D&sort=%7B%22columnType%22%3A%22date%22%2C%22sortOrder%22%3A%22DESCENDING%22%7D

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

International Biophysics Corporation (IBC)  creates innovative medical devices.  Their devices improve treatment therapies and patient outcomes.  For cystic fibrosis patients IBC created the afflovest.  Prior to the pandemic Bonnell Foundation founder, Laura BonnellI tried on a vest at the North American CF Conference (NACFC) in Nashville. President and Ceo David Shockley was show parents, patients and doctors the vest.  Shockley is a wonderful, down to earth person who is commitment to making life better for people with a disease or condition.  IBC also makes cools things like ozone generators for the space shuttle.  They make heart pumps, surgical tubing and more. 

In this podcast we are delighted to tell you that you'll hear from Neal Smith, Director of Marketing and Education for International Biophysics. Thank you.

International Biophysics Website: https://biophysicscorp.com/

For more information on The Bonnell Foundation find us at https://thebonnellfoundation.org/

Vertex Pharma - the science of possibility.  https://www.vrtx.com

The original music in this podcast is performed by Kevin Allan, who happens to have Cystic Fibrosis.  You can find him on Facebook here: https://www.facebook.com/KevinAllanMusic

This podcast was produced by JAG in Detroit Podcasts. https://jagindetroit.com/

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: [email protected]

Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featured

New: Shop our merchandise! https://thebonnellfoundation.org/product-shop/

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

Read us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-page

Watch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y