Living with Long covid

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This is part 3 of the short series of podcasts with the wonderful Rachel Jessey from Benourished. Rachel has so much knowledge and experience which is why we have discussed several interrelated topics over the 3 podcasts.
In this episode we focus on disrupted sleep, the process of natural  melatonin and cortisol to support and regulate the sleep pattern and the wake pattern in correlation with the circadian rhythm. We talk about natural light vs artificial light to support people who are bed bound or light sensitive, meeting the person where they are with their chronic illness.
Rachel and I discuss the benefits of introducing light during sunrise to release the natural cortisol triggering the healthy cortisol awakening response.
Rachel explains how having mobile phones and wearing smart watches during the night causes sleep disruption, this is because they are all connected to the wifi and emit electromagnetic frequencies, these can destabilise electrons, she explains how if you have MCAS the electrons are already destabilised.
We discuss the importance of food for energy and the cortisol levels and avoid low blood sugar levels which takes the body into "fight or flight". Have a listen to the podcast to find out so much more.

Thank you so much for listening, as always take care #onedayatatime

Links from this episode:

Rachel's details:
https://www.benourished.co.uk
Email: [email protected]

Lumie lights
https://www.lumie.com/?gad_source=1&gbraid=0AAAAAD_riileLYc6GY0VVqc7s2WyLYPw_&gclid=Cj0KCQjw0Oq2BhCCARIsAA5hubV7i1esrD8JF3Ogs3TVl4gyOlV-BxTRkyFFcMkoAVyLlWeNXBplPI4aAlHOEALw_wcB

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

Following on from the last episode of the podcast, as promised this is part 2 with Rachel Jessey from Benourised. We continue and expand on the short conversation we had at the end of the last episode on faecal implant, Rachel has so much knowledge and this is a really interesting topic.
We also talk about the circadian rhythm and how we can reset this rhythm which supports the natural absorption of vitamin D, sleep, digestion and more. I explain what I put into practice during my recent holiday and what the impact this has had , listen to this episode of the podcast to find out more. Rachel talks about the benefit of natural light thinking about the full spectrum of light, sunrise and sunset. Rachel and I talk about the different severities of chronic conditions and how we can support and meet patients where they are in their journey, and what benefits this can have. We touch upon the benefit of red light and will have a part 3 to this podcast to discuss this in more detail. This is another podcast filled with lots of information, I really appreciate Rachel joining me.
As always thank you for listening to the podcast #onedayatatime
 
Links from this episode:
Rachel’s details:
https://www.benourisehed.co.uk/
Email:
[email protected]

Jack Ruse
https://jackkruse.com/

Alexander Marakovsky
https://www.longdom.org/open-access/the-industry-originated-probiotic-bacteria-role-in-covid19-60345.html

Documentary: Hack Your Health: The Secrets of Your Gut
https://www.netflix.com/title/81436688 

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

In this episode of the podcast I talk with a fantastic returning guest Rachel Jessey.
We talk about all things gut related and the microbiome, Rachel explains how these can be effected by the Circadian rhythm and also how and what we can do to help support a "healthy gut". Listen to Rachel talk about a study that supports the thought process that the circadian rhythm is an important factor for gut health.
Rachel explains how important the cortisol is within this rhythm, we expand on how the Cortisol can be low in people with Long Covid/post viral conditions.
We discuss symptoms challenges and how treatment that we may need has an adverse effect on the gut, but what can we do about it? Rachel shares some little nuggets that may be able help counterbalance those effects.
We briefly touch on faecal implant and this will be expanded on in a later podcast!
Rachel has an educational course available; HIT and MCAS Masterclass, the links for this are below.
As always thank you for listening to the podcast, #onedayatatime

Links from this episode:
Rachel’s details:
https://www.benourisehed.co.uk/
Email:
[email protected]

Jack Ruse
https://jackkruse.com/

Alexander Marakovsky
https://www.longdom.org/open-access/the-industry-originated-probiotic-bacteria-role-in-covid19-60345.html

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

In this episode of the podcast I am grateful to speak with Gary and Karen, they talk with me openly about their acute and Long Covid journey as a married couple.
We discuss how long covid impacts life and "the person we once was", Karen reads an impacting piece she wrote through a creative writing group titled "The goldfish bowl". I am sure this will resonate with many.
Gary and Karen have been involved with fund raising and their local community pre pandemic and although things have changed for them, their kind and supportive hearts have led them to running an online and now also face to face Long Covid support group in their local area, listen to find out more, thank you so much to both Gary and Karen for joining me #onedayatatime

Links from this episode:

Long Covid Zoom Support group is held every fortnight on a Monday morning at 10.30 am and our next meeting, after the podcast, will be on July 22nd:
To Join Zoom Meeting
https://us02web.zoom.us/j/89081011346?pwd=MDZsNUJ4WlNHVVlSZEdvTiszMFBZZz09

Meeting ID: 890 8101 1346
Passcode: 123456

Karen and Gary have said “Although we hold the group for people who live on the Fylde coast, as we know how the local clinics and referrals work, others are welcome to join”

Facebook page:
 https://www.facebook.com/groups/387302115930921/

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

In this episode of the podcast, I have returning guest Rachel Hext. Rachel and I talk ahead of the UK general election, we discuss the floors, failings and ongoing issues around the pandemic, clean air and PPE. 
Rachel talks about her advocacy work including being part of media interviews and Panorama, and specifically Keyworker petition. She recalls the groups day at number 10 delivering their petition, the impact of this and support from certain MP's.
We reflect ahead of the general election on the doorstep clapping at number 10 and the infamous WhatsApp messages and documents relating to Long Covid. 
This podcast is filled with broad and relevant discussions, from children, clean air, teachers, retail workers, disability, gaslighting and so much more. 
As always thank you for listening to the podcast #onedayatatime 

Links from todays episode: 
APPG on coronavirus- report Dec 2020

https://d3n8a8pro7vhmx.cloudfront.net/marchforchange/pages/326/attachments/original/1606989975/APPG_on_Coronavirus_Interim_Report_December_2020__%282%29.pdf?1606989975

Recommendations- compensation scheme

https://www.pslhub.org/learn/coronavirus-covid19/appg-on-coronavirus-long-covid-report-22-march-2022-r6432/

Breathtaking 

https://www.itv.com/watch/breathtaking/10a4089?gad_source=1&gclid=CjwKCAjwydSzBhBOEiwAj0XN4O9R3xoNuA0z2Fw30GrDFjhuzxO4z-UPFtw3e4ag_77DU0rT2nQzCRoCxPAQAvD_BwE

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

In this episode of the podcast, I talk about reaching the 4 year mark of living with Long Covid.
I don't like to acknowledge this as an anniversary but I wanted to acknowledge the time that has passed, and what I have learnt along the way. It is strange how 4 years is such a long time, and in one way it has felt like the longest time ever! and the other has me questioning 'where have those years gone?'
This is a reflection of the last 4 years and I wanted to acknowledge that, and the impact it has had/has on those we love the most. I think it's important to consider how much life has changed and how hard that is sometimes, but I also wanted to acknowledge how much we learn, and evolve, the resilience and hope.
I hope you enjoy this episode of the podcast; please feel free to contact me if you would like me to discuss a particular topic or if you would like to be a guest on the podcast.
Take care, see you on the next podcast #onedayatatime.

Link from todays episode:

FEVER
https://open.spotify.com/artist/6sqc5lrCbcsjjpTAp6m6cH?si=oRvx9bDEQJC_6A8ZHmNyhA

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

On this episode of the podcast I chat to freelance writer and editor A. K. Davidson.
We talk about her book; Poetry for life and other chronic conditions, which is due out on the 6th June, the link to pre order the book can be found below.
Anna talks about her journey and experiences with acute and Long Covid, and how she now feels recovered, in a slower more thoughtful pace of life.
We discuss how Anna put pen to paper to create these short and thoughtful poems, she admits this was not something she enjoyed while studying at university, however has found a source of therapy in being able to express her feelings while living with a chronic illness.
As always thank you for listening to the podcast #onedayatatime

Links from todays episode:
https://www.instagram.com/@mondayispoetry
Anna's website:
https://www.therightword.co.uk
Links to pre order the book; Poetry for life and other chronic conditions

Waterstones:
 https://www.waterstones.com/book/poetry-for-life-and-other-chronic-conditions/a-k-davidson/9781899587827

Amazon:
 https://www.amazon.co.uk/Poetry-Life-Other-Chronic-Conditions/dp/1899587829/ref=sr_1_1?crid=2IL7OGIOVK6ZZ&dib=eyJ2IjoiMSJ9.J2C0eZVgv0a0rwtR60gCd3E88P4TiAp2z9zaECD41O9ljGdleXjp-0RXYmp-qdfE_hrVtoaJa3P5oBTnkO0UgE6yO81-ZbryVnrZofzOvK0TV6qc7MA9vpFHUTdGsHqLmeIiG4dbJlqQre9xOh64RBl-x8y0z8uLZzcToGydhU2KDWEmf_qq0zoB2uyUOuV6WsURQ9rekxhSTHCNt3lC2Q.1HoKBphcxfKGLJyLfQ2rqRjNUeHssui9bNJbCyvvIV4&dib_tag=se&keywords=poetry+for+life+and+other+chronic+conditions&qid=1713546303&sprefix=%2Caps%2C93&sr=8-1

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

In this episode of the podcast I talk with Jess, the founder of the Turnto app, and Ally from Turnto Long Covid.
Jess shares her inspiration for the Turnto app and her personal  journey with her son who has a rare form of cerebral palsy, and the challenges navigating health care services and trying to find treatment and  support (and what a journey!!). Jess explains how this has led to the development of the Turnto app. We discuss the reason for the app, the content and the resources within the app.
I also talk with Ally, who lives with Long Covid, she explains her journey and how she connected with Jess, and the ongoing development and the upcoming release of the Turnto app for Long Covid, and also the app for ME/CFS.
This is an innovative app, and more is explained on the podcast, you can join the waiting list to be one of the first to access this FREE app, links are below.
*Disclaimer, I have no affiliation with the app*
As always, thank you for listening to the podcast #onedayatatime

Links from todays episode:
Waiting list for Turnto - ME/CFS
https://waitlist.turnto.ai/me-cfs
Waiting list for Turnto - Long Covid app:
https://waitlist.turnto.ai/longcovid
Instagram
https://www.instagram.com/turnto_longcovid/
Ally
https://www.instagram.com/livinglongcovid
Charlotte
https://www.instagram.com/living.with.me.cfs
Holly
https://www.instagram.com/chronicfatiguecompanion 

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

In today's episode of the podcast I talk with my son Alexander.
Alexander and I were talking some time ago, and he explained to me this concept of "safe space" which he had been thinking about. He explained he was developing and applying  this to everyday life, but specifically to the salon he works in. He currently works at Rebecca Dickinson's salon in Bawtry; RD hair, body and soul; Alexander talks about how he wants to make sure the salon he works in is accessible to all, considering physical, emotional and mental health.
We discuss how he is the "safe space" for his clients and the salon environment and his colleagues are his "safe space". We talk about adaptations, accessibility, future plans and opportunities and how other services could implement safe space for inclusion and so much more. This is an inspiring podcast and I thank my son for joining me.
As always #onedayatatime take care, see you on the next podcast. 

Links from today's episode:
https://www.facebook.com/Alexander__hair
https://www.instagram.com/Alexander__hair
https://www.facebook.com/RDhairbodyandsoul 
https://www.instagram.com/RDhairbodyandsoul
https://www.mind.org.uk

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc

Send us a text

As requested by those of you who follow me on social media, in this episode of the podcast I am sharing my experience so far, of using a fitted vagus nerve stimulator (VNS). I have aimed to answer all of the questions you guys asked me. I have given some information on the VNS, how it is fitted, what it does and how I am finding it at this point, including any symptom improvement.
I touch upon alternatives for stimulating the vagus nerve and what the suggested benefits are with using vagus nerve stimulation.
I feel positive, and I hope this episode of the podcast is useful for you.  As always #onedayatatime take care, see you on the next podcast.

https://pubmed.ncbi.nlm.nih.gov

My Links:
Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: [email protected] for more information

Linktree:
https://linktr.ee/joulest
X
https://twitter.com/julieTa58407536
Facebook page:
https://www.facebook.com/livingwithlongcovid/
Instagram:
https://www.instagram.com/julie_livingwithlongcovid
Planners:
https://amzn.eu/d/9v9MP4v
Return to work planner:
https://amzn.eu/d/1QVK8zn
Well being planner:
https://amzn.eu/d/a1Safxc