Welcome to a festive and reflective episode of our podcast, where Ross and Luis take you on a delightful journey through the holiday season and the highlights of 2023. As the year comes to a close, join us in celebrating the joy of Christmas while unravelling Luis's potential undercover Grinch tendencies.
In this special episode, we'll rewind the tape and revisit the incredible year we've had on the podcast. From thought-provoking conversations to inspiring guest interviews, 2023 has been a year of growth, learning, and memorable moments. We'll share some of our favourite episodes, insights gained, and the impact we've had on our community.
But that's not all—we're also setting our sights on the horizon and diving into our exciting plans for 2024. Whether it's new topics, innovative formats, or engaging collaborations, we'll give you a sneak peek into what the future holds for our podcast.
Join us as we wrap up 2023 with laughter, gratitude, and a sprinkle of holiday magic. Whether you're a loyal listener or joining us for the first time, this episode is a warm invitation to reflect, rejoice, and look forward to the adventures that await in the new year. Tune in now and let's spread the festive cheer together! 🎄🎉🎁

#PodcastRewind #FestiveReflections #UndercoverGrinch

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 
You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 
 
If you would like to participate in any of our podcasts please email [email protected]
 
Living With SMA Disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome to an inspiring episode of our podcast, where we delve into the remarkable journey of Sam and Alex, two extraordinary individuals living with SMA (Spinal Muscular Atrophy). In this heartwarming conversation, we explore "A Positive Mindset and Career Aspirations" and how their experiences have shaped them into the determined, optimistic, and vibrant individuals they are today.
 
Despite the challenges they've faced, Sam and Alex radiate positivity and embody the best versions of themselves. Their resilience and zest for life testify to the indomitable human spirit. In a world where many 18-year-olds may take their positivity for granted, Sam and Alex's perspective offers a fresh and inspiring outlook.
 
Join us as we journey through their university experiences, where they've embarked on intriguing projects that showcase their creativity and drive. From navigating the academic landscape to pursuing their unique interests, they share the ups and downs of their educational journey.
 
But that's not all—Sam and Alex have a dream to write a sitcom based on their misadventures and shenanigans. Their humour and camaraderie shine through as they discuss this exciting project, showing their boundless imagination and determination.
 
This episode is a reminder that a positive mindset can shape your outlook on life and your career aspirations. Sam and Alex's story is a testament to the power of resilience, determination, and the pursuit of dreams. Tune in now and be inspired by their incredible journey of optimism and ambition.

#PositiveMindset #Zest #DisablityCareerAspirations #livingWithSMA

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 
You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 
 
If you would like to participate in any of our podcasts please email [email protected]
 
Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome to a deeply moving and enlightening episode of our podcast, where we shine a spotlight on "The Importance of Spinal Muscular Atrophy Advocacy" and the transformative power of social media in advocacy efforts. In this remarkable conversation, we are joined by four extraordinary individuals - Portia, Eden, Hamany, and Maxwell - who are helping to drive change in the world of Spinal Muscular Atrophy (SMA) advocacy.
Our guests share their heartfelt stories and reveal why they are so passionately dedicated to this vital advocacy cause. Through their voices, we explore the profound impact SMA has on the lives of individuals and their families, igniting the flames of their advocacy journey.
But this episode is not just about the challenges they face; it's a celebration of their resilience and their unwavering commitment to making a difference. We dive into the diverse mediums they utilize, from heartfelt messages to the simple act of sharing posts, and how these seemingly small actions have a ripple effect that reaches far and wide.
Join us as we uncover the inspiring goals they're striving to achieve within the SMA community and beyond. It's a testament to the fact that you don't need to be a loud and proud voice on the front lines to contribute to a cause. Every message, every share, every act of support matters.
This episode is a call to action, an invitation to be part of something bigger than ourselves, and a reminder that even the quietest voices can make the most significant impact. Tune in now and be inspired by these remarkable advocates who are changing lives through their dedication and the power of social media.

#Advocacy #QuietHeroes #InspiringStories #livingWithSMA

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 
You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 
 
If you would like to participate in any of our podcasts please email [email protected]
 
Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome to a thought-provoking and eye-opening episode of our podcast, where we delve into the world of online trolling and how it can impact individuals striving to achieve their goals. In this episode, we have the privilege of speaking with the resilient and inspiring Alex Dacy, who shares her incredible journey of handling ruthless online trolling while pursuing her dreams.

Online trolling has become an unfortunate reality in today's digital age, where anonymity often fuels cruelty. Join us as we uncover the harsh realities of cyberbullying and the toll it can take on one's mental health and motivation. We'll explore the stories of relentless online attacks, yet she emerged stronger and more determined than ever.

Our guest, Alex, has not only confronted online trolls head-on but has also turned her experiences into a source of empowerment and advocacy. She'll reveal her strategies for safeguarding her goals and mental well-being in the face of adversity. From managing social media platforms to finding support networks, Alex's insights are invaluable for anyone navigating the online landscape.

This episode is a call to action against the toxic culture of trolling, emphasizing the importance of resilience, self-care, and building a positive digital community. It's a testament to the indomitable human spirit that refuses to be silenced by negativity.

Tune in now and join us for a candid and empowering conversation with Alex Dacy as we explore the world of online trolling and the strength it takes to rise above it.

#Resilience #DownToTrolling #Positivity #livingWithSMA

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 
You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 
 
If you do have any questions for Becca or Ellie and the team or would like to participate in any of our podcasts please email [email protected]
 
Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome back to the highly anticipated second part of our podcast episode on the profound connection between mental health and living with a long-term condition. Building upon the captivating story we shared in Part 1, this episode delves deeper into the transformative power of finding support and the results that can come from it.
In this continuation, we explore the pivotal role of support for people living with a long-term condition. We shine a light on the paths they can take to find the support the needed and the incredible outcomes that unfolded as a result.
Join us as we uncover the strategies, resources, and networks that are available. From discovering supportive communities to accessing professional assistance, we delve into the practical aspects of seeking and receiving the support necessary to navigate the challenges of a long-term condition.
Through powerful anecdotes and insightful discussions, we'll share first hand accounts of the triumphs and breakthroughs that were made possible through unwavering support. We'll explore the ways in which support systems can empower individuals, promote resilience, and unlock their full potential.
This episode not only showcases the importance of finding support but also highlights the incredible achievements that can be realized when individuals are equipped with the tools and resources they need to thrive.
Whether you're personally impacted by a long-term condition, searching for guidance on finding support, or simply seeking inspiration and hope, this episode promises to captivate and enlighten you.
Tune in now and join us on this empowering and transformative exploration of mental health and living with a long-term condition. Discover the incredible possibilities that lie within the reach of those who bravely seek support and witness the remarkable achievements that can be attained along the way.
 
 #MentalHealthJourney #LongTermConditionSupport #thrivingthroughsupport

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 
You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 
 
If you do have any questions for Becca or Ellie and the team or would like to participate in any of our podcasts please email [email protected]
 
Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome to a truly inspiring and heartfelt episode of our podcast, where we embark on a deeply personal journey exploring the powerful connection between mental health and living with a long-term condition. In this first part, we delve into the extraordinary story of how an individual with Spinal Muscular Atrophy found solace and support through an unexpected bond with a Mental Health Professional during their time in university.

Join us as we unravel this remarkable tale of resilience, compassion, and mutual growth. We'll hear first hand accounts from Becca and Ellie, sharing their lived experiences of navigating the challenges of Spinal Muscular Atrophy while simultaneously facing the complexities of mental health.

Through their story, we witness the transformative power of genuine human connection and the incredible impact that compassionate support can have on one's mental well-being. Together, they formed a unique alliance, where their shared experiences and unwavering support became a lifeline in the face of adversity.

In this episode, we'll explore the nuances of their relationship, the challenges they overcame, and the invaluable lessons they learned along the way. We'll also delve into the broader implications for the intersection of mental health and long-term conditions, highlighting the importance of accessible mental health support for all individuals facing similar circumstances.

This episode is an emotional and thought-provoking testament to the profound impact that genuine connection and understanding can have on one's mental health journey. It serves as a reminder that no one should face the challenges of a long-term condition alone.

So, whether you're personally touched by a long-term condition, passionate about mental health advocacy, or simply seeking inspiration and hope, this episode is a must-listen.

Tune in now and join us as we embark on a transformative exploration of mental health and living with a long-term condition, through the remarkable journey of our guests and their connection during their university years.

 #MentalHealthJourney #LongTermConditionSupport #InspiringConnections

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 

You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 

If you do have any questions for Becca or Ellie and the team or would like to participate in any of our podcasts please email [email protected]

Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome back to our podcast, where we continue to explore the fascinating journey of transitioning into school. In this special episode, we shift our focus to the next stage: transitioning from primary to secondary school.

Join us as we dive deeper into this significant milestone in a child's educational journey. We'll hear from Grace McManus (mum of Sonny who lives with SMA) and our host Ross Lannon who share their insights and experiences on the social, emotional, and academic aspects of transitioning to secondary school.

Building upon our previous discussion on nursery to primary transition, we'll tackle new challenges and opportunities that arise during this period. From navigating a larger school environment to adapting to new subjects and routines, we'll explore the practical considerations and offer strategies to help ease the transition.

Additionally, we'll delve into the emotional dynamics that both students and parents may encounter during this pivotal time. With the right guidance and support, we can empower our children to embrace this new chapter and thrive in their secondary school experience.

So whether you're a parent, educator, or simply curious about the transitional journey, this episode is packed with valuable insights and practical advice. Join us as we continue to uncover the keys to a successful transition from primary to secondary school.

Tune in now and let's embark on this exciting exploration of transitioning into school.

Welcome to our next episode, where we explore the exciting and sometimes challenging journey of transitioning into school, from nursery to primary.

In this episode, we'll be diving deep into the many aspects of this significant milestone in a child's life with SMA. We'll hear from Portia Thorman and Charlotte Lavelle, as we explore the social, emotional, and academic dimensions of transitioning to primary school.

We'll discuss the practical considerations of preparing for school, from selecting the right school to managing the logistics. We'll also explore the emotional challenges that children and parents may face during the transition, and offer strategies for coping and thriving during this time of change.

Through it all, we'll seek to build a deeper understanding of the importance of this transition for a child's growth and development, and how we can work together to support children and families during this exciting and sometimes daunting time.

So if you're a parent or caregiver navigating the transition to primary school, or a teacher or professional working with children during this critical phase, then join us for this engaging and informative episode.

Tune in now and let's explore the many dimensions of transitioning into school from nursery to primary.

#TransitioningToSchool #StartingPrimary #ChildDevelopment #LivingWithSMA 

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA
This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

You can contact SMA UK on the following social media platforms ⬇️⬇️
▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
▶ | TWITTER:  https://twitter.com/SMA_UK_
▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscul...

If you do have any questions for Portia, Charlotte, and the team or would like to participate in any of our podcasts please email [email protected]

Living With SMA disclaimer:
The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome to the latest episode of our podcast, where we take an unflinching look at the state of care in the UK today.

As one of the wealthiest countries in the world, the UK has a moral obligation to provide high-quality care for all its citizens, particularly those who are vulnerable or in need. But as we'll discover in this episode, the reality is far from ideal.

We'll be delving deep into the complex web of challenges facing the care system, from chronic underfunding to understaffing and inadequate training. We'll hear from Ross Lannon, Luis Canto E Castro, Michaela Hollywood, and Katy Etherington who are directly impacted by the system, as we explore the causes and consequences of the current state of care in the UK.

But we'll also be shining a light on the inspiring efforts of individuals and organizations who are working tirelessly to improve care for all. From innovative new technologies to community-based initiatives, there are glimmers of hope and progress amidst the challenges.

So if you're ready to confront the harsh realities of the state of care in the UK, while also discovering the promising developments and solutions emerging, then join us for this crucial and thought-provoking episode.

Tune in now and let's start a conversation about how we can work together to ensure that every person in the UK receives the care they deserve.

*THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*
This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

You can contact SMA UK on the following social media platforms ⬇️⬇️

▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
▶ | TWITTER:  https://twitter.com/SMA_UK_
▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/

If you do have any questions for Ross, Michaela, Katy, Luis, and the team or would like to participate in any of our podcasts please email [email protected]

*Living With SMA Disclaimer*
The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.