Living With SMA

Living With SMA

By Spinal Muscular Atrophy UK (SMA UK)BusinessNon-Profit
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Living With SMA episodes

  • 25: Unleashing The Potential of Sport

    Welcome to a brand new episode of our podcast, where we explore the incredible power of sport to transform lives and unleash human potential!

    In this episode, we'll be diving deep into the many ways in which sport can inspire, challenge, and elevate us to new heights. From the thrill of competition to the camaraderie of team spirit, sport has the unique ability to bring out the best in us, both as individuals and as a community.

    We'll be hearing from Cath McNicol and Jack Humphries. They'll be sharing their personal stories and insights, and discussing the many ways in which sport can help us achieve our goals, overcome obstacles, and live our best lives.

    So if you're ready to be inspired, motivated, and energized by the incredible potential of sport, then this is the episode for you!

    *THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*
    This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    ▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
    ▶ | TWITTER:  https://twitter.com/SMA_UK_
    ▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/

    If you do have any questions for Jack, Luis, Cath and the team or would like to participate in any of our podcasts please email [email protected]

    *Living With SMA Disclaimer*
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such. 


    51 min
  • 24: How to surprise your family at Christmas

    Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE)

    SMA UK host Ross Lannon chats to guests Luis Canto E Castro and Cath McNicol about festivities and how we can surprise our loved ones with gifts this Christmas when you have a disability.

    *THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*
    This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    ▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
    ▶ | TWITTER:  https://twitter.com/SMA_UK_
    ▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/

    If you do have any questions for Ross, Luis, Cath and the team or would like to participate in any of our podcasts please email [email protected]

    *Living With SMA - 'How to surprise your family at Christmas' disclaimer:*
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    38 min
  • Ep23: Social Media

    Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE)

    SMA UK host Ross Lannon chats to guests Sandie Roberts and Maxwell Mcknight about social media. Exploring the pros and cons and looking at how it can offer a great job opportunity for people and even lead to a career!

    *THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*
    This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    ▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
    ▶ | TWITTER:  https://twitter.com/SMA_UK_
    ▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/

    If you do have any questions for Ross, Sandie, Maxwell and the team or would like to participate in any of our podcasts please email [email protected]

    *Living With SMA - 'Social Media' disclaimer:*
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    52 min
  • 22 - The Right Mindset

    Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE)

    *TRIGGER WARNING*
    The conversations that take place today are of a sensitive nature regarding mental health, disability and mindset. 

    THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA

    This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

    SMA UK host Ross Lannon chats to guests Anna Litvinova and Luis Canto E Castro about 'The Right Mindset'.

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for Ross, Anna, Luis and the team or would like to participate in any of our podcasts please email [email protected]

    SMA UK Support & Outreach Service:

    https://smauk.org.uk/the-outreach-service

    Mind:
    https://www.mind.org.uk/information-support/

    Samaritans:
    https://www.samaritans.org/how-we-can-help/contact-samaritan/talk-us-phone/

    Living With SMA - 'The Right Mindset' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    53 min
  • 21 - Part 2: Higher Education, University & the transition Into employment

    Welcome to the Living With SMA Podcast.

    In PART 2️⃣  of Episode 21 of the #LivingWithSMA Podcast we'll be looking at the pros and cons of university. We'll also be talking about work experience and sharing advice for those who decide not to go to university.

    #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy

    Watch this episode on our YouTube channel here.

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for Ross, Mia, Steven and the team or would like to participate in any of our podcasts please email [email protected]

    Living With SMA-'Higher Education, University & the transition into employment' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    23 min
  • 21 - Part 1: Higher Education, University & the transition into employment

    Welcome to the Living With SMA Podcast.

    In PART 1️⃣ of Episode 21 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon talks to Mia Myers and Steven Jones about the university experience. They also look at whether having a disability makes you look at things differently when exploring higher education and they talk about accessibility and fighting for justice.

    Watch this episode on our YouTube channel here.

    Ross, Mia and Steven all come from different angles.  Mia is currently at University, Steven has graduated from University and in employment and Ross did not go to university, but is doing also in employment and doing a career he loves.

    The aim of today's podcast is to share the experiences of Ross, Mia and Steven and to show that regardless of your disability, interests and education, you can still get to where we want to be!

    #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for Ross, Mia, Steven and the team or would like to participate in any of our podcasts please email [email protected]

    Living With SMA-'Higher Education, University & the transition into employment' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    27 min
  • 20 - Part 3: Disability & Education

    Welcome to the Living With SMA Podcast.

    In PART 3 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about the barriers they faced during their secondary school experience. We also talk about whether school days really are the best days of our lives and the assumption that people with physical disabilities also have learning difficulties.
     
    #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy

    Watch this episode on our YouTube channel here.

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for Ross, Sam, Alex and the team or would like to participate in any of our podcasts please email [email protected]

    Living With SMA - 'Disability & Education' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    19 min
  • 20 - Part 2: Disability & Education

    Welcome to the Living With SMA Podcast.

    In PART 2 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about the barriers they faced during their secondary school experience. We also talk about whether school days really are the best days of our lives and the assumption that people with physical disabilities also have learning difficulties.
     
    #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy

    Watch this episode on our YouTube channel here.

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for Ross, Sam, Alex and the team or would like to participate in any of our podcasts please email [email protected]

    Living With SMA - 'Disability & Education' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    11 min
  • 20 - Part 1: Disability & Education

    Welcome to the Living With SMA Podcast.

    In PART 1 of Episode 20 of the #LivingWithSMA Podcast, SMA UK Host Ross Lannon chats to 17 year old twins Sam and Alex about having a disability and being in the education system.  We discuss how difficult it was for Sam and Alex to find an accessible school close to home and we also talk about social media and how it has developed over time.
     
    #LivingWithSMA  #SMAUK #SMA #SpinalMuscularAtrophy

    Watch this episode on our YouTube channel here.

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for Ross, Sam, Alex and the team or would like to participate in any of our podcasts please email [email protected]

    Living With SMA - 'Disability & Education' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    16 min
  • 19 - Part 4: SMA Life Through The Ages

    Welcome to the Living With SMA Podcast.

    PART 4 provides a fitting finale to a Episode 19 of the #LivingWithSMA Podcast.  SMA UK Host Luis Canto E Castro chats to 11 year old Sonny and his mum Grace about what life is like with SMA. 

    As August is SMA Awareness Month, we are shinning the spotlight on Spinal Muscular Atrophy by inviting 4 different guests from across the SMA Community to share their own lived experience.   

    Watch this episode on our YouTube channel here.

    #LivingWithSMA  #SMALifeThroughTheAges #SMAUK #SMA #SpinalMuscularAtrophy 

    Each of our guests today shares their own personal views and individual stories.

    You can contact SMA UK on the following social media platforms ⬇️⬇️

    twitter.com/SMA_UK_
    facebook.com/SpinalMuscularAtrophyUK/
    instagram.com/sma_uk

    If you do have any questions for Luis, Sonny, Grace and the team or would like to participate in any of our podcasts please email [email protected]

    Living With SMA - 'SMA Life Through the Ages' disclaimer:
    The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    16 min

About Living With SMA

From the publisher's feed

The charity SMA UK invites different hosts from across the SMA Community together to discuss different topics. This is great place to find useful tips, recommendations, and hear personal stories.

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