What drives a patient organization like Lupus Ontario? The Heart of Lupus Ontario takes you behind the scenes to explore who we are, what we do, and why it matters. Discover how patient voices, advocacy, research, and community support come together to make a lasting impact on the lives of those living with lupus. Whether you're newly diagnosed, a long-time supporter, or simply curious — this podcast reveals the powerful role patient organizations play in shaping better futures.

In this episode, Jodie Nimigon-Young shares her personal journey with lupus, reflects on the 10th anniversary of her book Fabulupus, and discusses how Mindfulness-Based Stress Reduction (MBSR) can support others living with lupus.

In this episode, we sit down with Jan Gillis as she shares her journey living with lupus. Jan opens up about the challenges she has faced, how she navigates daily life, and the activities that keep her motivated. She also offers valuable advice and practical tips for managing lupus and staying positive. Tune in for an inspiring conversation!

To learn more about Elizabeth’s work, upcoming projects, and her free starter kit, visit her website at www.revelinghealth.com. 

In this episode of the Shared Stories Podcast, we feature two inspiring lupus warriors, Alex Gnydjenko and Joseph Gallagher, who openly share their journeys with lupus. They discuss the challenges they've faced, their strategies to navigate life with the condition, and how they've found resilience and strength along the way.

The conversation is filled with valuable insights and practical tips for others living with lupus, offering hope and guidance for those on a similar path. Tune in to hear their stories and gain inspiration from their experiences.

For Lupus Awareness Month this May we are featuring two stories from lupus warriors: Heidi Nielsen and Sunita Mandi.

Heidi shared her story during our Lupus Ontario Gala speaking about how important it is to be your own advocate, while outlining her various symptoms and treatments. “We must find what works best for our bodies.”

To view the video referencing Heidi’s story: https://www.youtube.com/watch?v=uIj8rFBgEZA

Sunita spoke about her journey, focusing on the challenges of the past two years. Advocating for herself, trusting her rheumatologist, exploring new treatments, and leaning on her support team has brought her to a healthier place in her lupus journey.

Join us for these fascinating stories.

If you are looking for a support group to join, visit www.lupusontario.org/support/.

For more information about lupus, visit www.lupusontario.org.

Hello everyone, coming up on the Lupus Ontario podcast, we

We also mention the Alliance for Healthier Communities. If

Hopefully as you listen to this episode you gain some

Question? [email protected]

www.lupusontario.org

Our conversation today is on the Transition of Care - from Pediatrics to Adult Care. We are pleased to be joined by Dr. Stephanie Wong and Nameerah Hasan for today’s conversation.

Dr. Wong is the 2022-2023 Lupus Ontario Geoff Carr Fellow. Having completed her MD at the University of BC, Dr. Wong is expanding her clinical experience at SickKids Hospital in Toronto and also attending the transition clinics at Mount Sinai and Toronto Western. 

Nameerah Hasan is a lupus warrior. Contracting double pneumonia and experiencing a month-long hospital stay at the age of 12, Nameerah began exhibiting other hallmarks of lupus such as fevers, muscle and joint aches, migraines and blood clots. She was treated by the incredible team at SickKids Hospital and eventually diagnosed with SLE and Antiphospholipid Syndrome.

Enjoy the conversation!

In this episode we speak with Dr. Zahi Touma, Director of the Lupus Program at UHN in Toronto, Ontario about organ damage caused by lupus, but also damaged potentially caused by treatments for the disease.

Please send us your lupus questions: [email protected]

Note: this podcast is not intended to convey health information specific to a person's health journey and is intended for educational purposes only. For concerns about your specific health journey, always contact your physicians and/or medical team.