Lymphoma - The Bloodline with Blood Cancer United Podcast

Join us as we speak with Donnie Hill, a chronic lymphocytic leukemia (CLL) / small cell lymphocytic lymphoma (SLL) patient and his doctor, James Essell, MD, of Oncology Hematology Care, Inc. in Cincinnati, OH. In this episode, Donnie and Dr. Essell discuss the importance of shared decision making (SDM) and how they worked together to determine the best treatment course for Donnie’s CLL/SLL. Shared decision making is a key component of patient-centered healthcare that balances risks and expected outcomes with patient preferences and values. Be sure to tune into this real-world example of how SDM works and how patients can have open communication with their healthcare team.

Mentioned on this episode: 

• Chronic Lymphocytic Leukemia (CLL)
• Small Cell Lymphocytic Lymphoma (SLL)
• Shared Decision Making Fact Sheet
• Shared Decision Making in Chronic Leukemias immersive program
• Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) podcast episode
• Minimal/Measurable Residual Disease
• Information Specialists

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Clinical Trial Support Center
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by AbbVie Inc. and Genentech, A Member of the Roche Group.

The post Patient-Doctor Perspectives: Shared Decision Making first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Peter Riedell and Dr. Benjamin Derman from University of Chicago Medicine, about the latest research coming out of the annual meeting of the American Society of Hematology (ASH). In this episode, we discuss new treatments on the horizon for lymphoma and myeloma. The doctors share how innovative therapies such as CAR T-cell therapy and new combinations of medicines are showing significant promise, providing further hope to patients.

Mentioned on this episode: 

• Lymphoma
• Myeloma
• Amyloidosis
• MGUS (Monoclonal Gammopathy of Undetermined Significance)
• Smoldering myeloma (Myeloma staging)
• Minimal/Measurable Residual Disease (MRD)
• Bispecific Antibody Therapy
• ASH Annual Meeting Highlights
• Anxiety and Hope: Living with CLL podcast episode
• Dara-KRd
• CAR T-cell Therapy
• Stem Cell Transplant
• Graft-Vs-Host Disease

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Young Adult Resources
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode is provided by University of Chicago Medicine.

The post Emerging Research in Lymphoma and Myeloma first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Donnie Hill, a patient living with chronic lymphocytic leukemia (CLL) and small cell lymphocytic lymphoma (SLL). In this episode, Donnie shares his experience and the stresses of living with a chronic disease like CLL/SLL, the various treatments he has had since he was diagnosed in 2008 and how he has worked with his doctor to determine the best treatment for him. Don’t miss this engaging story of how, throughout his cancer journey, Donnie continues to celebrate life and hope with volunteering, advocacy and the love of his family.

Mentioned on this episode: 

• Chronic Lymphocytic Leukemia (CLL)
• Small Cell Lymphocytic Lymphoma (SLL)
• Shared Decision Making in Chronic Leukemias
• Blood Cancer Conferences
• Light The Night
• Man and Woman of the Year
• Patti Robinson Kaufmann First Connection Program
• Information Specialists

Additional LLS Support Resources: 

• Free telephone/web patient programs 
• Clinical Trial Support Center
• Free booklets 
• Financial support
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

Support for this episode provided by Eli Lilly.

The post Anxiety and Hope: Living with Chronic Lymphocytic Leukemia (CLL) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Mariam Nawas and Dr. Satyajit Kosuri from University of Chicago Medicine, about graft-vs-host disease (GVHD) and the Transplant Optimization Program (TOP). In this episode, we discuss stem cell transplants, how GVHD occurs and what can be done to manage and treat symptoms. The doctors also share how the TOP program at the University of Chicago Medicine utilizes multiple specialties to improve post-transplant success for patients over 50.   

Mentioned on this episode: 

• Stem Cell Transplant
• Graft-Vs-Host Disease
• Barnes and Loutit Mouse Leukemia Study  
• University of Chicago Medicine Cancer Center
• Transplant Optimization Program (TOP)
• Be The Match

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Young Adult Resources
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations

Support for this episode is provided by University of Chicago Medicine.

The post Transplant Support and Graft-Versus-Host-Disease (GVHD) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Lyneshia Johnson-Woodland, an internet radio show host, actress and comedian who was diagnosed with non-Hodgkin lymphoma in September 2020.  In this episode, Lyneshia shared how she was diagnosed with lymphoma and the difficult treatments she endured during the COVID-19 global pandemic. She also discussed the emotional impact of cancer and how she is appreciating this second chance at life.

Mentioned on the episode:

• Non-Hodgkin Lymphoma
• Black Women Connexting Communities
• UniverSoul Circus®

Additional LLS Support Resources:

• Information Specialists
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• LLS Young Adult Resources
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Pharmacyclics, An AbbVie Company & Janssen Biotech.

The post A New You: You Made It Through (NHL) first appeared on The Bloodline with LLS.

Join us as we speak to Erin Galyean, a pharmaceutical sales trainer, professional speaker, and published author.  In this episode, Erin tells us how, after losing her father to non-Hodgkin lymphoma and then helping care for her sister, who was diagnosed with the same disease 20 years later, she learned that family and friends who are not the primary caregiver can still become great patient advocates. Erin shares strategies on how to effectively advocate for a patient, the different roles that friends and family can play on the support team and how, even if you live far away from a loved one facing a cancer diagnosis, you can still make a difference.

Mentioned on the episode:

• Non-Hodgkin Lymphoma
• Badass Advocate: Becoming the Champion Your Seriously Ill Loved One Deserves
• Meal Train
• Five stages of grief and how to get through them: CNN Health

Additional LLS Support Resources: 

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support
• Clinical Trial Support Center
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 
• LLS Advocacy
• LLS Myeloma Link

The post How to Become a Great Patient Advocate first appeared on The Bloodline with LLS.

Join us as we speak to Nikki Steltenkamp, a young adult, non-Hodgkin lymphoma survivor.  Nikki, an engineer, was 24 years old when she was diagnosed with primary mediastinal B-cell lymphoma.  In this episode, we hear about her intense treatments that finished up just as the world was entering a global pandemic. She also shares her experiences with mental health, fertility preservation and her podcast, That 6-Letter Word.

Mentioned on this episode:

• Primary Mediastinal B-cell Lymphoma (Non-Hodgkin Lymphoma)
• That 6-Letter Word Podcast
• Alessandra episode – That 6-Letter Word Podcast
• Livestrong Fertility
• Sexuality & Young Adult Cancer with Dr. Anne Katz
• CancerCon
• LLS Young Adult Resources

Additional LLS Support Resources:

• Information Specialists
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Karyopharm Therapeutics and Pharmacyclics.

The post Cancer and a Pandemic – A Non-Hodgkin Lymphoma Story first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Grzegorz (Greg) Nowakowski, a physician researcher and Professor of Medicine at the Mayo Clinic in Rochester, Minnesota, who also leads the Mayo Clinic Aggressive Lymphoma program. In this episode, Dr. Nowakowski discusses clinical trials for lymphoma patients, including recent advancements and how clinical trials work. He also discusses the benefits and common misconceptions of clinical trials. This episode is a must listen for patients of all cancers who want to know how they can get access to the latest advancements in treatment.

Mentioned on this episode:

• Non-Hodgkin Lymphoma 
• Hodgkin Lymphoma
• Mayo Clinic Hematology
• Clinical Trial Support Center
• Clinical Trials
• IMPACT Program
• Financial support

Additional LLS Support Resources:

• Information Specialists
• Understanding Clinical Trials for Blood Cancers
• Free telephone/web patient programs 
• Free booklets 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode is provided by Mayo Clinic.

The post Clinical Trials in Lymphoma: An Evolution, Not A Revolution first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Dr. Caron Jacobson, an Assistant Professor of Medicine at Harvard Medical School and a lymphoma physician and researcher at the Dana-Farber Cancer Institute. In this episode, Dr. Jacobson shares about the use and benefits of CAR T-cell therapy in B-cell cancers, such as diffuse large B-cell lymphoma (DLBCL), mantle cell lymphoma (MCL) and chronic lymphocytic leukemia (CLL). You will hear about how CAR T-cell therapy works, why it is used for B-cell cancers and the benefits of joining a clinical trial for this type of treatment.

Mentioned on this episode:

• CAR T-cell Therapy
• Diffuse Large B-cell Lymphoma
• Mantle Cell Lymphoma
• Chronic Lymphocytic Leukemia
• Immune Effector Cell Therapy Program – Dana-Farber Cancer Institute
• Clinical Trial Support Center

Additional LLS Support Resources:

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support – **Mantle Cell Lymphoma funding is OPEN** 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by Allogene; Bristol Myers Squibb; CRISPR Therapeutics; Kite, a Gilead Company; Janssen Oncology & Legend Biotech; and Novartis Pharmaceuticals.

The post How CAR T-cell Therapy Gives Hope to Cancer Patients first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak with Chelsea Brickham, a transgender model, actress, and professional cosplayer who was diagnosed with Stage II Hodgkin lymphoma in 2013. In this episode, Chelsea shares with us what it was like to go through cancer as a transgender female, the reaction from her family and friends, and how she maintained her femininity during treatment. Since her treatment, she has been active in spreading awareness of LGBTQ+ issues at comic conventions and on social media.

Mentioned on this episode:

• Hodgkin Lymphoma
• Chelsea on TikTok
• CancerCon by Stupid Cancer
• LLS Community
• Comic-Con

Additional LLS Support Resources:

• Information Specialists 
• Young Adult Resources
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program 
• Free Nutrition Consultations 

Support for this episode provided by Seagen.

The post Making Your Mark: A Transgender Cancer Patient Story first appeared on The Bloodline with LLS.