Lymphoma - The Bloodline with Blood Cancer United Podcast

Join us as we speak with Jan White, a survivor and thriver of Stage IV Non-Hodgkin Lymphoma.  In this episode, Jan shares her story of how she went from facing immediate paralysis and death to using her experience to advocate for patients. She became a legislative advocate for LLS, started a website to share her experience, and has participated in numerous national conferences in support of cancer patients and healthcare access.   

Mentioned on this episode:

• Non-Hodgkin Lymphoma
• Diffuse Large B-Cell Lymphoma
• Mental Health Resources
• Jan Says Onward
• One More -Ologist Blog Post
• LLS Advocacy
• Join Mobile Action Network: Click Link or Text SPEAK to 69866

Additional LLS Support Resources:

• Information Specialists 
• Clinical Trial Support Center
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode provided by Epizyme, Karyopharm Therapeutics and Pharmacyclics & Janssen Biotech.

The post Bring It On: From Lymphoma to Advocacy first appeared on The Bloodline with LLS.

Join us as we speak to Dr. Lori Muffly and Dr. Matthew Frank from Stanford Medicine in Stanford, CA, about the recent advancements in testing for Minimal/Measurable Residual Disease (MRD). In this episode, we delve into what MRD is, which blood cancers testing is currently used on, and how we can utilize it to more accurately monitor patients and customize treatment. The doctors also share exciting possibilities on how MRD and other testing can benefit patients in the future.

Mentioned

• Minimal/Measurable Residual Disease
• A Medication Resource for Blood Cancer Patients
• Minimal/Measurable Residual Disease Chart 
• Stanford Medicine Research
• CAPP-Seq test – Ash Alizadeh
• Acute Lymphoblastic Leukemia (ALL)  

Additional LLS Support Resources:

• Information Specialists 
• Free telephone/web patient programs 
• Free booklets 
• Financial support 
• Online chats 
• Caregiver support 
• LLS Community 
• Support groups 
• Patti Robinson Kaufmann First Connection Program Free Nutrition Consultations

Support for this episode provided by Genentech, Inc. and Biogen.

The post Exploring Minimal/Measurable Residual Disease (MRD) first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we speak to Ola Ojewumi, a patient and health advocate with Post-Transplant Lymphoproliferative Disorder (PTLD), a type of Non-Hodgkin Lymphoma. In this episode, Ola tells us about the difficulties she has faced as a Black disabled woman with chronic pain. She shares her experiences with racism and inequities in healthcare and how she has learned to advocate for herself and others.

Mentioned on this episode:

• Post-Transplant Lymphoproliferative Disorder (PTLD)
• LLS Health Manager App
• Racial Bias in Chronic Pain Study
• Ola Speaking to Congress
• Project ASCEND
• #PatientsAreNotFaking

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection ProgramFree Nutrition Consultations

The post Facing Racial Disparities as a Black Disabled Patient first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for Part Two of a special two-part series as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In this episode, Christabel talks about her extraordinary struggles as a young adult with cancer, such as living alone without family support and having high healthcare costs. She also delves into the health disparities, racism and racial insensitivity that BIPOC (Black, Indigenous, People of Color) patients experience. Be sure to listen to Part One first to hear more about Christabel’s journey with Hodgkin Lymphoma as a Young Adult.

Mentioned on this episode:

• Dr. Brad J. Zebrack
• Elephants and Tea Magazine
• Jade Gangster
• Stupid Cancer
• Hodgkin Lymphoma (HL)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Seagen, Inc.

The post Hodgkin Lymphoma Part 2: Struggles of a Young Adult with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Join us for a special two-part episode as we speak to Dr. Christabel Cheung, a two-time Hodgkin Lymphoma Survivor. In Part One, Christabel tells us about her longtime journey with lymphoma, including a relapse and going through the second diagnosis during a global pandemic. She shares her struggles of not only a diagnosis, where she is in the small percentage that didn’t respond to first-line treatment, but also going through cancer as a racial minority and young adult. Be sure to tune into Part Two as she delves more into health disparities for young adults and BIPOC (Black, Indigenous, People of Color) communities.

Mentioned on this episode:

• Dr. Brad J. Zebrack
• The Impact of Cancer on Young Adults Video Clip featuring Dr. Brad Zebrak
• Dr. Ibram X. Kendi
• Brian Goldman
• Jade Gangster
• CancerCon
• Hodgkin Lymphoma (HL)

Additional LLS Support Resources:

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Seagen, Inc.

The post Hodgkin Lymphoma Part 1: Struggles of a Young Adult with Cancer first appeared on The Bloodline with Blood Cancer United Podcast.

Join us as we report on the latest developments in immunotherapy from the 62nd American Society of Hematology (ASH) Annual Meeting and Exposition that was hosted virtually December 5-8, 2020. In this episode, we will be speaking to Dr. Laurie Sehn, a Clinical Professor and Researcher with the British Columbia Cancer Centre for Lymphoid Cancer and The University of British Columbia. Immunotherapy was a primary topic at this year’s ASH meeting. Dr. Sehn shares exciting news about the advancements in immunotherapy for Non-Hodgkin Lymphoma. Hear why lymphoma is a great candidate for immunotherapy, how it works, and how a collaboration of researchers from around the world is accelerating the number of new and effective treatments available for lymphoma patients.

This podcast episode is NOT an official program of the ASH annual meeting.

Support for this episode provided by Genentech and Pharmacyclics.

Mentioned

• The American Society of Hematology (ASH)
• BC Cancer Agency
• Chimeric Antigen Receptor T-Cell Therapy
• Immunotherapy
• Lymphoma

Additional

• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

The post Tackling Lymphoma: Recent Advances in Immunotherapy first appeared on The Bloodline with Blood Cancer United Podcast.

Dr. Hoffman from the Sylvester Comprehensive Cancer Center, University of Miami Health System in Miami, Florida speaks to us about Hodgkin lymphoma and its interesting history.  Thankfully, Hodgkin lymphoma is now highly treatable and for the majority of people curable, but not for all.  Dr. Hoffman talks to us about what makes Hodgkin lymphoma unique, as well as discusses emerging therapies and long term and late effects for both young adult and older patients diagnosed with Hodgkin lymphoma.

Mentioned on this Episode:

• Lymphoma
• Hodgkin Lymphoma
• Clinical Trials
• Radiation therapy
• Chemotherapy

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations
• Young Adults

Support for this episode provided by Seattle Genetics.

The post Your Questions Answered About Hodgkin Lymphoma first appeared on The Bloodline with Blood Cancer United Podcast.

Dr. Mary Ninan speaks to Alicia, Lizette, and Edith about the most common subtype of non-Hodgkin lymphoma (NHL), known as Diffuse Large B-cell lymphoma (DLBCL). With over 70 subtypes of NHL, the priority when Dr. Ninan sees a patient with lymphoma is to confirm which subtype the patient has been diagnosed with in order to determine the best treatment plan. Dr. Ninan explains how lymphoma is staged, and various treatment options are discussed. The doctor also mentions how she always encourages patients and caregivers to ask questions and clarify the points that they do not understand in the treatment plan, as well as welcomes questions about how patients can manage their side effects. Also, in this episode, Dr. Ninan talks about one of the most exciting developments in the treatment of diffuse large B-cell lymphoma in recent years.

Mentioned on this episode:

• Diffuse large B-cell lymphoma
• Atlanta Medicine magazine
• CAR T-cell Therapy
• Rituximab
• Radiation therapy
• Chemotherapy
• Non-Hodgkin Lymphoma

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Epizyme, Genentech, Karyopharm, and Pharmacyclics/Janssen.

The post Dr. Ninan explains Diffuse Large B-cell Lymphoma (DLBCL) first appeared on The Bloodline with Blood Cancer United Podcast.

Has the Coronavirus (COVID-19) affected your non-Hodgkin lymphoma treatment? Join Alicia, Lizette and Edith as they speak with Dr. Lori Leslie about non-Hodgkin lymphoma and how patients have been receiving treatment during the coronavirus pandemic. Dr. Leslie is a part of the lymphoma division of the John Theurer Cancer Center in Hackensack NJ.  She treats lymphoma and CLL clinically, is the director of the indolent lymphoma and CLL research programs and is heavily involved in the lymphoma CAR-T program. On this episode, Dr. Leslie explains the different types of lymphoma. The doctor informed us on how the coronavirus is affecting lymphoma patients, as well as if lymphoma patients should be taking any extra precautions at this time.  Dr. Leslie also updated us about the latest news regarding a vaccine for the coronavirus.  During this time, we remain hopeful after hearing Dr. Leslie say that research for lymphoma has continued despite the pandemic, and new treatments were recently approved for lymphoma patients.

Mentioned on this episode:

• Non-Hodgkin Lymphoma (NHL)
• COVID-19
• Follicular lymphoma (FL)
• Diffuse Large B-cell Lymphoma (DLBCL)
• CAR T-cell Therapy
• Allogeneic Stem Cell Transplantation
• New England Journal of Medicine
• Vaccines

Additional LLS Support Resources:

• Information Specialists
• Information & Support Services
• Clinical Trial Support Center
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• LLS Community
• Support groups
• Patti Robinson Kaufmann First Connection Program
• Free Nutrition Consultations

Support for this episode provided by Epizyme, Genentech, Karyopharm, and Pharmacyclics/Janssen.

The post What Non-Hodgkin Lymphoma (NHL) Patients Should Know During the COVID-19 Pandemic first appeared on The Bloodline with LLS.

Join Alicia, Lizette and Edith as they speak with Dr. Benjamin Lampson.  Dr. Lampson is an instructor in medicine at Dana-Farber Cancer Institute.  On this episode, Dr. Lampson explains how mantle cell lymphoma (MCL) is diagnosed and treated. Dr. Lampson gives his advice for MCL patients during the coronavirus (COVID-19) pandemic. He also shares the long-term effects of treatment, the future of treatment for MCL, clinical trials and when they are considered for treatment for lymphoma patients, and the importance of open communication between a patient and their healthcare team.

Mentioned on this episode:

Additional LLS support

Support for this episode provided by Pharmacyclics/Janssen.

The post Mantle Cell Lymphoma (MCL) with Dr. Benjamin Lampson: What Patients Should Know first appeared on The Bloodline with LLS.