Lymphoma - The Bloodline with Blood Cancer United Podcast

Join Alicia, Lizette and Edith as they speak with Viviana Onofre about her follicular lymphoma diagnosis that she received in November 2015. On this episode she describes minor signs that she noticed prior to being diagnosed, the importance of patients educating themselves about their diagnosis to help relieve anxiety, asking questions to better understand health insurance to avoid delays in treatment and how her diagnosis has helped her to shift perspective and embrace growth.

Mentioned on this episode:

• Follicular lymphoma
• Treatment for indolent NHL subtypes
• Clinical trials
• Light The Night
• First Connection Program

Additional LLS Support Resources:

• LLS Community
• Information Specialists
• Free telephone/web patient programs
• Free booklets
• Financial support
• Online chats
• Caregiver support
• Support groups
• Advocacy

Support for this episode provided by Epizyme; Genentech; Karyopharm and Pharmacyclics/Janssen.

The post Worrying is Not My Plan: Viviana’s Story first appeared on The Bloodline with LLS.

Listen in as Alicia and Lizette speak with Stan Friedman. Stan is a trial lawyer and mantle cell lymphoma (MCL) survivor from Savannah, Georgia. After receiving abnormal lab work and noticing swollen lymph nodes that his doctor pointed out, Stan was referred to a hematologist/oncologist for a bone marrow biopsy. Join them as Stan describes how he was diagnosed, the initial questions he asked his healthcare team, side effects that were both common and uncommon, the importance of support from those around him, and how he is doing five years later.

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Support for this episode provided by AstraZeneca.

The post My MCL Diagnosis: Stan’s Story first appeared on The Bloodline with LLS.

Join Alicia and Lizette as they speak with Dr. Robert Chen about the treatment of mantle cell lymphoma (MCL). Dr. Chen is a hematologist/oncologist at City of Hope in Duarte, California. On this episode, Dr. Chen explains the different variables taken into consideration when choosing the proper treatment for a MCL patient. He also discusses induction chemotherapy, CAR T-cell therapy, and stem cell transplantation, explaining that although allogeneic transplant is potentially curative, it’s important to understand why it should be approached with caution.

You can listen to our other episode with Dr. Chen about mantle cell lymphoma here.

 Mentioned on this episode:

Additional LLS support resources:

Support for this episode provided by AstraZeneca.

The post Treating Mantle Cell Lymphoma first appeared on The Bloodline with LLS.

With over 60 types of lymphomas, a lymphoma diagnosis can be very confusing.  Listen in as Alicia and Lizette speak with hematologist/oncologist Dr. Robert Chen from City of Hope in Duarte, California about mantle cell lymphoma (MCL). On this episode, they discuss how MCL is diagnosed, indolent vs aggressive lymphomas, and the importance of knowing what to research before attempting to learn about a diagnosis on your own. Dr. Chen also talks about how difficult it was to diagnosis MCL in the past but due to strides made in its molecular path, there has been significant progress in extending survival and improving therapy.

You can listen to our other episode with Dr. Chen about mantle cell lymphoma here.

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LLS Support Resources:

Support for this episode provided by AstraZeneca.

The post Mantle Cell Lymphoma: Indolent vs Aggressive first appeared on The Bloodline with LLS.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Heather Juliet, a young adult survivor and an attendee onsite at CancerCon 2018 in Denver, Colorado. Heather knew something was wrong for many years but each time she went to the doctor she was met with ‘you’re fine’, ‘you’re too young’, or ‘you’re too healthy’. When symptoms became severe, she was diagnosed with stage 4 Hodgkin lymphoma. Being in the health and wellness field and describing herself as ‘extremely healthy’, she was shocked by the news but also relieved to know that there was finally an explanation for the way she had been feeling. Realizing that finding survivorship resources was incredibly challenging, she was inspired and motivated to be that source for other survivors. She understands how it feels to be diagnosed and to have your life change so quickly and not knowing where to go first. She also shares how she made ‘finding herself again’ her goal by adjusting her mindset and intentionally creating a happy space around her. Taking yoga and seeing the impact it had on her own life, she decided to get certified so that she too can be a mentor and advocate for other cancer survivors.

CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes.

Mentioned on this episode:

Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of future episodes.

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Live at CancerCon with Heather Juliet: Young Adult Advocate & Mentor first appeared on The Bloodline with LLS.

Listen in as Guest Speaker, Shona Lovie, from The Leukemia & Lymphoma Society (LLS) speaks with Sara Davenport, a young adult survivor and Blood Cancer panelist, onsite at CancerCon 2018 in Denver, Colorado. Having been diagnosed with thyroid cancer first and later with non-Hodgkin lymphoma, Sara talks about her journey, how she was introduced to The Leukemia & Lymphoma Society, fertility, long- term and late effects of cancer treatment, and the importance of patience during one’s journey. Sara also shares how she combats ‘survivorship guilt’ with the decision to live a life that strives to understand and help others as a way to ‘pay it forward’ and honor those who have passed.

CancerCon is the annual, international gathering, organized by Stupid Cancer, that brings together patients, survivors, caregivers, advocates, and activists, along with oncology team professionals and the healthcare industry through a shared goal of improving young adult cancer health outcomes.

Mentioned on this episode:

Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of future episodes.

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

The post Live at CancerCon with Sara Davenport: Panelist & Young Adult Survivor first appeared on The Bloodline with LLS.

Join us on this episode as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Pallawi Torka, Assistant Professor of Oncology and Co-Program Director of the Hematology/Oncology Fellowship Program, at Roswell Park Comprehensive Cancer in Buffalo, NY. Dr. Torka speaks about her experience diagnosing and treating Hodgkin lymphoma and why shared decision making is necessary for patients to better understand their disease and treatment options. Dr. Torka explains the standard of care, emerging therapies and when a stem cell transplant may be considered. She also shares her excitement and optimism in the field of lymphoma as new data continues to develop, hopefully leading to increased survival and improved quality of life.

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Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.

Support for this program provided by Seattle Genetics.

The post A Bright Future for Hodgkin Lymphoma first appeared on The Bloodline with LLS.

In its early stages, cutaneous t-cell lymphoma (CTCL) may be mistaken for a skin condition like eczema. Many people have a hard time grasping how something that arises in the skin is actually considered a blood cancer. Listen in as Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) speak with Dr. Jasmine Zain, hematologist/oncologist at City of Hope in Duarte, CA, about how CTCL is not just one disease, how CTCL is diagnosed and treated, why dermatologists may be part of a person’s treatment team, the prevalence of CTCL within certain geographies and ethnicities, stem cell transplants, the role of clinical trials and the importance of a team approach when determining the best treatment options. Dr. Jasmine Zain also explains how people can live their normal lives despite their CTCL diagnosis.

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Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.

Support for this episode provided by Seattle Genetics.

The post CTCL: Skin Lymphoma, Not Skin Cancer first appeared on The Bloodline with LLS.

Rachelle is a commercial actor, model, mother, wife and lymphoma survivor, who shares with Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) how her world changed after an annual visit to her OBGYN doctor.  A lump which she attributed to one of the effects of pregnancy, ended up being something she never would have imagined. Having lost her father to kidney cancer, her approach to her follicular lymphoma diagnosis is one that intends to reframe the outlook of a cancer diagnosis. She shares her shock when receiving the news, the importance of taking all details regarding diagnosis and prognosis with a grain of salt, and why remaining hopeful is necessary. After hearing from her doctor that ‘stress can play a role in reoccurrence’, she has promised herself that she will face each day focusing on the things she loves, instead of living in fear of when or if cancer will return.

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Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.

The post I Am a Person, Not a Percentage: Rachelle’s Story first appeared on The Bloodline with LLS.

In her junior year of college and new to Los Angeles, Hodgkin’s Lymphoma was the furthest thing from Racheli’s mind. Join Alicia and Lizette from The Leukemia & Lymphoma Society (LLS) as Racheli walks them through how a presumed head cold was misdiagnosed. Listen in as she shares how she was able to press play on her life, with treatment and support from her healthcare team, family and growing online support.

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Additional LLS Support Resources:

Please comment below as we’d love to hear your feedback on this episode. Also, be sure to subscribe today to be notified of our next episode.

Follow Racheli:

Become a First Connection volunteer! Learn more by calling an LLS Information Specialist at (800) 955-4572, Monday to Friday, 9 a.m. to 9 p.m. ET or visiting www.LLS.org/InformationSpecialists.

Support for this episode provided by Bristol-Myers Squibb.

The post Life on Pause: Racheli’s Story first appeared on The Bloodline with LLS.