MS Diary | Monday, 3/18/24 | The left leg hip & nerve pain is back

OMG. It is. It's back with a vengeance. Wow. I have a plan to throw activity at it. That's really my resolution. I have a MS Gym subscription my activity will be guided.

I do have good news. The neck and shoulders are dramatically improved. Huuuuge difference.

MS Diary | Friday, 3/15/24 | My FIRST Wheelchair Routine 

I don't know what took me so long to try this buuuu… *thinking face* Wait, yes I do. I wasn't in as much pain. Now that I am, I'm experimenting with all the things I skipped before. 

The Wheelchair Routine will be simple yet it's gonna be work. The Dalton Power Wheelchair will be the everyday, household, wheelchair. It has its drawbacks but there never was posture pain like this. 

I'll use the Zinger Power Wheelchair (BEST one I've ever used!) as my office desk chair. The Zinger Power Wheelchair is severely jacked up. The wheel stems are bent which makes going and turning a regular no. I can fit at my desk and sit on multiple booty cushions. 

Finally, the Rubicon World's Lightest Electric Wheelchair is just for traveling. That mug has caused all these new issues but I refuse to stuck at home. No way. It has its purpose. *fist bump* 

This ain't no life for the weak. You and I are constantly remixing and adapting to whatever is going on around us and IN us. That's why I share my gratitude journal everyday. Maybe what I'm doing help what you're doing.

MS Diary | Thursday, 3/14/24 | Time for emergency moves

Yes, I feel better in general. Yes, I'm sleeping a little longer. Yes, I'm not tracking sleep or nerve pain.

However, these are now emergency measures I'm taking. The pain is rocking my way of life. I'm dropping stuff outta muscle weakness. The neck/collar/shoulder pain is getting more intense and its affecting both sides plus my chest and swallowing.

I'm scheduled for medical appointments but immediately, I'm switching chairs as soon as the wife or kids wake up.

This ain't no life for the weak. 

MS Diary | Wednesday, 3/13/24 | 7 hours of sleep

O. M. G. I slept 4hr, restroom break, 3hrs. I feel like I have superpowers! *fingers crossed* I'm scared to write more because I believe in jinxes. 

Instead, 😉, let me inform y'all about mindset OVER bullshit. I'll be on IG LIVE this Thursday, tomorrow, 3/14/24, 6pm. I invite you to rock with me, let's do Gratitude stories together. 

I'm only here to inspire, educate and entertain Wheelchair Users and Tribespeople!

MS Diary | Tuesday, 3/12/24 | I feel GREAT

Really, I do. *rolls shoulders* Let's do this.

MS Diary | Wednesday, 3/6/24 | I slept 3.5hrs between trips

Tribespeople!! I sit before you with GOOD news. I slept 3.5hrs between restroom trips. That's only the 2nd time this year. I believe it is repeatable too. 

Oxybutynin, take a bow. You da real MVP (Most Valuable Pill).

🤜🏾🤛🏾🥂

MS Diary | Friday, 3/8/24 | I give up on Oxybutynin 

I'm terrified writing this because I fear manifesting the finality. Oxybutynin ain't helping me sleep. In two weeks, I had two 3.5hr naps. That's it. Three. 

Meanwhile, I'm so highly cognizant of how little sleep I'm getting that it feels like losing. All day, I'm aware of my losses with sleep. All day, I'm thinking restroom trips, counting, timing, tracking, reporting, talking. It's overwhelming. I'm done. I quit. I'm on to other symptoms. 

MS Diary | Thursday, 3/7/24 | The confusing part of MS

I haven't done my yoga routine in days. The good thing is I haven't had the left hip pain in days either. Are the two truly correlated? That's the CONFUSING part.

I didn't sleep longer than an hour and a half but I took the double dose of Oxybutynin. Maybe a double dose isn't the problem. If not, I'm out of ideas and gotta schedule more medical appointments. That's the CONFUSING thing about all this.

So many times, it's heartbreaking to realize nothing you do consistently affects your MS symptoms. The good stuff doesn't last. The bad shit returns, with an attitude of invincibility. 

You don't wanna give up. You don't wanna waste time. It's freaking CONFUSING.

MS Diary | Tuesday, 3/5/24 | Oxybutynin update

This is week 2, day 7. So far, 30mg Oxybutynin results in less restroom trips while I'm awake. At night? It doesn't. Hell, I do get more blank trips and I'm hoping it will even out.

MS Diary | Monday, 3/4/24 | Find the GOOD in life

It's been an awful weekend. I mean it. Awful. I'm rocking the good part. I haven't used the bathroom in six hours. That's huge when I normally go every 2hrs.