Married to the Land

Mother on a Mission: Sarah Webster's Push for Syngap Awareness


Listen Later

This episode we delve into the world of Syngap1 Syndrome, a rare and relatively unknown genetic disorder. Our guest, Sarah Webster, offers a glimpse into her life deeply intertwined with the rural and equine community. Hailing from a family deeply rooted in campdrafting, Sarah's narrative takes a unique turn as she shares her journey alongside her husband, Cameron, a fourth-generation cattle grazier and Australian Bronc riding champion.


Together, Sarah and Cameron manage their own property outside of Wondohan, navigating the challenges of rural life while raising their children. Sarah opens up about her daughter Gracie's battle with Syngap1 Syndrome, a neurological condition that has significantly impacted their family dynamics. Sarah's story, shedding light on a syndrome that was only diagnosed in 2009, thanks to the pioneering work of Dr. Michaud at St. Justine Hospital in Montreal. Learn more about Syngap1 Syndrome and the resilience of families like Sarah's in facing its challenges head-on. Additionally, they've faced the effects of meningococcal disease on their son Leo.


In April 2024, the Campdraft for a Cure event aimed to shine a spotlight on Sarah and her family's journey, inviting nominations and participation to support the cause. Mark your calendars for April 19-21 2024 and visit the Facebook page to get involved.



Follow Sarah on Instagram and follow her Instagram picks or social suggestions:

@somerset_circus
@haydens_hope
@ballerinafarm

Syngap Research Fund Australia (syngapaustralia.org)

Campdraft for a Cure Facebook Page


Enjoyed the episode-  producing these podcast are a blast and take time, I would love it if you could show me some love and support,  by liking, rating and sharing this episode or you can do so by - Buying  me a coffee

 

Please make sure you leave a review or rate this episode. 


@married_tothe_land

FarmHER Hands UPF50+ sun protection gloves our mission to safeguard the hands of rural and remote women as they work, live, and play. Our UPF50+ sun protection gloves empower them with confidence and comfort, enhancing their well-being and resilience in agriculture. We are dedicated to nurturing and celebrating these extraordinary women who shape our agricultural landscape. www.farmherhands.com.au

...more
View all episodesView all episodes
Download on the App Store

Married to the LandBy Angie Nisbet


More shows like Married to the Land

View all
Conversations by ABC listen

Conversations

892 Listeners

Hamish & Andy by LiSTNR

Hamish & Andy

1,118 Listeners

Chat 10 Looks 3 by Chat 10 Looks 3

Chat 10 Looks 3

233 Listeners

No Filter by Mamamia Podcasts

No Filter

583 Listeners

The Imperfects by Hugh van Cuylenburg, Ryan Shelton & Josh van Cuylenburg

The Imperfects

404 Listeners

Happy Hour with Lucy & Nikki by Lucy & Nikki

Happy Hour with Lucy & Nikki

144 Listeners

Motherland Australia by Stephanie Trethewey

Motherland Australia

15 Listeners

Lise and Sarah by Those Two Girls

Lise and Sarah

52 Listeners

The Flying Doctor by Royal Flying Doctor Service

The Flying Doctor

16 Listeners

The Case Of by ABC listen

The Case Of

291 Listeners