My Mother: The Person and the Patient

By Fartumo KusowSociety & Culture Relationships Personal Journals

My Mother: The Person and the Patient episodes

April 02, 2023 Episode 15: The Day My Mother Forgot to Walk
In this episode, I share the story of the day my mother forgot to walk. In contrast to that time, she decided to take back her freedom by leaving her husband for six weeks. In 2021, I realized that Alzheimer's is unpredictable and a great thief, just like how my mother's circumstances as a girl robbed her of her freedom.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
21 min
March 26, 2023 Episode 14: Alzheimer: Making Decisions Behind a Blind Fold
Making decisions in keeping my mother safe is like making all my decisions wearing a blind fold. Often I reach the final destination after several stumbles. Similarly my mother makes her decision to leave her first husband without having a plan of all the steps that followed the first step of walking out. Like me she had to figure it out one step at a time.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
22 min
March 19, 2023 Episode 13: Alzheimer Means Layers of Loss
Soon I realized Alzheimer meant many losses, some came gradually others fast and startling. Similarly Timiro found out that the decision to marry a man older than her father came with too much pain. In this episode, I explore the losses that came with my mother living with Alzheimer. The same she tries to accept the consequences of her marrying Needs-A-Cane.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
24 min
March 12, 2023 Episode 12: What did I get myself into?
In this episode, the young Timiro does not know what she got herself into when she agreed to marry a man older than her father when she was thirteen years old. Just like I had no idea what I was getting myself into when I hired a handyman.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
26 min
March 05, 2023 Episode 11: In My Mother's World
In the first half of this episode, I share how I changed my approach in dealing with my mother. Once I decided to see things with my mother's eyes, everything became clear to me. My decision to join my mother in her world, didn't eliminated the challenge, but it made it manageable. In the second half, my mother as a girl faces a similar situation. For the first time, she is forced to see her father as a man in need a wife, rather than one put on this earth to take care of her. It is with the realization that she has to put herself in her father's shoes and make her decision accordingly.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
24 min
February 26, 2023 Episode 10: Are you beginning to forget?
The first half of this episode, I share my epiphany moment when I realized my attempt to correct my mother was causing more problems and and it was solving nothing. I discuss what I learned after reading articles about Alzheimers. The second half of the episode, I share a chapter about my mother and her family go back to the village. Just like I gained comfort in moving to my mother's world, Timiro, the girl finds peace in her family return to the village.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
33 min
February 19, 2023 Episode 9: Finding A Balance
Trigger: This episode contains a death penalty against the mother and son accused of killing my mother's baby brother. The first part of the episode I share my experience in getting equipment to assist my mother in her day-to-day functions. I explore how not knowing what I needed and where is the best place to get it was difficult. In the second half of the episode, I share a chapter about my mother's experience when those accused of killing her brother were executed. The chapter explores the closure her family expected didn't materialize with the death of the accused. Their pain remained even after what her father viewed as the "city's revenge."
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
19 min
February 12, 2023 Episode 8: The Power of the Attorney
First part of this episode I share, how important it is to have a power of attorney for my mother's both finances. This comes up as my mother makes a risk financial decision. In order to protect her, I needed to have a power of attorney signed by her before her cognitive ability diminished. In the second part of the story, I share my mother's story as her family became a victim of one sided justice system. The people that supposedly kidnapped and killed her brother were found guilty and punished, but the family did not feel like they got justice.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
21 min
February 05, 2023 Episode 7: A Tax Break
The fist half of the episode, I share my struggles in getting a tax break for the cost of my mother's care. I talk about how things made no sense. Still I had to take specific steps I took to get what I was eligible for as a caregiver to my mother. The second half of the episode tells my mother's story as her father tries to see to it that the people that killed his child would pay a price. Even though staying in the camp after the rest of the villagers left was hard, he stayed behind for the court proceedings.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
29 min
January 29, 2023 Episode 6: No Help In sight
Trigger Warning: There is sudden death/implied suicide in this episode.In the first half of the episode, I share the story of my first contact with the long term arm of the health care system. What are the process of getting the intake and what are some things you should be aware of in going through the process. Getting documents like Power of attorney.In the second half of the episode, I share my mother story when she'd lost her mother. The chapter outlines my mother's sense of abandonment and it psychological impact.
Support the show#IAMSAHRABULLE#AlzheimersAwareness #CulturalTraditions #HealthAndCulture #DifficultChoices #Resilience #CompassionateCare #MedicalChallenges #Hospitalization #PersonalDecisions #CursedFinger #Strength #Support #Healthcare #FamilyCaregiving #PatientAdvocacy Do not forget to follow, listen, like, and share.
31 min

About My Mother: The Person and the Patient

From the publisher's feed

"Welcome to '"My Mother: The Person and the Patient," a deeply personal journey into the life of Timiro Mohamed as she bravely faces the challenges of living with Alzheimer's disease. In this intimate…