My Struggles Travelling with Dysautonomia and MCAS

Today I am sharing a personal experience podcast, in the hopes that it might help you.

Social media in summer is full of people’s holiday pictures and I think for people with chronic illness, that can be quite isolating because we may not be able to travel or travelling can be hard to navigate. I’ve been sharing some of my videos and pictures of our travelling recently, and I’ve noticed that a lot of people make assumptions about what that means – they assume I’m well, happy and in a good place, and I think it’s important to share the reality.

To me, travelling is worth it and the best thing I’ve done in my life, and I have no intention of stopping any time soon or settling down, but it comes with ups and downs and has come with some unique health challenges. I am grateful that endo hasn’t really played a part in many of these (except for some cycle disturbances which I’m working on), but it’s really been based around my mast cell activation syndrome and dysautonomia, which I was diagnosed with officially last year, after suspecting them and trying to seek a diagnosis for the past few years.

POTS and MCAS are associated with endo and are very common within our community, so I thought I’d share my real struggles so you don’t feel alone, and so you don’t feel like I am this perfect health coach who has everything all figured out with my health and so that you can maybe learn from my experiences, and hopefully avoid some of the issues I’m dealing with.

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Today’s episode is sponsored by Proov. Proov is the only platform that monitors the whole menstrual cycle – all you need to do is pee, dip a strip, and get your results in 10 minutes on your phone. Proov enables you to learn about your oestrogen and progesterone balance, know your fertile window, and discover if ovulatory problems are making it hard to conceive, and not only do they offer testing, but they also have their own supplements to get your hormones back in balance and your cycle back on track. Proov was founded by Dr. Amy Beckly, who has endo and went through her own infertility journey, and her experience inspired her to help others to understand their hormones and conceive. To learn more, visit https://proovtest.com

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