MyFSHD

"Faced with overwhelming odds I'm going to have to science the s*** out of this."  We celebrate our 50th podcast in style with Maryam Farooqi taking over the hosting duties (and the kitchen) as we discuss all things FSHD.

"The secret's in the sauce."  We discuss some recent news in the neuromuscular disease space and FSHD publications on cell therapy and biomarkers.

"Your scientists were so preoccupied with whether they could, they didn't stop to think if they should."  Our CRISPR Goddess Charis talks with host Peter and answers your questions on CRISPR, eventually.

"She made me realize just how precious wild places are."  Our visiting medical student from South Africa, and fellow FSHDer, Kari Cilliers, joins Dr. Jones to discuss her time in the US working on FSHD.

"If you have one bucket that contains 7 gallons and one bucket that contains 2 gallons, how many buckets do you have?"  Our FSHD dad asks questions on research and funding priorities, biomarkers, MRI, and what we are doing as a field to make sure we know if a drug works or not in trial.  Plus, the world premiere of a new track from Jaeger!

“Invention, my dear friends, is 93% perspiration 6% electricity 4% evaporation and 2% butter scotch ripple.”  Natalie Cooney and Emma Weatherley sit down with MyFSHD to talk about how initiatives from the FSHD Global Research Foundation are helping the FSHD community in Australia and around the world, and also the upcoming Sydney Chocolate Ball.

"Who's gonna turn down a Junior Mint? It's chocolate, it's peppermint..... it's delicious!"  Tamara and Michael Gottlieb join us to discuss how nutrition, vitamins, dietary supplements, and lifestyle adjustments have greatly improved their muscle health in the FSHD and non-FSHD members of their family.  Tamara is one of the founders of the "FSHD - supplements, nutrition, and peer support" Facebook group.

"The creatures outside looked from pig to man, and from man to pig, and from pig to man again; but it already was impossible to say which was which."  Peter talks a bit more about the FSHD-like minipigs being developed for therapeutics and muscle regeneration.

"Go the distance."  Jenny Hasenjaeger of MyFSHD sits down with Ben Brittain to discuss his FSHD and what he intends to do about it.

"We'll burn that bridge when we get to it."  Our FSHD dad lets rip with his thoughts and opinions on all things FSHD in a whirlwind discussion with Dr. Jones trying to keep up.  And bears; a little bit on bears.