Sign up to save your podcasts
Or
Share MyFSHD
Share to email
Share to Facebook
Share to X
Share to email
Share to Facebook
Share to X
Or
MyFSHD
MyFSHD episodes
- FSHD Biomarkers and IL-6 targeted therapy
“My mind is a raging torrent flooded with rivulets of thought cascading into waterfalls of creative alternatives”. Today’s podcast features Dr. Andreia Marcelino Nunes discussing FSHD biomarkers and IL-6 targeted therapeutic approaches for FSHD.”
1 hr 25 min - Saturday catch up with questions and comments around FSHD, June 4th, 2022
"You get what you settle for." We talk a little bit about animal research in FSHD and answer some questions from the community.
1 hr 2 min - Fire Inspector Brad, our FSHD Dad, brings more questions on the drug development pathway for FSHD
"Yeah, well, that's just, like, your opinion, man." Brad Hasenjaeger, our FSHD Dad, fires questions at Dr. Peter Jones around the drug development pathway for FSHD. A casual back and forth, as we do, but always on things important to FSHD.
1 hr 56 min - Saturday catch up with questions and comments around FSHD, May 28, 2022
"As far back as I can remember I always wanted to be a gangster." It's Memorial Day Weekend in the USA and we are eternally grateful for those in the military who sacrificed their lives fighting for our freedoms. Today, Dr Peter Jones catches you up on diagnostics and discusses some of the differences between the muscular dystrophies and highlights the uniqueness of FSHD.
1 hr 2 min - Briefly on diagnostics and stem cells for FSHD
"Setting squirrel traps while elephants stomp you into pancakes." Dr. Jones addresses questions about FSHD diagnostics and stem cells.
1 hr 5 min - Saturday catch up with questions and comments around FSHD, May 21, 2022
"Never planned anything in my life." Drs. Peter Jones and Charis Himeda talk more small molecule and discusses news of the week as it relates to FSHD
54 min - Small molecule drug discovery for FSHD
"Hey wanna s'more?"... "S'more what?"... "No, do you wanna s'more?"... "I haven't had anything yet, so how can I have s'more of nothing?".... "You're KILLIN' ME SMALLS!" Drs. Peter Jones and Charis Himeda talk small molecule drug discovery pathways for FSHD.
1 hr 17 min - Saturday catch up with questions and comments around FSHD, May 14, 2022
Today we answer listener questions about FSHD research testing and AAV gene therapy.
51 min - Making sense of antisense oligonucleotide technology for FSHD
"They've done studies you know -- 60% of the time it works all the time."... "That doesn't make any sense." We discuss the different types of antisense oligonucleotide (AON/ASO) technologies and how these can be used therapeutically for FSHD.
1 hr 41 min - What's going on in FSHD, week ending May 7, 2022
"What we have here is failure to communicate..." We discuss more on gene therapy viral vectors and answer a listener question about melatonin supplementation for FSHD
56 min
About MyFSHD
From the publisher's feed
MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter…
Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.