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MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jo... more
FAQs about MyFSHD:How many episodes does MyFSHD have?The podcast currently has 112 episodes available.
June 15, 2022A student in FSHD research"My (girl's) wicked smart." Today we talk with Ms Hannah Moore who is just finishing up 3 years of research on FSHD in the Jones lab at UNR, having made numerous significant contributions to the programs, and is heading off to graduate school. ...more1h 26minPlay
June 11, 2022Saturday catch up with questions and comments around FSHD, June 11, 2022"Fascinating! Semmi, look at this! America is great indeed. Imagine a country so free, one can throw glass on the streets!" Today we are recapping our biomarker discussion, answering some questions, and then heading to the airport....more47minPlay
June 09, 2022FSHD Biomarkers and IL-6 targeted therapy“My mind is a raging torrent flooded with rivulets of thought cascading into waterfalls of creative alternatives”. Today’s podcast features Dr. Andreia Marcelino Nunes discussing FSHD biomarkers and IL-6 targeted therapeutic approaches for FSHD.”...more1h 25minPlay
June 04, 2022Saturday catch up with questions and comments around FSHD, June 4th, 2022"You get what you settle for." We talk a little bit about animal research in FSHD and answer some questions from the community....more1h 2minPlay
June 01, 2022Fire Inspector Brad, our FSHD Dad, brings more questions on the drug development pathway for FSHD"Yeah, well, that's just, like, your opinion, man." Brad Hasenjaeger, our FSHD Dad, fires questions at Dr. Peter Jones around the drug development pathway for FSHD. A casual back and forth, as we do, but always on things important to FSHD....more1h 56minPlay
May 29, 2022Saturday catch up with questions and comments around FSHD, May 28, 2022"As far back as I can remember I always wanted to be a gangster." It's Memorial Day Weekend in the USA and we are eternally grateful for those in the military who sacrificed their lives fighting for our freedoms. Today, Dr Peter Jones catches you up on diagnostics and discusses some of the differences between the muscular dystrophies and highlights the uniqueness of FSHD....more1h 2minPlay
May 25, 2022Briefly on diagnostics and stem cells for FSHD"Setting squirrel traps while elephants stomp you into pancakes." Dr. Jones addresses questions about FSHD diagnostics and stem cells....more1h 5minPlay
May 21, 2022Saturday catch up with questions and comments around FSHD, May 21, 2022"Never planned anything in my life." Drs. Peter Jones and Charis Himeda talk more small molecule and discusses news of the week as it relates to FSHD...more54minPlay
May 18, 2022Small molecule drug discovery for FSHD"Hey wanna s'more?"... "S'more what?"... "No, do you wanna s'more?"... "I haven't had anything yet, so how can I have s'more of nothing?".... "You're KILLIN' ME SMALLS!" Drs. Peter Jones and Charis Himeda talk small molecule drug discovery pathways for FSHD....more1h 17minPlay
May 14, 2022Saturday catch up with questions and comments around FSHD, May 14, 2022Today we answer listener questions about FSHD research testing and AAV gene therapy....more51minPlay
FAQs about MyFSHD:How many episodes does MyFSHD have?The podcast currently has 112 episodes available.