MyFSHD

By Peter L Jones, PhD

MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jo... more

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FAQs about MyFSHD:

How many episodes does MyFSHD have?

The podcast currently has 108 episodes available.

MyFSHD episodes:

June 01, 2022 Fire Inspector Brad, our FSHD Dad, brings more questions on the drug development pathway for FSHD
"Yeah, well, that's just, like, your opinion, man." Brad Hasenjaeger, our FSHD Dad, fires questions at Dr. Peter Jones around the drug development pathway for FSHD. A casual back and forth, as we do, but always on things important to FSHD.
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1h 56min
May 29, 2022 Saturday catch up with questions and comments around FSHD, May 28, 2022
"As far back as I can remember I always wanted to be a gangster." It's Memorial Day Weekend in the USA and we are eternally grateful for those in the military who sacrificed their lives fighting for our freedoms. Today, Dr Peter Jones catches you up on diagnostics and discusses some of the differences between the muscular dystrophies and highlights the uniqueness of FSHD.
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1h 2min
May 25, 2022 Briefly on diagnostics and stem cells for FSHD
"Setting squirrel traps while elephants stomp you into pancakes." Dr. Jones addresses questions about FSHD diagnostics and stem cells.
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1h 5min
May 21, 2022 Saturday catch up with questions and comments around FSHD, May 21, 2022
"Never planned anything in my life." Drs. Peter Jones and Charis Himeda talk more small molecule and discusses news of the week as it relates to FSHD
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54min
May 18, 2022 Small molecule drug discovery for FSHD
"Hey wanna s'more?"... "S'more what?"... "No, do you wanna s'more?"... "I haven't had anything yet, so how can I have s'more of nothing?".... "You're KILLIN' ME SMALLS!" Drs. Peter Jones and Charis Himeda talk small molecule drug discovery pathways for FSHD.
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1h 17min
May 14, 2022 Saturday catch up with questions and comments around FSHD, May 14, 2022
Today we answer listener questions about FSHD research testing and AAV gene therapy.
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51min
May 11, 2022 Making sense of antisense oligonucleotide technology for FSHD
"They've done studies you know -- 60% of the time it works all the time."... "That doesn't make any sense." We discuss the different types of antisense oligonucleotide (AON/ASO) technologies and how these can be used therapeutically for FSHD.
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1h 41min
May 07, 2022 What's going on in FSHD, week ending May 7, 2022
"What we have here is failure to communicate..." We discuss more on gene therapy viral vectors and answer a listener question about melatonin supplementation for FSHD
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56min
May 04, 2022 Gene therapy prospects for FSHD
"So much time so little to do. Wait a minute. Strike that. Reverse it." Drs. Charis Himeda and Peter Jones go back over gene therapy technology for FSHD, including some of the remaining hurdles, and how technology has advanced over the years to meet the challenges.
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1h 18min
April 30, 2022 What's going on in FSHD, week ending April 30, 2022
Dr. Jones answers some of your questions from the week and reviews recent advances in science that relate to FSHD
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32min

FAQs about MyFSHD:

How many episodes does MyFSHD have?

The podcast currently has 108 episodes available.