Sign up to save your podcastsEmail addressPasswordRegisterOrContinue with GoogleAlready have an account? Log in here.
MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jo... more
FAQs about MyFSHD:How many episodes does MyFSHD have?The podcast currently has 115 episodes available.
July 01, 2022Back in Reno, Dr. Peter Jones fields some questions from all of you."Here they are, back after their exclusive three-year tour of Europe, Scandinavia and the subcontinent." MyFSHD is back in Reno, but the work never stopped, and we are answering some common questions today....more53minPlay
June 25, 2022Saturday catchup with questions and comments around FSHD, June 25, 2022"It's a bold strategy, Cotton. Let's see if it pays off for 'em." Coming to you from NYC where Dr. Peter Jones is with Ms. Nguyen Cam Thi talking about her personal journey with FSHD and the impact of a trip to the US and meeting with other patients, and we answer some listener questions on FSHD....more1h 8minPlay
June 20, 2022World FSHD Day 2022 with Ms Nguyen Cam Thi and Dr. Jones"Failure is not an option." Dr Peter Jones and MyFSHD Ambassador Ms Nguyen Cam Thi, an FSHDer from Hanoi Vietnam, discuss FSHD on World FSHD Day 2022....more1h 16minPlay
June 15, 2022A student in FSHD research"My (girl's) wicked smart." Today we talk with Ms Hannah Moore who is just finishing up 3 years of research on FSHD in the Jones lab at UNR, having made numerous significant contributions to the programs, and is heading off to graduate school. ...more1h 26minPlay
June 11, 2022Saturday catch up with questions and comments around FSHD, June 11, 2022"Fascinating! Semmi, look at this! America is great indeed. Imagine a country so free, one can throw glass on the streets!" Today we are recapping our biomarker discussion, answering some questions, and then heading to the airport....more47minPlay
June 09, 2022FSHD Biomarkers and IL-6 targeted therapy“My mind is a raging torrent flooded with rivulets of thought cascading into waterfalls of creative alternatives”. Today’s podcast features Dr. Andreia Marcelino Nunes discussing FSHD biomarkers and IL-6 targeted therapeutic approaches for FSHD.”...more1h 25minPlay
June 04, 2022Saturday catch up with questions and comments around FSHD, June 4th, 2022"You get what you settle for." We talk a little bit about animal research in FSHD and answer some questions from the community....more1h 2minPlay
June 01, 2022Fire Inspector Brad, our FSHD Dad, brings more questions on the drug development pathway for FSHD"Yeah, well, that's just, like, your opinion, man." Brad Hasenjaeger, our FSHD Dad, fires questions at Dr. Peter Jones around the drug development pathway for FSHD. A casual back and forth, as we do, but always on things important to FSHD....more1h 56minPlay
May 29, 2022Saturday catch up with questions and comments around FSHD, May 28, 2022"As far back as I can remember I always wanted to be a gangster." It's Memorial Day Weekend in the USA and we are eternally grateful for those in the military who sacrificed their lives fighting for our freedoms. Today, Dr Peter Jones catches you up on diagnostics and discusses some of the differences between the muscular dystrophies and highlights the uniqueness of FSHD....more1h 2minPlay
May 25, 2022Briefly on diagnostics and stem cells for FSHD"Setting squirrel traps while elephants stomp you into pancakes." Dr. Jones addresses questions about FSHD diagnostics and stem cells....more1h 5minPlay
FAQs about MyFSHD:How many episodes does MyFSHD have?The podcast currently has 115 episodes available.