MyFSHD

"So shines a good deed in a weary world."  It is our 40th episode, so we are recapping and reintroducing ourselves to the wider audience.

"What am I working on? Uhhh, I'm working on something that will change the world and human life as we know it."  It's not teleportation, but, at your request, Drs Charis Himeda and Peter Jones discuss the recent announcement of Epic Bio's entry into the FSHD therapeutic space.

"Let’s win this one for all the small schools that never had a chance to get here."  Everything is possible with talented people sincerely dedicated to a cause.  Today MyFSHD welcomes one of the best, professional sports broadcaster Chris Carrino, founder of the Chris Carrino Foundation for FSHD and an FSHDer himself, to discuss his foundation, funding research, and his journey with FSHD.

"I've never had anything you doctors didn't try to cure with leeches."  Kate Fowles hosts Dr. Channa Hewamadduma, Consulting Neurologist at the University of Sheffield Neuroscience Institute, as they discuss FSHD and clinical trial readiness.

"You stay classy, San Diego. I'm Ron Burgundy?"... "Dammit, who typed a question mark on the TelePrompter?... Anything you type, Burgundy will read!" Dr. Peter Jones talks recent developments in the FSHD space, DNA methylation, and answers questions on diagnostics and triggers of pathology.

"Here they are, back after their exclusive three-year tour of Europe, Scandinavia and the subcontinent."  MyFSHD is back in Reno, but the work never stopped, and we are answering some common questions today.

"It's a bold strategy, Cotton. Let's see if it pays off for 'em."  Coming to you from NYC where Dr. Peter Jones is with Ms. Nguyen Cam Thi talking about her personal journey with FSHD and the impact of a trip to the US and meeting with other patients, and we answer some listener questions on FSHD.

"Failure is not an option."  Dr Peter Jones and MyFSHD Ambassador Ms Nguyen Cam Thi, an FSHDer from Hanoi Vietnam, discuss FSHD on World FSHD Day 2022.

"My (girl's) wicked smart." Today we talk with Ms Hannah Moore who is just finishing up 3 years of research on FSHD in the Jones lab at UNR, having made numerous significant contributions to the programs, and is heading off to graduate school. 

"Fascinating!  Semmi, look at this!  America is great indeed.  Imagine a country so free, one can throw glass on the streets!"   Today we are recapping our biomarker discussion, answering some questions, and then heading to the airport.