MyFSHD

By Peter L Jones, PhD

MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jo... more

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FAQs about MyFSHD:

How many episodes does MyFSHD have?

The podcast currently has 115 episodes available.

MyFSHD episodes:

April 16, 2022 What's going on in FSHD, week ending April 16th
Peter Jones recaps the week in FSHD; Solve FSHD, CRISPR, Morgan Hoffmann.
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30min
April 13, 2022 Questions and comments from "Dad" about the future of FSHD
Peter Jones sits down with a true stakeholder in all of this and talks curing FSHD. Brad Hasenjaeger is a concerned father and husband who wants action.
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1h 33min
April 09, 2022 What's going on in FSHD week ending April 9th, 2022
Dr. Peter Jones gives a brief recap of the week and answers some questions from patients.
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29min
April 06, 2022 Chip Wilson discusses his new venture, Solve FSHD, and his vision for restoring muscle health in FSHD and aging.
Chip Wilson, founder of Lululemon and an FSHD patient, sits down with Drs. Peter Jones and Charis Himeda to discuss his new $100 million venture, Solve FSHD, aimed at curing FSHD and age-related muscle decline.
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1h 16min
April 02, 2022 What's going on in FSHD, week ending April 2
Peter Jones answers recent patient questions and addresses issues relating to FSHD
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33min
March 30, 2022 The making of a FSHD mouse
Drs. Takako and Peter Jones discuss how they made the FLExDUX4 FSHD-like mouse model that is used around the world for FSHD therapeutic development and preclinical testing.
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1h 52min
March 26, 2022 What's going on in FSHD March 26th 2022
Free flowing commentary on all things FSHD
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33min
March 24, 2022 FSHD researcher Dr. Julie Dumonceaux talks FSHD with MyFSHD UK Ambassador Kate Fowles
Dr. Julie Dumonceaux, Professor at University College London Great Ormond Street Institute of Child Health in London, England, discusses her lab's FSHD work and overall FSHD efforts in the UK with MyFSHD UK Ambassador Kate Fowles.
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42min
March 17, 2022 FSHD therapeutics overview
Dr. Charis Himeda joins us again to talk all types of FSHD therapeutic approaches
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1h 44min
March 12, 2022 Epigenetics and FSHD
A primer on epigenetic gene and genome regulation and how it relates to FSHD
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28min

FAQs about MyFSHD:

How many episodes does MyFSHD have?

The podcast currently has 115 episodes available.