When her husband was diagnosed with frontotemporal degeneration at just 29, Katie Brandt’s life changed overnight. What began as confusion and heartbreak became a lifelong calling to transform how we see, support, and study dementia. Today, Katie is the Director of Caregiver Support Services and Public Relations at the Massachusetts General Hospital Frontotemporal Disorders Unit, and the Founder & CEO of Katie Brandt Advocacy.

In this conversation, we talk about what it means to become a “caregiver detective”, the quiet observer, the record keeper, the advocate who pieces together the truth when something feels off. We explore how early and accurate diagnosis brings dignity, how research becomes more human when it includes caregiver voices, and why supporting caregivers isn’t just compassionate, it’s strategic. Katie shares the lessons she’s learned through love, loss, and leadership, and how her belief that “love will end FTD” continues to guide her work and the families she serves.

To buys tickets and learn more about A Night with the Arts for FTD, an annual gala featuring the Sermos Memorial Art Show, benefitting the clinical research program in the MGH Frontotemporal Disorders Unit. Visit HERE.

The MGH Frontotemporal Disorders Unit hosts From Care to Cure podcast. Listen HERE.

Thank you to our Sponsor

Zinnia TV is a therapeutic dementia care platform that supports caregivers.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

Comedian Kelsey Cook, known for her specials on Hulu and YouTube, opens up about her personal journey as a caregiver for her mom with Frontotemporal Dementia. In this heartfelt conversation, Kelsey shares the early signs she noticed, the trauma of crisis care, and the challenges of supporting her mom from a distance. She reflects on how humor has been a lifeline, how advocacy became part of her purpose, and why community connection matters now more than ever.

Follow Kelsey and check out her work and podcast! https://www.kelseycook.com/

Thank you to our Sponsor

Zinnia TV is a therapeutic dementia care platform that supports caregivers.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

When caregiving became her world overnight, Andrea Suchin’s life changed forever. Her husband was diagnosed with frontotemporal dementia at 54, leaving Andrea to navigate full-time caregiving while raising four children. Sleepless nights and overwhelming stress became her reality. Out of that journey, Andrea and her sister created Wuggle™, a deep touch pressure sleep cap designed to bring calm and restorative rest. In this episode, Andrea shares her story of resilience, the creation of Wuggle™, and how better sleep can transform the caregiving journey.

To learn more about Wuggle here: http://www.wuggleme.com/

Thank you to our Sponsor

Zinnia TV is a therapeutic dementia care platform that supports caregivers.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

Instagram: @willgather

At 85, Jean Ketcham is just getting started. As the bold voice behind Aging But Dangerous, Jean reminds us that aging isn’t about the body, it’s about the soul. In this lively conversation, we talk about skydiving, style, friendship, caregiving, and yes, even vibrators. With her signature sass, fearless honesty, and contagious energy, Jean shows us how to embrace every year fully confident, empowered, and unstoppable.

To connect with Jean and learn more visit https://www.agingbutdangerous.com/

Thank you to our Sponsor

Zinnia TV is a therapeutic dementia care platform that supports caregivers. Creating engaging, dementia-friendly video content to reduce anxiety, spark memories, and provide meaningful moments of connection for individuals living with cognitive challenges and their caregivers. We invite you to use the code GATHER20 for 20% off an annual subscription HERE.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit

https://www.willgatherpodcast.com/ 

When Frontotemporal Dementia (FTD) entered their lives, everything changed for Nanci Anderson and her daughters, Lindsay Early and Emily Anderson. In this conversation, they open their hearts about the long and confusing road to Gary’s diagnosis, the challenges of caregiving, and the deep grief of watching someone you love slip away too soon. They also share the turning point, when they chose to honor Gary by creating Gary’s FUB Team and raising awareness through advocacy and community. This is a story of heartbreak and resilience, of carrying love forward, and of finding purpose in the face of loss.

And here’s where you can step in. Gary’s FUB Team is hosting their annual fundraising event, September 22nd, to benefit AFTD. This is an evening filled with community, storytelling, and hope. Every ticket, every donation, every act of support moves us closer to better care, greater awareness, and the possibility of ending FTD.

If you’d like to attend, contribute, or simply stand alongside families like Nanci and Lindsay’s, you can visit garysfubteam.simpletix.com. Whether you show up in person or from afar, your support matters more than you know!

Connect with Gary's FUB Team on Instagram and Facebook @garysfubteam

To learn more about The Association for Frontotemporal Degeneration visit https://www.theaftd.org/

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

Instagram: @willgather

Facebook: WillGather

Thank you our sponsor, Zinnia TV. We invite you to use the code GATHER20 for 20% off an annual subscription HERE.

Most people think aging is about endings. Familiar Touch shows us it’s about beginning again. In this episode, filmmaker Sarah Friedland, actress Kathleen Chalfant, executive director Shaun Rushforth, and resident Jean Owen of Villa Gardens, take us behind the scenes of this award-winning film that reimagines aging, dementia, and caregiving through dignity, creativity, and collaboration. A must-listen for family caregivers and senior living advocates.

We go behind the scenes of Familiar Touch—filmed at Villa Gardens, a Front Porch Community. What does it mean to open your doors, your story, and your heart to a film crew? How do you protect dignity while embracing creative risk? And what happens when older adults shift from being passive recipients of care to powerful co-creators?

We talk about everything: boundaries and trust, storytelling and memory, leadership in senior living, and how art can reimagine what aging and caregiving really look like—rooted in love, dignity, and the belief that every person deserves to be seen and why this film needs to be shared.

Familiar Touch gives family caregivers a rare gift: the chance to see their own journey reflected with honesty and grace, reminding them that they are not alone.

The small moments of transition. The weight of goodbyes. The quiet strength of starting over.

Filmed on location at Villa Gardens in Pasadena with residents as cast and crew, Familiar Touch offers an authentic, collaborative portrayal of aging and caregiving. It premiered at the Venice Film Festival, winning three major awards, and will be released in U.S. theaters on June 20, 2025 by Music Box Films.

Learn more about the film at https://www.familiartouchfilm.com/

Thank you to our sponsors:

HeroGeneration empowers caregivers and families by providing innovative resources, education, and support to navigate the challenges of aging and caregiving with confidence and connection. It's free to start. Join now HERE.

Zinnia TV is a therapeutic dementia care platform that supports caregivers. We invite you to use the code GATHER20 for 20% off an annual subscription HERE.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

Last year, I had the privilege of joining as a Jury member, award presenter, and speaker. Meeting changemakers and those that reshaping aging care around the globe brings hope to our future, and we still have work to do! I left inspired by the global momentum to rethink how we support aging populations.

Every conversation, every connection, reminded me that “Care and love are universal.”

In this episode, I share a glimpse into our time last year and re-share my interview with the founder, Jerome Pigniez. He shares  about The SilverNight Awards, and the SilverEco & Ageing Well International Festival is an event that unites global leaders to celebrate and advance the cause of aging well. From Paris to Tokyo and now Cannes, this festival has grown to become a gathering for those dedicated to making a difference.

This international festival is a premier event that brings together experts, innovators, and passionate individuals from around the world, dedicated to improving the lives of older adults.

If you're looking to:

• Spark meaningful partnerships
• Inspire and be inspired
• Elevate your work and your network
• Deepen your impact alongside global leaders
• Build global connections across sectors
• Learn from leading voices in aging and eldercare
• Showcase or discover innovations making real impact
• Celebrate those who care—with heart and vision

…then SilverEco 2025 is the place to be.

If you work in aging, caregiving, agetech, innovation, or healthy longevity—this is your invitation.

🌍 SilverEco & Ageing Well International Festival 2025

📅 October 20–21, 2025

📍 Cannes, France🔗 silvereco.org

And yes—submissions are open now for the 2025 SilverEco Awards.

Register HERE: https://silvereco.org/pass/subscribe-festival/?scr=25wg767iv

Learn more HERE: https://www.silvereco.org/festival/en/contact-us/?scr=25wg767iv

Thank you to our Sponsors

HeroGeneration empowers caregivers and families by providing innovative resources, education, and support to navigate the challenges of aging and caregiving with confidence and connection. It's free to start. Join now HERE.

Zinnia TV is a therapeutic dementia care platform that supports caregivers. Creating engaging, dementia-friendly video content to reduce anxiety, spark memories, and provide meaningful moments of connection for individuals living with cognitive challenges and their caregivers. We invite you to use the code GATHER20 for 20% off an annual subscription HERE.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

What if your deepest caregiving experience became the blueprint for changing the system? Dr. Francesca Falzarano was just 14 when her mother was diagnosed with dementia—an experience that shaped not only her identity, but her life’s work.

Now an Assistant Professor of Gerontology at USC and founder of the Falzarano Family Caregiving Lab, Francesca is studying the full arc of caregiving—from diagnosis to grief. In this conversation, she shares how personal loss inspired a research mission, what caregivers actually need (and when), and how technology and storytelling can foster healing and connection.

Whether you're a family caregiver, healthcare professional, or someone walking this journey alongside a loved one, this episode is a powerful reminder that research doesn’t belong in silos—it belongs in real life.

This episode is made possible by our sponsors:

HeroGeneration – offering tools, guidance, and a sense of belonging for caregivers who often feel like they’re navigating alone. Zinnia TV – bringing calm, joy, and meaningful moments to people living with dementia and the ones who love them. Use the code GATHER20 for 20% off your annual subscription.

Thank you for supporting the heart of this conversation. 

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

What happens when the roles we’ve known all our lives—daughter, professional, partner—are suddenly eclipsed by one word: caregiver? For so many, caregiving becomes not just a responsibility but an identity. And with that comes the heavy mix of self-sacrifice, emotional resilience, and a quiet grief. But what if there’s another way to see it? What if caregiving could be both a deep act of love and an opportunity to hold onto who we are, to grow, and to even rediscover our power?

Today’s guest, Nikki Nurse, spent 12 years as a full-time caregiver for her mom, who lived with early-onset dementia and Alzheimer’s. That journey shaped not only her days but her entire understanding of empathy, resilience, and what it means to care for someone while still caring for yourself. Nikki’s story is one of navigating grief, finding emotional respite, and redefining what sustainable self-care looks like—not as a luxury, but as a lifeline for caregivers.

In this conversation, we’ll explore the truth behind caregiving and self-sacrifice, what sustainable self-care really looks like, and why permission to be seen is a radical act for caregivers. Nikki will share how to navigate grief and guilt, set boundaries, and even break the generational patterns that tell us caregiving must mean losing ourselves. Nikki shares how AI can help caregivers by easing the mental load—automating tasks, offering reminders, and creating space for what really matters: being present and caring without burning out. We’ll also talk about reclaiming confidence, embracing resilience, and the small, powerful ways caregivers can give themselves flowers—every day.

Follow and connect with Nikki at http://www.alogcabininbrooklyn.com/ and follow her  HERE.

Listen to her podcast with CARE-isma HERE.

Thank you to our Sponsors

HeroGeneration empowers caregivers and families. It's free to start. Join now HERE.

Share your caregiver story HERE!

Zinnia TV is a therapeutic dementia care platform that supports caregivers. We invite you to use the code GATHER20 for 20% off an annual subscription HERE.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

What caregiving really asks of us—emotionally, mentally, and spiritually.

What happens inside us when we’re called to care for someone we love? Beneath the to-do lists and the sleepless nights lives an unspoken truth: caregiving changes us. It can strip us down, reshape our identity, and ask us to find meaning in all of it.

In this episode, I’m joined by Dr. Barry J. Jacobs—a clinical psychologist, family therapist, and longtime caregiver himself. He’s the author of The Emotional Survival Guide for Caregivers and the upcoming AARP Caregiver Answer Book. Barry brings decades of insight into what it really means to show up for others while trying to hold onto yourself.

We talk about the emotional toll of caregiving, the guilt that lingers, and the loneliness that can come when no one sees what you’re carrying. Barry shares real, practical ways to manage anxiety, protect your identity, and build resilience. We also explore what a truly supportive healthcare system could look like—and how caregivers can begin to advocate for themselves.

This is an episode for anyone in the thick of it, anyone who’s quietly unraveling and rebuilding, and anyone who just needs to hear: you’re not alone.

Thank you to our sponsors!

HeroGeneration empowers caregivers and families by providing innovative resources, education, and support to navigate the challenges of aging and caregiving with confidence and connection. It's free to start. Join now HERE.

Zinnia TV is a therapeutic dementia care platform that supports caregivers. creates engaging, dementia-friendly video content to reduce anxiety, spark memories, and provide meaningful moments of connection for individuals living with cognitive challenges and their caregivers. We invite you to use the code GATHER20 for 20% off an annual subscription HERE.

We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.

Please follow for updates, rate & review!

For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com