How do you raise a child with congenital abnormalities? Esther Masika’s first born, Tunu, was born with clubfoot and arthrogryposis (AMC). She talks about grieving the normal child she had dreamt of. Our conversation will make you rethink many things you have taken for granted when it comes to bringing up children with congenital abnormalities. Now Esther Masika’s mission is to talk to pregnant women so that they can really listen to their bodies, be present to their pregnancy and ask questions to the doctors.
She is the founder of The Bold One Out, a movement of extraordinary mums raising little angels with extraordinary conditions.