Progressive Voices

Off Kilter TCF S410 E52 - Learning from Long-Haulers about Rest and Radical Pacing


Listen Later

This week, Off-Kilter returns to our ongoing series of conversations with social justice leaders digging into why, in the famous words of Audre Lorde, self-care is political warfare—and the role radical self-care plays in their own lives to sustain them in this work.
As we’ve explored a good bit in recent weeks as part of this series, the disability community harbors some of the greatest wisdom when it comes to radical self-care—with disabled people as modern-day oracles, as activist Alice Wong often puts it.
And to that end, for this week’s episode, Rebecca sat down with Lisa McCorkell, cofounder of the Patient Led Research Collaborative, a new organization that advocates for folks with long COVID; and Ryan Prior, a journalist-in-residence with TCF’s Disability Economic Justice Team, a board member of ME Action (which works to build awareness about a condition called ME/CFS), and author of The Long Haul.
Picking up on a conversation they had last July for the podcast about the patient advocacy revolution sparked by COVID long-haulers, they had a far-ranging conversation about what we can learn from the long COVID and ME/CFS communities when it comes to radical self-care, with a deep dive on the practice of “radical pacing”; the significance of self-care as political warfare to the chronic illness community; how patient advocacy itself is a form of self-care, particularly for folks with invisible chronic illnesses; the policy and cultural shifts needed to ensure basic practices like rest are universally available; and more.
...more
View all episodesView all episodes
Download on the App Store

Progressive VoicesBy Progressive Voices

  • 4.5
  • 4.5
  • 4.5
  • 4.5
  • 4.5

4.5

46 ratings


More shows like Progressive Voices

View all
Democracy Now! Audio by Democracy Now!

Democracy Now! Audio

5,643 Listeners

Best of the Left - Leftist Perspectives on Progressive Politics, News, Culture, Economics and Democracy by BestOfTheLeft.com

Best of the Left - Leftist Perspectives on Progressive Politics, News, Culture, Economics and Democracy

3,382 Listeners

The Rachel Maddow Show by Rachel Maddow, MSNBC

The Rachel Maddow Show

36,402 Listeners

The Professional Left Podcast with Driftglass and Blue Gal by Driftglass and Blue Gal

The Professional Left Podcast with Driftglass and Blue Gal

901 Listeners

The David Pakman Show by David Pakman

The David Pakman Show

3,792 Listeners

The Majority Report with Sam Seder by Sam Seder

The Majority Report with Sam Seder

3,533 Listeners

Ring of Fire Radio with Farron Cousins by Audio Matters LLC

Ring of Fire Radio with Farron Cousins

471 Listeners

The BradCast w/ Brad Friedman by Brad Friedman

The BradCast w/ Brad Friedman

237 Listeners

Ralph Nader Radio Hour by Ralph Nader

Ralph Nader Radio Hour

1,186 Listeners

The Bill Press Pod by BP Pods

The Bill Press Pod

620 Listeners

The Hartmann Report by Thom Hartmann

The Hartmann Report

1,362 Listeners

The Damage Report with John Iadarola by TYT Network

The Damage Report with John Iadarola

2,782 Listeners

The John Fugelsang Podcast by Crossover Media Group

The John Fugelsang Podcast

1,470 Listeners

The MeidasTouch Podcast by MeidasTouch Network

The MeidasTouch Podcast

45,511 Listeners

Countdown with Keith Olbermann by iHeartPodcasts

Countdown with Keith Olbermann

5,353 Listeners