On the tip of my tongue - talking about Aphasia

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Transformative Power of Music Therapy with Elizabeth Nightingale

In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Elizabeth shares insights into the innovative programs at Chilton Music Therapy, which blend music with community outreach and online learning. The conversation also covers the specifics of music therapy for Aphasia patients, highlighting the cognitive and emotional benefits, the development of new neural pathways, and the creation of supportive communities. The episode emphasizes the nationwide accessibility of these services through online platforms, making therapeutic music interventions available even in remote and under-served areas.

00:00 Introduction to the Podcast

00:54 Meet the Hosts and the Topic of Aphasia

01:49 Welcoming Elizabeth Nightingale

02:23 Overview of Chiltern Music Therapy

03:57 Impact of Music Therapy on Various Conditions

05:22 The Science Behind Music Therapy

07:23 Online Aphasia Music Therapy Groups

09:13 Access and Participation Details

18:23 Promoting the Online Groups

21:24 Concluding Remarks and Resources

For more info about Chiltern and Aphasia

https://www.chilternmusictherapy.co.uk/stories/use-your-voice-aphasia

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This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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International Aphasia Awareness Campaign with Claire Bennington

In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with the Australian Aphasia Association since 2018, and discusses her PhD project, which focuses on co-designing a unified international Aphasia awareness campaign. The conversation covers the current fundraising initiatives, the challenges of raising awareness for Aphasia, and the ways listeners can get involved. Claire also highlights the importance of global collaboration and multi-language accessibility for the campaign materials aiming to make a significant impact on Aphasia awareness worldwide.

00:00 Introduction to the Podcast and Guest
01:24 Understanding Aphasia
02:01 Claire Bennington's Background and Role
03:47 Challenges and Activities of the Australian Aphasia Association
06:19 Fundraising Efforts and Campaigns
09:03 Global Aphasia Awareness Campaign
17:29 Conclusion and How to Get Involved

To donate to Claire's Just Giving page, click here:

https://www.justgiving.com/campaign/qarc-uq-aphasia-awareness

To contact Claire about the Match the Momentum: Unite for Aphasia Awareness campaign

Claire Bennington - [email protected]>

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Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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Overcoming Aphasia: Robert Baldock’s Journey and Advocacy

This episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting in acute aphasia and severe verbal dyspraxia. Robert shares his journey through his stroke, the challenges he faced with communication, and his path to recovery. He discusses his innovative use of technology and alternative communication methods, including a synthetic voice developed from his radio recordings. Additionally, Robert talks about his advocacy efforts for the reinstatement of the thrombectomy procedure in Scotland, demonstrating his resilience and commitment to helping others. For more information on strokes and aphasia, listeners are directed to several helpful resources.

00:00 Introduction to Robert Baldock
00:50 Understanding Aphasia
01:33 Robert's Stroke Experience
03:26 Life After Stroke
07:09 Communication Challenges and Solutions
08:43 Advocacy and Campaigning
09:33 Conclusion and Resources

For more information about Robert and Andy Fielding (AKA MC Zirconium) is on their website 

https://www.projectmoonbase.com

Robert's original music can be found on his Band Camp website

https://aleatorymusicsystems.bandcamp.com/music

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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Join us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him overcome challenges. Listen today! 😊 #Aphasia #MusicHealing #Podcast

Living with Aphasia: A Journey Through Music and Recovery

Rob Edwards and Jonathan Hirons discuss the impact of Aphasia following a stroke experienced by Graham 10 years ago. The podcast, titled 'On the Tip of My Tongue', complements a film about Aphasia made by Jonathan. Aphasia impairs language skills and affects 350,000 people in the UK, yet remains relatively unknown. Graham shares his journey of adapting to life post-stroke, highlighting his transition from performing with Opera North to creating music and lyrics to aid his recovery and raise awareness. The discussion underscores the therapeutic power of music, the struggle with word-finding, and the broader impact of Aphasia.

00:00 A Life-Changing Stroke
01:03 Introduction to the Podcast
01:22 Understanding Aphasia
01:59 Personal Journey with Aphasia
03:20 Musical Career and Aphasia
05:02 Creating Music with Aphasia
07:48 Future Aspirations and Reflections
11:49 Conclusion and Resources

Graham's website:  https://grahamhall.bandcamp.com/music

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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Aphasia in Popular Culture and Awareness: Exploring the Silent Struggle

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of Aphasia—a condition caused by brain injury that significantly impacts communication abilities. They discuss its portrayal in popular culture, specifically referencing a character with Aphasia in the detective series 'Department Q.' The hosts highlight the importance of Aphasia awareness, especially during June, the designated Aphasia Awareness Month. They share insights about various types of Aphasia, mention notable individuals like Maurice Ravel and Bruce Willis who have faced the condition, and the impact and advances in therapy. The conversation also touches on diverse topics including a musician friend, Graham Hall, and a nostalgic reflection on Rob's appearance in 'Doctor Who.' The episode underscores the significance of awareness and community support in understanding and managing Aphasia.

00:00 Introduction to the Podcast and Hosts
00:45 Understanding Aphasia
02:05 Aphasia in Popular Culture
04:51 Interview with Graham Hall
07:27 Famous People with Aphasia
14:37 Rob's Doctor Who Experience
19:58 Podcast Growth and Listener Demographics
21:23 Conclusion and Resources

Life in the key of Aphasia - https://grahamhall.bandcamp.com

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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Navigating Conversations with Aphasia: Insights from Iain Stansfield

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of living with aphasia through a conversation with Iain Stansfield and Dr. Suzanne Beeke. Iain shares his personal journey following a stroke, emphasising the challenges of communicating with aphasia and the impact on relationships. The discussion delves into experiences from the 'Better Conversations with Aphasia' therapy group, a program developed by Dr. Beeke at UCL. Key points include the significance of video reflection in improving communication strategies and the evolving dynamic between individuals with aphasia and their partners. Listeners are encouraged to support the podcast and can find more resources at stroke.org.uk, sayaphasia.org, or the NHS aphasia page.

00:00 Understanding Aphasia: A Shift in Conversations
00:34 Welcome to 'On the Tip of My Tongue'
02:33 Introducing Iain Stansfield
03:06 The Therapy Group Experience
04:42 Reflections on Communication Challenges
06:40 Impact of Video Reflections
07:37 Changes and Insights Post-Therapy
10:49 Future Directions and Final Thoughts
12:33 Conclusion and Resources

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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Dan's Journey: Triumph Over Aphasia

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head injuries from a cycling accident in 2016. These injuries resulted in Aphasia and mobility challenges. Despite his struggles, Dan founded the Minds Over Matter Social Group to create a supportive community for individuals with brain injuries. The episode explores Dan's daily routines, his love for social activities, and how he navigates the complexities of living with Aphasia. Listeners learn about the significance of shared experiences and community support in overcoming adversity. The hosts also highlight the importance of raising awareness about Aphasia, a condition that remains relatively unknown despite affecting 350,000 people in the UK.

00:00 Understanding Brain Injury and Aphasia
00:23 Introduction to the Podcast
00:41 What is Aphasia?
01:19 Dan Sutton's Inspiring Journey
02:07 Daily Life and Challenges
02:44 Social Activities and Hobbies
04:10 Struggles with Reading and Audio Books
05:54 The Power of Community and Support
09:10 Singing and Aphasia
10:14 Conclusion and Resources

Visit the to Minds over Matter instagram account

https://www.instagram.com/mindsovermatter.osm/

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge

In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges and misconceptions surrounding disabilities, particularly aphasia. They are joined by Sarah Petherbridge, a disability trainer and speaker who shares her experiences of living with profound deafness and working in the corporate sector. Sarah emphasizes the importance of creating inclusive workplaces and the need for a shift from diversity initiatives to genuine inclusion. She discusses the impact of government policies on disability rights, the importance of technology, and the necessity of changing societal attitudes. The conversation also highlights strategies for small businesses to promote inclusivity without incurring substantial costs. The episode underscores the broader definition of disability and the significant progress needed to close the disability employment and pay gaps.

00:00 Introduction to the Podcast
00:36 Understanding Aphasia
01:13 Meet Sarah Petherbridge: Disability Trainer and Speaker
02:19 Sarah's Journey and Business
03:02 Challenges and Changes in Disability Inclusion
06:17 Employment Gaps and Workplace Adjustments
19:39 The Role of Technology in Disability Inclusion
20:30 Social Perceptions and Personal Experiences
31:29 Future Outlook and Final Thoughts
32:51 Conclusion and Resources

https://www.sarahpetherbridge.co.uk

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got Back Up.' Talia shares her harrowing story of a devastating electric scooter accident in 2021, which resulted in serious leg injuries and an 18-month rehabilitation journey. She discusses her physical and mental recovery, overcoming multiple surgeries, and even achieving the incredible feat of running a half marathon only 10 months post-surgery. The conversation delves into the power of mindset, the significance of embracing fears, and the transformative journey that led Talia to a successful career in sports broadcasting and mental health advocacy. With heartfelt anecdotes and insightful advice, this episode underscores the importance of resilience, community, and self-belief.

00:00 Introduction to Talia Lazarus' Journey
00:48 Understanding Aphasia
01:49 The Accident and Immediate Aftermath
03:59 The Road to Recovery
05:58 Running a Half Marathon
09:29 Starting the Podcast
13:56 Career as a Presenter and Broadcaster
21:44 Embracing Positivity and Overcoming Challenges
31:43 Reflections and Future Plans
36:56 Closing Remarks and Farewell

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

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The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org

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Understanding Acquired Brain Injuries: Challenges and Support Systems plus Returning to Work

In this episode, Jonathan interviews Tamsin Keyes, the Publications and Research Manager at HEADWAY, the Brain Injury Association. Tamsin provides an in-depth explanation of what constitutes a brain injury, ranging from traumatic incidents to medical complications like strokes and aneurysms. She also outlines the difficulties individuals face when returning to work post-injury, including cognitive challenges and workplace accommodations. The discussion highlights the hidden nature of brain injuries and the importance of awareness, support, and legal rights under the Equality Act. Tamsin also shares resources and services provided by HEADWAY, including their helpline, local support groups, and vocational rehabilitation options. The episode aims to raise awareness and offer practical advice for individuals affected by brain injuries and their families.

00:00 Introduction to HEADWAY and Brain Injury
00:28 Understanding Brain Injuries
02:50 Challenges of Returning to Work
08:14 Support Systems for Employment
14:37 HEADWAY's Services and Support
23:27 Conclusion and Final Thoughts

www.headway.org.uk

www.acas.org.uk

www.gov.uk/government/collections/disability-confident-campaign

www.jobcentreguide.co.uk/about-disability-employment-advisors

www.gov.uk/guidance/equality-act-2010-guidance

www.vrassociationuk.com/resources-for-individuals

www.ncvo.org.uk/get-involved/volunteering/volunteering-opportunities

Support the show

Support the show:  Donate Now

This podcast is funded by https://www.bas.org.uk

To watch Jonathan’s film:  https://tipofmytonguefilm.com

YouTube:    https://www.youtube.com/@tipofmytonguefilm

Linkedin:    https://www.linkedin.com/in/jonathanhirons/

Instagram: https://www.instagram.com/tipofmytonguepodcast/

X:                http://x.com/buffaloloungeuk

The Tavistock Trust for Aphasia website

http://aphasiatavistocktrust.org