Today we talked with Steven A. Barbieri and Truthful Loving Kindness, both living with dementia. It was a very interesting show with great insights. We covered a variety of topics listed below.

1. * The diagnostic process and the difficulty in getting an actual type of dementia pinned down.
2. Like Cancer, Dementia is a category, not an official disease like Alzheimer’s disease, Lewy Body Dementia, Vascular, FTD, CTE…
3. We also dive into the benefits of exercise.
4. The importance of the Phrases – Nothing About Us Without Us and Nothing About Me Without Me
5. Organizations that tout having a “Token” person living with dementia on the board… and the impact of that.
6. Truthful’s Blog on dementia symptoms and strategies.
7. Using a cell phone for strategies, pictures to help remember things or events, calendars, and reminder alerts.
8. Quality of Life for people living with dementia. *Bidets, what a wonderful tool as the disease progresses.

Helpful Resources Discussed

• National Council of Dementia Minds also known as Dementia Minds

https://dementiaminds.org/

• Life 360 – The Family Locator APP

https://www.life360.com/

• Tru's Blog

https://alzheimersspeaks.com/blog/

• GrandPad – A Communication and Engagement Tool

https://www.grandpad.net/

 

Find Us At:

Website     https://alzheimersspeaks.com/alzheimers-speaks-radio/

Youtube  https://youtu.be/Nc7xW7H3NSU

Apple Podcast    https://podcasts.apple.com/us/podcast/open-mic-airs-on-alzheimers-speaks/id986940432?i=1000653428716 

Spotify     https://open.spotify.com/episode/5CfOPWEv6nEGJususJGz88 

Pod Links     https://pod.link/986940432

 

Mark Your Calendars for our Next Open Mic on June 18th at 2 pm ET, 1 pm CT, 12 pm MT, 11 am PT

Share Your Story, Service, Product, or Tool on Alzheimer’s Speaks Open Mic

Join Alzheimer's Speaks Radio today on Open Mic as we shift dementia care from crisis to comfort around the world one episode at a time.  We love raising all voices and delivering sound news, not just sound bites!  So, we invite you to call in and tell us how you are improving dementia care. We just ask all parties to hold to have a respectful conversation.

Share your dementia or caregiving story. Tell us about your service, product, or tool you have that can help others dealing with dementia.  Have you written a book, penned, or produced a song or film?  If so, we want to hear from you.  Maybe you are working on a research project or have a trial you are promoting. 

Contact Us To Join Us On The Next Open Mic  https://alzheimersspeaks.com/be-a-guest/

 

Contact Lori La Bey with Alzheimer’s Speaks

Website –  https://www.alzheimersspeaks.com/

Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

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