Open MIC on Alzheimers Speaks - Let Your voice Be Heard!

This show was prerecorded on December 19th and had a wonderful group of people show up and share their insights and resources regarding dementia. We had the following people contribute to the show.

Marilyn Raichle - with Maude's Awards but who also shared some insights on dementia care.  https://maudesawards.org/

Craig Hanke - Lives with dementia and shared insights

Tracy Perkins - Author of Dementia Home Care which is available on Amazon https://www.amazon.com/dp/1941887120

Truthful Loving Kindness - Lives with dementia and shared some insights.

Laurette Klier - Founder of Nana's Book Series - https://nanasbookseries.com/

Deborah Snyder - Cares for her husband with dementia and shared 3 tips when caring.

Michael Ellenbogen - Lives with dementia shared a research study on the meaning of voluntary assisted dying to Australians living with dementia. 

The study is being conducted by Adrienne Matthys from the School of Social Work and Arts at Charles Sturt University. Here is a link to that survey for those living in Australia  https://www.research.net/r/VAD_CSU 

Here is also a link to an article about the Australian study. https://news.csu.edu.au/latest-news/voluntary-assisted-dying-study-seeks-to-hear-from-those-living-with-dementia

Dr Stan Terman founder and his assistant Barbara of Caring Advocated which specializes in Strategic Advanced Care Planning.  https://caringadvocates.org/

We also discussed the importance of brain autopsies for research and below are some resources:

Boston University Brain Bank - https://www.bu.edu/cte/brain-donation-registry/

Family members of deceased athletes may donate their loved one’s brain and spinal cord after their death to the UNITE Brain Bank to be examined neuropathologically for evidence of CTE or other disorders of the central nervous system. FREE

National Institute on Aging   https://neurobiobank.nih.gov/

https://neurobiobank.nih.gov/static/NIMH%20Donate_accessible_REVISED.c734bf270044.pdf

The Brain Donor Project 

https://braindonorproject.org/contact-us/

P.O. Box 111002

Naples, FL 34108-1929

513-393-7878

Watch the Youtube Video   https://youtu.be/WTK1jbt_-dY

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Contact Lori La Bey with questions or branding needs at https://www.alzheimersspeaks.com/

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer's Speaks is part of the Senior Resource Podcast Network.

Contact Information 4 Alzheimer’s Speaks & Dementia Map

Website –  https://www.alzheimersspeaks.com/

Website –  https://www.dementiamap.com/

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Contact Lori La Bey with questions or branding needs through www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011. Support this Show: https://alzheimersspeaks.com/donate-now/ See omnystudio.com/listener for privacy information.